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What is Hydrocephalus? An Overview

Hydrocephalus is a chronic neurological condition that impacts over 1 million Americans, from infants to seniors. There is no cure but there are effective treatments to manage the condition.


Medical Alert IDs and Hydrocephalus

Without proper identification of a medical condition like hydrocephalus, common symptoms, such as headaches, dizziness, sleepiness and vomiting can be misdiagnosed and appropriate care could be jeopardized or delayed.

Travelling with Hydrocephalus

Traveling with Hydrocephalus

Business trips, vacations, long weekends away – as adults, there are various reasons for travelling away from home and our doctors. Being prepared when you travel is one way to ease your mind about any possible emergency situations that could arise in relation to your hydrocephalus or any other unplanned incident.


Are You An Assertive Member of Your Health Care Team?

We asked on our Hydrocephalus Association Facebook Page: “Many of us work with a team of health care providers. What are your top three tips on how you communicate with them to be an assertive and effective member of the team? ” We had received some really valuable input and feedback. Here is what some of you shared with us:

Talking to your doctor about hydrocephalus

Talking to Your Doctor

It is important to be an active participant in the decision making process about the necessary care for you or your loved one. Preparing for the visit will help you get the information you need and facilitate the communication between you and your healthcare provider.

Vision loss and hydrocephalus

Papilledema, Vision Loss, and Hydrocephalus

Papilledema is an optic disc swelling that is secondary to elevated intracranial pressure around the brain associated with hydrocepahlus.The biggest concern with increased intracranial pressure is there is always the potential for visual loss secondary to the papilledema.


Workplace Communication Tips for People Living with Disabilities

Good work communication is hard work for even the most experienced member of the workforce. It requires speaking clearly as well as listening and processing information. This article contains tips to help people—even those who have been working for a long time— who may have a difficulty communicating with supervisors about accommodations.

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