As we launch the 2014 Every Member Campaign, we want you to know how much your membership gift makes a difference. Not too long ago, it was virtually impossible to find medically-accurate information or a supportive community to help families face the challenges of living with hydrocephalus.
That’s why a few people got together to help each other navigate the roller coaster ride of living with this condition. This small gathering of peers helping peers has blossomed into a national patient advocacy organization committed to meeting the diverse needs of the community.
Today, the Hydrocephalus Association is the nation’s largest and most widely respected organization dedicated to hydrocephalus. We truly have come a long way … and you are part of our success.
As we prepare to make 2014 a year of unprecedented accomplishments, please help us by renewing your membership support. Knowing we can count on you for 2014, we will move forward with exciting plans to:
- Fund the Hydrocephalus Clinical Research Network (HCRN), recently included as criteria to rank pediatric neurosurgery programs in U.S. News & World Report. The HCRN has developed a new treatment protocol to reduce post-operative shunt infections among network members, now down 35%.
- Fund the launch of the Adult Hydrocephalus Clinical Research Network (AHCRN) to better understand the best practices for treating adults and patients with Normal Pressure Hydrocephalus (NPH).
- Unite over 400 patients and providers at the National Conference on Hydrocephalus being held on July 9-11, in Portland, Oregon. With over 45 sessions, the conference will address diverse needs, from pediatrics to adults with NPH.
- Spread the word, reach out and build community — from expanding the WALK program to 40 sites nationwide … to establishing hydrocephalus awareness days at the state level … to promoting events like Trick or Treat for Hydrocephalus and the Second Annual Vision Dinner in New York City.
- Advocate for public funding of hydrocephalus research by deepening our relationship with the National Institutes of Health (NIH) and other federal initiatives.
The trajectory of the Hydrocephalus Association is promising and we are on course to achieve new heights … please give us your vote of confidence and continued support.
Click here to send a membership contribution for 2014, as we move ahead with even more plans.