young adults

What Can’t You Live Without?

Read Genesis Espaillat first-person account of life with hydrocephalus, which she wrote in honor of September being Hydrocephalus Awareness month.

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Madeleine, Hydrocephalus Association Teens Take Charge blogger

Living with Anxiety and Hydrocephalus Part 4

I rarely spoke a word during my first year in college. I was so anxious. It seemed like everything that could go wrong, definitely did…Madeleine continues her blog series.

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Madeleine, Hydrocephalus Association Teens Take Charge blogger

Living with Anxiety & Hydrocephalus, Part 3

I was asked a question I had never been asked in a job interview, and I thought it was a great question. The question was: “What motivates you?”

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Madeleine, Hydrocephalus Association Teens Take Charge blogger

Living with Anxiety and Hydrocephalus

Madeleine shares her experience of living with the challenges of anxiety and hydrocephalus.

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Madeleine, Hydrocephalus Association Teens Take Charge blogger

The First Year of College: An Honest Look at My Experience

Teens Take Charge Mentor Task Force Member, Madeleine Darowiche, shares the highlights and challenges of her first year away from home at college.

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The College Adventure – 8 Lessons from My First Semester

Upon completing her first semester at college, TTC Blogger, Madeleine, shares advice about strategies that helped her have a positive college experience.

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Going Beyond Your Comfort Zone – A Pathway to Confidence

In her October Teens Take Charge Blog, Madeleine Darowiche shares about a leadership retreat she attended and the lessons in courage and teamwork she learned.

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Hydrocephalus Teens Take Charge Advisory Council Member

Starting College: Facing the Challenges & Embracing the Adventure

In her monthly Teens Take Charge blog, Madeleine Darowiche shares her experience of starting college and offers some tips for making this transition smoother.

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National Hydrocephalus Conference 2014

2014 Conference – Adult Track Highlights

The Hydrocephalus Association’s National Conference on Hydrocephalus offers adult attendees an opportunity to find the information, resources, and support they need to live confidently with their condition. Join us in Portland, Oregon, July 9-11, 2014.

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Young Adults at Hydrocephalus Association Conference

Countdown to Conference: Conference’s Biggest Take-Aways

Haylea Blank shares the take-aways from attending two Hydrocephalus Association national conferences that have helped her manage her hydrocephalus into adulthood.

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Looking Back…Moving Forward: It Doesn’t Make Us Different…It Makes Us Stronger

Teens Take Charge Advisory Council member, Wyatt Barris, speaks out about living with hydrocephalus and being an advocate for the condition.

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Voices from Our Community: David Walters Shares his Hydrocephalus Story

David Walters was diagnosed with hydrocephalus at 2 weeks old and has had one shunt revision. He is an active teenager and member of the Hydrocephalus Association Teens Take Charge program. Read his story.

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Voices from our Community: Madeleine Speaks Up About Hydrocephalus

By: Madeleine Daraowiche Hi, my name is Madeleine. I am 17 years old and will be a junior in high school. I have had hydrocephalus since before I was born. I was diagnosed in utero, and had my first shunt placed when I was 15 days old. Since then, I have had six shunt revisions. […]

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Congratulations to Our 2012 Scholarship Recipients!

We are pleased to announce the 2012 Hydrocephalus Association Scholarship Awards recipients. The scholarships program marks its 18th year and we are very proud to honor these amazing young adults. Despite the challenges and obstacles of having hydrocephalus, these future young leaders of our community are able to further their education, help their community and […]

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2012 Hydrocephalus Association Scholarships

By Karima Roumila, MPH, Community Programs Director We are very pleased to offer nine scholarships to young adults with hydrocephalus. On the 18th year of the program we are honored to announce the amount of each scholarship has been increased to $1,000. These scholarships are funded by the Hydrocephalus Association and by two Gerard Swartz […]

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Ashley Takes Charge of Her Hydrocephalus!

Introduction by Jennifer Bechard, Support Group Liaison Recently, Teens Take Charge Advisory Council member, Nicole Padron, asked the following question on Facebook: “What is some helpful advice that you would give someone who has been recently diagnosed with hydrocephalus?” Teens across the country began sharing their experiences with hydrocephalus as well as advice for individuals […]

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A word from our Summer Intern Tessa!

The non-profit sector is something I find very over looked by the general public. Going into my summer internship, I was unaware of how much work it takes for a non-profit organization to be successful. As an intern I performed a variety of different tasks, and learned the most from being in the hands-on environment. […]

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Traveling with Hydrocephalus

We asked on our Facebook Fan page: “If you are planning to travel this summer have you inquired about neurosurgeons in the area you are visiting, in case of an emergency?” Here is what you said: After looking at the results, we had asked Debby Buffa, Hydrocephalus Association Board Member, mother of two young adults […]

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Workplace Communication Tips for People Living with Disabilities

by Dave Carl, job coach and guest blogger My primary focus as a social worker is working with individuals living with disabilities teaching a variety of independent living skills including employment. Through my career I have seen the progress of people living with disabilities in the workforce who at first had very low self-confidence and […]

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HYDROCEPHALUS WALK TIP OF THE MONTH – February 2011

Launching a new WALK! by Randi Corey, HA Director of Special Events Although most HA WALKs are scheduled for the fall, in more than 30 cities across the nation HA volunteer Chairs are hard at work, getting their WALKs underway! (All HA WALKs are totally volunteer initiated and coordinated – our volunteer Chairs are HA’s […]

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Announcing the 2011 Scholarships

Hydrocephalus Association 2011 Scholarship Applications Available We are so pleased to start this New Year by announcing the new cycle for Hydrocephalus Scholarships. The Hydrocephalus Association (HA) awards each year eight distinguished scholarships to eight capable and promising young adults who have been dealing with the complexities and challenges of hydrocephalus. Please click here for […]

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Hydrocephalus Teens Take Charge – Haylea Speaks Up!

Haylea Lynn Blank : How has having hydrocephalus impacted my life? I was born premature at twenty-six weeks of gestation. I was one of twins. We were both born at twenty-six weeks because my mom went into premature labor, which could not be controlled with medicine in the hospital. Due to being born early, I […]

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Teens Take Charge – Olivia’s Story

My name is Olivia, I’m 14 and have been living with hydrocephalus since birth. I was born at only 29 weeks, which caused a bilateral grade II intra-ventricular hemorrhages (also known as brain bleeds), which developed post hemorrhagic hydrocephalus (excess spinal fluid in the brain). I underwent surgery to receive my first VP shunt at 10 […]

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Trust and Let Go

by Pip Marks The issue of transition is very close to my heart – it has been since the day my oldest child was born. My first questions to the docs after his birth were “Will he be able to live away from home one day? Will he be able to take care of himself? […]

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