teens and hydrocephalus

New Paper Addresses Challenges of Health Care Transition for Youth with Hydrocephalus

A new paper published in World Neurosurgery explores the challenges faced by youth during the transition process and the steps necessary to ensure young adults with hydrocephalus receive the longitudinal care they need to lead healthy and supported lives.

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National Hydrocephalus Conference

Conference Registration is OPEN!

Registration for our 14th National Conference on Hydrocephalus is OPEN! Join us in Minneapolis, Minnesota, June 16 – 19, 2016.

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Hydrocephalus Scholarship

2016 Scholarship Cycle OPEN!

The Hydrocephalus Association (HA) proudly offers fourteen scholarships to young adults with hydrocephalus. The 2016 Scholarship cycle is now open. Apply today!

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Dara Hydrocephalus Teens Take Charge Mentor

College Bound? Tips on the College Application Process

Hydrocephalus Teens Take Charge Mentor Task Force member offers advice on how to tackle the college application process and shares insight from her personal experience.

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Teen Dating and Hydrocephalus

Dara’s 5 Top 5 Dating Rules

There is no guide on how to build the perfect relationship or how to be the perfect boyfriend or girlfriend. I have written a list which includes the five rules that I believe are the best pieces of advice I can give to other teenagers when it comes to dating.

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Interpersonal Connection…You Really DO Get It.

At the Hydrocephalus Association’s biennial national conference, interpersonal connection sessions allow attendees, like the Rocciola family, to meet lifelong friends who share their journey with hydrocephalus – other moms, dads, siblings, and peers.

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Lamb Derby Parade Willow Grove CA

Wyatt Parade Blog

This past May, I was able to walk in the Lamb Derby in Willows, CA. You can read the history about theparade below. My hometown is Willows, CA. The weather was perfect on the day of the parade and everyone was enthusiastic about walking for the Hydrocephalus Association (HA) and Teens Take Charge (TTC) program. […]

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National Hydrocephalus Conference 2014

2014 Conference Update – Teen Track Highlights

Highlighting the Hydrocephalus Association’s Teen track for the upcoming 13th National Conference on Hydrocephalus, July 9-11, 2014, in Portland, OR.

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Hydrocephalus Teens Take Charge Advisory Council Member

That Moment You Realize You’re Not Alone on This Journey…

In her monthly blog, Madeleine, a Hydrocephalus Association Teens Take Charge Advisory Council member, shares her first experience meeting other teens with hydrocephalus and how it changed her whole outlook on life.

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Transitioning from Pediatric-centered Care to Adult-centered Care for Young Adults with Hydrocephalus

In this installment of the Hydrocephalus Association’s video blog series, “Through a Mother’s Eye’s,” Debby Buffa addresses the question of how to make the transition from a pediatric neurosurgeon to an adult medical team to manage on-going care for hydrocephalus.

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Hydrocephalus Teens Take Charge Advisory Council Member

Give A Little of YOURSELF…Volunteer!

In her monthly blog for the Hydrocephalus Association Teens Take Charge program, Madeleine celebrates National Volunteer Month with ideas for giving a little time…for a big impact.

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IL High School Student Leads Football Team Out Onto the Field

Austin Patterson, senior student manager for the Metamora High School football team in Illinois, suits up and leads his team onto the field for their final season game as a thank you for his commitment and support of the team. Austin was born with hydrocephalus and watched his brother play while he managed the team from the sidelines.

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The Inspiration for the Fresno WALK

The Fresno Bee shares the honest journey of Lauren Merrell as she reflects back on her high school years and being a teen with hydrocephalus.

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Looking Back…Moving Forward: Telling Her Own Story

The Hydrocephalus Association continues its 30th anniversary interview series with Olivia Maccoux, a high school senior, who feels she has been given the opportunity to grow and help others struggling with the challenges of hydrocephalus.

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Looking Back…Moving Forward: With A Little Help From My Friends

In commemoration of the Hydrocephalus Association 30th anniversary, David Walters, Teens Take Charge member, shares his thoughts on the importance of our biannual conference and the impact of the Hydrocephalus Association (HA).

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Congratulations to Our 2013 Scholarship Recipients!

The Hydrocephalus Association is proud to announce our 2013 scholarship recipients.

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