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  • What is Hydrocephalus
    • About Hydrocephalus
      • Hydrocephalus in Pregnancy
      • Hydrocephalus in Infants and Children
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      • Normal Pressure Hydrocephalus (NPH)
      • Entendiendo La Hidrocefalia
    • Types and Causes
      • Acquired Hydrocephalus
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    • Newly Diagnosed
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    • How to Treat Hydrocephalus
      • Shunt Systems
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    • Preparing for Surgery
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MENUMENU
  • What is Hydrocephalus
        • Understanding Hydrocephalus for mother and daughter

        • About Hydrocephalus

        • Learn about hydrocephalus, a chronic, neurological condition marked by an excess accumulation of fluid in the brain, that affects over 1 million Americans.

        • About Hydrocephalus
          • Hydrocephalus in Pregnancy
          • Hydrocephalus in Infants and Children
          • Hydrocephalus in Adults
          • Normal Pressure Hydrocephalus (NPH)
          • Entendiendo La Hidrocefalia
        • Family of four photo daughter with Hydrocephalus

        • Types and Causes

        • Hydrocephalus is a complex, chronic condition that can develop for a variety of reasons, sometimes as part of another condition. Learn about the different types and causes of this condition.

        • Types and Causes
          • Acquired Hydrocephalus
          • Congenital Hydrocephalus
          • Communicating and Non-Communicating Hydrocephalus
          • Normal Pressure Hydrocephalus (NPH)
        • Newly diagnosed mother and infant with Hydrocephalus

        • Newly Diagnosed

        • Have you or a loved one recently been diagnosed with hydrocephalus? Whether you are living with hydrocephalus or are a caregiver – we’re here to help you on this journey. We developed guides and next steps tailored to specific age groups and life stages.

        • Newly Diagnosed
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        • Treatments

        • While there is currently no known way to prevent or cure hydrocephalus, there are three life-saving treatment options that require brain surgery.

        • How to Treat Hydrocephalus
          • Shunt Systems
          • ETV and ETV with CPC

        • Preparing for Surgery

        • The thought of having to undergo brain surgery is frightening and can be physically and emotionally taxing. We are here to help.

        • Preparing for Surgery
          • What to Expect with Hydrocephalus Shunt Surgery
          • What to Expect With ETV Surgery

        • Treatment Complications

        • It is imperative to understand the signs and symptoms of a shunt or ETV failure. Things can change quickly therefore it’s critical to be prepared.

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          • ETV Complications
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        • Researchers may have the scientific expertise, but they need input from people living with hydrocephalus in order to ask the right questions and develop treatments that will benefit our entire community.

        • Get Involved in Research
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        • Research We Fund

        • By connecting basic, translational, and clinical researchers, HA is accelerating hydrocephalus research and working to fulfill our mission

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        • Our programs are designed to accelerate the movement of new therapies from bench to bedside. HA will continue to push promising research forward.

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        • Gain the tools and resources to help you advocate for your child, make informed decisions, and manage your child’s daily needs.

        • Caring for Your Child
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          • Related Health Conditions
          • School

        • Life Transitions

        • There are many milestones where hydrocephalus will play a role in your planning and the decisions you make. Embrace these milestones fully informed and with confidence.

        • Life Transitions
          • Transitioning from Pediatric to Adult Care
          • High School
          • College
          • Transitioning to Independence

        • Daily Life

        • Learn how to manage the day to day symptoms and associated problems you might encounter on your journey with hydrocephalus.

        • Daily Life
          • Healthy Living
          • Managing Day-to-Day Challenges
          • Navigating Your Care
          • Related Health Conditions
          • Hydrocephalus Stories from our Community

        • Living with NPH

        • A diagnosis of NPH can be complex and frustrating. Here you’ll find resources that will enable you to make informed decisions and have more control of your life.

        • Life with NPH
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        • HA is your trusted source for information at every stage of life. We offer resources that provide life-changing support to people living with hydrocephalus and their loved ones.

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        • HA is here to help. We are eager to guide you to the support you need for your particular situation.

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        • HA offers specialized programs and services to support anyone impacted by hydrocephalus at every stage of life.

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        • HA’s Scholarship Program provides financial assistance to capable and promising young adults who live with the ongoing challenges and complexities of hydrocephalus.

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        • Fundraise
          • Find a WALK Near You
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        • Participate

        • Take an active role in supporting our mission and connect with others impacted by hydrocephalus. Explore the many ways you can get involved!

        • Participate
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        • Advocate

        • HA is the leading voice for the hydrocephalus community on Capitol Hill. Join our advocacy efforts.

        • Advocate
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          • Our Advocacy Impact
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Posts Tagged ‘World Spina Bifida and Hydrocephalus Day’

Making Life Happen: Living Life with Spina Bifida and Hydrocephalus

October 25, 2012

Meet Luke Russell, a freshman at the University of Wisconsin-Whitewater who plans to major in marine biology with either a second major or a minor in psychology. He has spina bifida and hydrocephalus.

Read More
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The mission of the Hydrocephalus Association is to find a cure for hydrocephalus and improve the lives of those impacted by the condition. We will accomplish this by collaborating with patients, caregivers, researchers, and industry, raising awareness, and funding innovative, high-impact research to prevent, treat and ultimately cure hydrocephalus.

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