The 12th National Conference on Hydrocephalus

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The Hydrocephalus Association held it’s 12th National Conference on Hydrocephalus in Bethesda, MD from June 27th through July 1st, 2012. As always we gathered to re-establish our sense of community and educate ourselves about hydrocephalus.

Conference Highlights:

Advocacy Day
On Thursday, June 28th, over 200 participants visited their congressional representatives to lobby for increased funding for hydrocephalus research. The day ended with a welcome reception on Capitol Hill and Chairman of the HA Board of Directors Paul Gross gave out our first ever Public Service Awards.
HA on Capitol Hill

Advocacy Day!

Keynote Speaker
Mark Kelly is an American astronaut, retired US Navy Captain, best selling-author and an experienced naval aviator who flew combat missions during the Gulf War. On Friday the 29th he gave an amazing motivational keynote speech that set a tone of inspiration throughout the rest of the conference.
Capt. Mark Kelly

Captain Mark Kelly

Inspirational Keynote Speaker
Benjamin Warf, MD delivered his Inspirational Keynote Address to a rapt audience. Dr. Warf is an Associate in Neurosurgery and the Director of Neonatal and Congenital Anomaly Neurosurgery at Boston Children’s Hospital. His talk centered on his exciting and ground breaking work treating hydrocephalus in Sub-Saharan Africa.
Dr. Benjamin Warf

Dr. Benjamin Warf

Scientific Keynote Speaker
Dr. Story C. Landis, Director of the National Institute for Neurological Disorders and Stroke (NINDS), was the Scientific Keynote Speaker at our conference. Dr. Landis addressed the importance of hydrocephalus research and how this research fits into NINDS’ mission.
Dr. Story Landis

Dr. Story Landis


Conference Photos:

To see pictures from the conference, please click below. We would like to thank Nikki Gale for her donated time and services to capture these special moments from the conference. Please visit Nikki’s work by going to: Note: this photo depository will be growing as more pictures are added, so be sure to check back for more pics.

HA on Capitol HillVisiting a CongressmanPublic Service Awards



Below is a list of all of the handouts/presentations that were made available by our speakers:

Anatomy and Physiology of Hydrocephalus – Pat McAllister, Ph.D.

Friday, June 29th

102 Parents of Children with Complex Hydrocephalus and/or Multiple Shunts – Marion Walker, MD
103 Teens and Families of Teens – Jay Riva-Cambrin, MD
104 Adults Who Were Treated in Childhood, Including First Generation – Harold Rekate, MD

205 Intracranial Hypertension (Pseudo Tumor Cerebri) and Ophthalmology – Michael Altman, MD
206 Transition of Care: The Challenges for Teens and Young Adults – Harold Rekate, MD and Debby Buffa

305 Headaches and Shunts, and the Medical Management of Headaches – Harold Rekate, MD and Adrian Goldzsmidt, MD

Saturday, June 30th

603 Slit Ventricle Syndrome – Harold Rekate, MD

702 Workplace Communication Tips for People Living with Disabilities – Dave Carl, MSW and Sam Marks

802 Special Need Trusts and Estate Planning – Larry Rivkin



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