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  • What is Hydrocephalus
    • What is Hydrocephalus
      • Hydrocephalus in Pregnancy
      • Hydrocephalus in Infants and Children
      • Hydrocephalus in Adults
      • Normal Pressure Hydrocephalus (NPH)
      • Entendiendo La Hidrocefalia
    • Types and Causes
      • Acquired Hydrocephalus
      • Congenital Hydrocephalus
      • Communicating and Non-Communicating Hydrocephalus
      • Normal Pressure Hydrocephalus (NPH)
    • Next Steps
      • Helpline
      • Get Support
  • Treatments
    • How to Treat Hydrocephalus
      • Shunt Systems
      • ETV and ETV with CPC
    • Preparing for Surgery
      • What to Expect with Hydrocephalus Shunt Surgery
      • What to Expect With ETV Surgery
    • Treatment Complications
      • Complications of Shunt Systems
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  • Research
    • About Our Research
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MENUMENU
  • What is Hydrocephalus

        • About Hydrocephalus

        • What is Hydrocephalus
          • Hydrocephalus in Pregnancy
          • Hydrocephalus in Infants and Children
          • Hydrocephalus in Adults
          • Normal Pressure Hydrocephalus (NPH)
          • Entendiendo La Hidrocefalia

        • Types and Causes

        • Types and Causes
          • Acquired Hydrocephalus
          • Congenital Hydrocephalus
          • Communicating and Non-Communicating Hydrocephalus
          • Normal Pressure Hydrocephalus (NPH)

        • Newly Diagnosed - What's Next?

        • Next Steps
          • Helpline
          • Get Support
  • Treatments

        • Treatments

        • How to Treat Hydrocephalus
          • Shunt Systems
          • ETV and ETV with CPC

        • Preparing for Surgery

        • Preparing for Surgery
          • What to Expect with Hydrocephalus Shunt Surgery
          • What to Expect With ETV Surgery

        • Treatment Complications

        • Treatment Complications
          • Complications of Shunt Systems
          • ETV Complications
  • Research

        • About Our Research

        • About Our Research
          • Research Overview
          • Community Research Priorities
          • Our Research Impact
          • Research Milestones
          • Sponsored Research Events

        • Get Involved In Research

        • Get Involved in Research
          • Join the Hydrocephalus Patient Registry
          • Learn More About Ongoing Studies
          • Interested in Brain Donation?

        • Research We Fund

        • Research We Fund
          • The Clinical Networks
          • Leveraging Your Research Dollars

        • For Researchers

        • For Researchers
          • Funding Opportunities
  • Daily Life

        • Caring for Your Child

        • Caring for Your Child
          • As Your Child Grows
          • Navigating Your Care
          • Related Health Conditions
          • School

        • For Teens to Young Adults

        • For Teens to Young Adults
          • Transitioning from Pediatric to Adult Care
          • High School
          • College
          • Transitioning to Independence

        • For Adults

        • For Adults
          • Healthy Living
          • Managing Day-to-Day Challenges
          • Navigating Your Care
          • Related Health Conditions
          • Hydrocephalus Stories from our Community

        • Living with NPH

        • Life with NPH
          • Navigating Your Care
          • Related Health Conditions
          • NPH and Rehabilitation Services
          • Healthy Living: NPH
          • Ask the Expert: NPH Video Series
          • Thriving with NPH
  • Help & Support

        • Resources

        • Resources
          • Find a Doctor
          • Webinars
          • Ask the Expert Video Series
          • HydroAssist® Mobile App
            • About HydroAssist® Mobile Application
            • HydroAssist® Development Team
            • HydroAssist® Technical Support
            • HydroAssist® Privacy Policy
            • HydroAssist® Terms of Use
          • Patient and Family Resources
          • Newsletters
          • Hydrocephalus Stories from our Community
          • COVID-19 Guidance for People Living with Hydrocephalus

        • Get Support

        • Get Support
          • Helpline
          • HydrocephalusCONNECT Peer Support
          • Pen Pal Program: Ages 7-12
          • Find a Community Network

        • Programs & Services

        • Programs and Services
          • Local Educational Events
          • Webinars
          • National Conference: HA CONNECT
          • Summer Camp

        • Scholarship Programs

        • Scholarship Program
          • About Scholarship Funding
          • Scholarship Recipients
  • Get Involved

        • Give

        • Give
          • Shop and Support
          • Become a Corporate Sponsor
          • Workplace Giving/Matching Gifts
          • Make a Stock Donation

        • Fundraise

        • Ways to Fundraise
          • Walk to End Hydrocephalus
          • Find a WALK Near You
          • Sponsor a WALK

        • Participate

        • Participate
          • Become a Volunteer
          • Help Raise Awareness
          • Connect with Us
          • Find a Local Event

        • Advocate

        • Advocate
          • Our Advocacy Strategy
          • Advocate With Us
          • Our Advocacy Impact
          • Congressional Hydrocephalus Caucus
          • Advocacy Action Center

Posts Tagged ‘World Spina Bifida and Hydrocephalus Day’

Making Life Happen: Living Life with Spina Bifida and Hydrocephalus

October 25, 2012

Meet Luke Russell, a freshman at the University of Wisconsin-Whitewater who plans to major in marine biology with either a second major or a minor in psychology. He has spina bifida and hydrocephalus.

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The mission of the Hydrocephalus Association is to find a cure for hydrocephalus and improve the lives of those impacted by the condition. We will accomplish this by collaborating with patients, caregivers, researchers, and industry, raising awareness, and funding innovative, high-impact research to prevent, treat and ultimately cure hydrocephalus.

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