walk to end hydrocephalus

Two Sisters, Two Brain Disorders, 36 Brain Surgeries

St. Louis family fights for a cure for leading cause of brain surgery in children Sisters Stephanie (Buffa) Vogt and Sarah Buffa have the same color hair, the same love of math, and the same brain disorder. They both have hydrocephalus, a life-threatening neurological condition that can only be treated with brain surgery. Between the […]

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Baltimore Mom on a Mission to Find a Cure for Son’s Brain Disorder

Organized virtual walk in Baltimore to raise money for research. Jacob Heston was just four weeks old when he was diagnosed with hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. Now at 4 years old, Jacob has endured six brain surgeries to treat his condition. That’s […]

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Let’s Get Loud for Hydrocephalus Awareness Month!

September is Hydrocephalus Awareness Month – our chance to bring national attention to the over one million Americans living with hydrocephalus. Let’s make some noise on social media by showing what YOU would do to end hydrocephalus. 

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Join Our National Movement to End Hydrocephalus

This year we’re turning our WALK to End Hydrocephalus into a national movement that starts NOW wherever you are! That’s right – whether you go for family walks around your neighborhood, a short jog, or hulahoop in your backyard, help us raise awareness and funds for a cure while exercising your body and mind!

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HA WALKs Help Raise Over $2 Million for Key Programs

Over 15,000 individuals and families participated in a WALK to End Hydrocephalus this year, raising over $2 million to support HA’s mission!

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DC Families Unite to Find a Cure for Life-Threatening Brain Disorder

Will take part in the DC WALK to End Hydrocephalus Sept. 28 at the Lincoln Memorial What if brain surgery was the only way to stay alive? For children like Khoy Blasi-Diggs, Jr, it is. Khoy has hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. Hoping […]

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Two Sons, Two Brain Disorders, 18 Brain Surgeries

Houston family hopes to raise money for a cure at the WALK to End Hydrocephalus on Sept. 21 at Buffalo Bayou Park Brothers Ryder and Kai Bruen not only share the same birthday, they also share the same brain disorder. The 13-year-old twins have hydrocephalus, a life-threatening neurological condition that can only be treated with […]

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WALKs to End Hydrocephalus Help Raise Nearly $2 Million

The 2018 WALK to End Hydrocephalus season is in the books! And what a year it was. Thanks to the Hydrocephalus Association’s wonderful volunteers, 43 WALKS were held across the U.S., with more than 14,000 participants representing over 1,200 teams.

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Arkansas Tech University Family on the Road to a Cure

The Crouch family is leading fundraising efforts in Arkansas for the Northwest Arkansas WALK to End Hydrocephalus.

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The Gift of a Voice

For 30 years, the Hydrocephalus Association has served as the voice for one million patients, raising critical awareness and advocating for greater resources to fund research and better treatment options. We have accomplished so much but yet there is still much to do.

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