Teens Take Charge

So Many Reasons To Be Grateful

Olivia Maccoux shares her story and leads this year’s holiday drive to support the critical research work of the Hydrocephalus Association.

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What Can’t You Live Without?

Read Genesis Espaillat first-person account of life with hydrocephalus, which she wrote in honor of September being Hydrocephalus Awareness month.

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Hydrocephalus Teens Take Charge Scholarships

Announcing Our 2016 Hydrocephalus Association Teens Take Charge Scholarship Recipients!

The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Teens Take Charge Scholarship Recipients.

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Hydrocephalus Association Scholarships

Announcing Our 2016 Hydrocephalus Association Scholarship Recipients!

The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Scholarship Recipients.

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Madeleine, Hydrocephalus Association Teens Take Charge blogger

Living with Anxiety and Hydrocephalus Part 4

I rarely spoke a word during my first year in college. I was so anxious. It seemed like everything that could go wrong, definitely did…Madeleine continues her blog series.

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Madeleine, Hydrocephalus Association Teens Take Charge blogger

Living with Anxiety & Hydrocephalus, Part 3

I was asked a question I had never been asked in a job interview, and I thought it was a great question. The question was: “What motivates you?”

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Hydrocephalus Scholarship

2016 Scholarship Cycle OPEN!

The Hydrocephalus Association (HA) proudly offers fourteen scholarships to young adults with hydrocephalus. The 2016 Scholarship cycle is now open. Apply today!

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Madeleine, Hydrocephalus Association Teens Take Charge blogger

Living with Anxiety and Hydrocephalus

Madeleine shares her experience of living with the challenges of anxiety and hydrocephalus.

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Hydrocephalus Teens Take Charge Scholarships

Announcing 2015 TTC Scholarship Recipients!

The Hydrocephalus Association (HA) is pleased and honored to announce our 2015 Hydrocephalus Association Teens Take Charge Scholarship Recipients.

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Madeleine, Hydrocephalus Association Teens Take Charge blogger

Learning from Experience – A Reflection on Self-Acceptance as a Starting Point for Growth

TTC Blogger Madeleine Darowiche shares her insights about the challenge of accepting yourself and where you are today, in order to grow tomorrow.

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Hydrocephalus Teen Webinar

Speak Up: Owning Your Condition Webinar Recording NOW Available!

Tess Jacobsen, presents tips, resources, and solutions on how to own your condition in this recent Webinar recording now available!

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Madeleine, Hydrocephalus Association Teens Take Charge blogger

The First Year of College: An Honest Look at My Experience

Teens Take Charge Mentor Task Force Member, Madeleine Darowiche, shares the highlights and challenges of her first year away from home at college.

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Teen with money

Money, Money, Money – Helping Out Without Emptying Wallets

TTC Member Megan Rivkin challenges young people to get involved in advocating and fundraising to increase research efforts and public awareness of hydrocephalus.

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Hydrocephalus Association Webinar Speak Up!

Upcoming Webinar – Speak Up! Owning Your Condition

In this webinar, attendees will learn how to educate others about their condition, receiving tips and practical ways to share their story. They will also learn how to take charge and advocate for themselves and the condition.

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Advocacy Training for Youth Webinar NOW AVAILABLE

As a young adult, does my voice count? Can I make a difference in the hydrocephalus community? Listen to our latest webinar recording for youth to learn how.

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Hydrocephalus Association Scholarships

Now Accepting Applications for 2015 Hydrocephalus Scholarships!

The Hydrocephalus Association is now accepting applications for the 2015 Hydrocephalus Scholarship cycle!

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The College Adventure – 8 Lessons from My First Semester

Upon completing her first semester at college, TTC Blogger, Madeleine, shares advice about strategies that helped her have a positive college experience.

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Hydrocephalus Teens on Capitol Hill

Finding Your Voice: Advocacy Training for Youth Impacted by Hydrocephalus

Ever thought of talking with your local, state or national government representatives about hydrocephalus but you were afraid to start the conversation, didn’t know how, or thought you were too young? Our upcoming webinar is for you!

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Teen Dating and Hydrocephalus

Dara’s 5 Top 5 Dating Rules

There is no guide on how to build the perfect relationship or how to be the perfect boyfriend or girlfriend. I have written a list which includes the five rules that I believe are the best pieces of advice I can give to other teenagers when it comes to dating.

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Teen dating and hydrocephalus

Dating and Hydrocephalus is a Tricky Subject

TTC Advisory Council Member Wyatt Barris talks about the tricky situation of dating when you have a medical condition like hydrocephalus.

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Going Beyond Your Comfort Zone – A Pathway to Confidence

In her October Teens Take Charge Blog, Madeleine Darowiche shares about a leadership retreat she attended and the lessons in courage and teamwork she learned.

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Hydrocephalus Association Teens Take Charge Guest Blogger

Don’t Let Bullies Bring You Down – Stand Up!

October is National Bullying Prevention Month. TTC Blogger Henry Guion writes about his experience with bullies and offers suggestions of how to deal with difficult people.

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Hydrocephalus Teens Take Charge Scholarships

Congratulations 2014 TTC Scholarship Recipients

The Hydrocephalus Association (HA) is pleased and honored to announce our 2014 Hydrocephalus Association Teens Take Charge Scholarship Recipients.

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Hydrocephalus Teens Take Charge Advisory Council Member

Starting College: Facing the Challenges & Embracing the Adventure

In her monthly Teens Take Charge blog, Madeleine Darowiche shares her experience of starting college and offers some tips for making this transition smoother.

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Lamb Derby Parade Willow Grove CA

Wyatt Parade Blog

This past May, I was able to walk in the Lamb Derby in Willows, CA. You can read the history about theparade below. My hometown is Willows, CA. The weather was perfect on the day of the parade and everyone was enthusiastic about walking for the Hydrocephalus Association (HA) and Teens Take Charge (TTC) program. […]

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Teens with Hydrocephalus

Finding a Voice

Two teens living with hydrocephalus and one sibling share their first conference experiences attending the Hydrocephalus Association’s biennial National Conference on Hydrocephalus.

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Countdown to Conference: How Conference Changed One Teen’s Life…

The Hydrocephalus Association 13th National Conference on Hydrocephalus will be July 9-11, 2014, in Portland, OR. Madeliene Darowiche from our Teens Take Charge Advisory Council shares why it’s a MUST ATTEND EVENT for members of the hydrocephalus community. We hope to see you there!

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Congratulations 2013 TTC Scholarship Recipients!

Congratulations to our 2013 Hydrocephalus Association Teens Take Charge (TTC) Scholarship Recipients! Our TTC scholarship program is made possible through the generous support of the Medtronic Foundation.

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Wyatt Takes TTC to the Streets of Willow, CA

Wyatt Barris, Hydrocephalus Association Teens Take Charge Advisory Council member, spreads awareness of hydrocephalus in his annual hometown parade, the Willows Lamb Derby, in Willows, CA.

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Looking Back…Moving Forward: It Doesn’t Make Us Different…It Makes Us Stronger

Teens Take Charge Advisory Council member, Wyatt Barris, speaks out about living with hydrocephalus and being an advocate for the condition.

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Teen Voices: Hydrocephalus has Changed My Life

I am amazed at how hydrocephalus has changed my life…but I would not change it. Here is my story. Within weeks of my birth the doctor expressed concerns about the amount of growth of my head. My parents were referred to a neurologist who diagnosed me with communicating hydrocephalus

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Teen Voices: Thankful I Found Teens Take Charge

From fundraisers, awareness and advocacy events to sharing personal stories and experiences on our website and social media networks, teens and young adults across the country are banning together to create a network of support for each other. Madeleine Darowiche shares how Teens Take Charge has benefited her life.

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Celebrate Valentine’s Day!

The Hydrocephalus Association delivers 12 ways to celebrate Valentine’s Day within our community!

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About Brady’s Dream

My name is Megan, and I’m the big sister of Brady. My brother was diagnosed with hydrocephalus at birth, and I want to help find a cure.

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Our Girl, Lexi, Sees Stars!

Teen with hydrocephalus selected by the Ellen Degeneres Show to be a part of the audience in the October 25th episode with Taylor Swift.

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Voices from our Community: Madeleine Speaks Up About Hydrocephalus

By: Madeleine Daraowiche Hi, my name is Madeleine. I am 17 years old and will be a junior in high school. I have had hydrocephalus since before I was born. I was diagnosed in utero, and had my first shunt placed when I was 15 days old. Since then, I have had six shunt revisions. […]

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Voices from Our Community: Abby Shares Her Life Experiences With Hydrocephalus!

By: Abby Wood Hi!  My name is Abby.  I turned 12 years old at the end of August and this is a snapshot of my life.  I was born in Albuquerque, New Mexico. When I was born, I was very sluggish and tired. My parents found out that I had hydrocephalus a few weeks later […]

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Advocacy Day and the 12th National Conference

Famed football coach Vince Lombardi once said that “My teams have never lost a football game. They just occasionally run out of time to win it.” Here at Hydrocephalus Association, we know first-hand just how time is of the essence. Each day, more children and adults are diagnosed with hydrocephalus. And, those previously diagnosed with hydrocephalus […]

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Only One Week Away!!! 12th National Conference on Hydrocephalus! What it’s all about!

Our biennial hydrocephalus conference is one of the traditional cornerstones of the Hydrocephalus Association’s commitment to meeting the far ranging needs of our community. This year, from June 27th through July 1st, the HA invites you to join us in Bethesda, MD at our the 12th National Conference on Hydrocephalus. Education, education, education… Hydrocephalus is […]

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Meet Teens Take Charge (TTC) Council Member: Madison

By: Madison Pardi Hi, my name is Madison and I am 14 years old and a freshman in high school. I was diagnosed with hydrocephalus when I was 10 weeks old. I have had 5 surgeries and my last shunt revision was 11 years ago. When I was a baby I crawled and walked later […]

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