surgery
Shunt versus ETV: Five year outcomes from the International Infant Hydrocephalus Study (IIHS)
The IIHS gathered data from more than 20 hospitals around the world, compared the effectiveness of shunts versus endoscopic third ventriculostomies (ETVs). This study started in 2005 and these are the five year outcomes.
Stanley White: From Aerospace Engineer to NPH Advocate
87-year-old retiree dedicates much of his time to raising awareness about NPH, particularly among medical providers.
New views on Postinfectious Hydrocephalus
A recent study published in Nature, Dr. Chay Kuo, out of Duke University, discovered a mechanism that may lead to the development of Postinfectious Hydrocephalus.
CSF Shunt Entry Site Trial
The CSF Shunt Entry Site Trial has reached the 75% mark in patient enrollment, that is 385 patients enrolled!
Tools To Help Patients With Hydrocephalus Make Informed Decisions About Their Health Care.
Dr. Thomas Beez and Dr. Hans-Jakob Steiger from the Heinrich-Heine-University in Düsseldorf, Germany have developed a new health care quality metric for shunt surgeries.
Preliminary results from the International Infant Hydrocephalus Study
There are two common treatment options available for infants that suffer from Aqueductal stenosis: implantation of a shunt or an endoscopic third ventriculostomy
Reflections From “Boozle Bear Sew-a-Thon” Event Participant
The Boozle Bears were fun to help make, and I hope they help children understand their condition, as well as raise money for the research I will one day be conducting!
The Power of Storytelling
Storytelling can be a powerful and influential advocacy tool in getting people to understand the breadth and depth of impact hydrocephalus has on individuals and families.Every person afflicted with Hydrocephalus has a story to tell.
Research 101: Brain Development
We are continuing our series on the role of cell junctions and the ventricular zone in the development of hydrocephalus.
Meet the HCRN Clinical Research Coordinators
The HCRN is fortunate to have a team of hard working, experienced coordinators who are responsible for study start up, running the study, and wrapping things up once a study ends.
How I decided to have shunt surgery
Trish was diagnosed with NPH in 2015 and had shunt surgery then. Thanks to the surgery and several kinds of therapy, Trish is now back to doing what she loves, including a killer step aerobics class at her gym and singing with her husband in a community chorus
How Tai Chi Helped Get Me Nearly Back to Normal
When it comes to treating balance issues that attend Parkinson’s and other brain and balance disorders such as hydrocephalus and aging, there’s only so much medication can do.
Middle School Science Fair Features Hydrocephalus Booth
Raising awareness about the issue is the first step in finding treatment and prevention of hydrocephalus.
The Challenge of Diagnosing Shunt Dysfunction
Researchers aim to improve the way that physicians identify problems with a shunt implant
A Look at New Shunt Technology
Biomedical engineers test a sensor that could help predict when a shunt revision is needed.
Cognitive Therapy for NPH Patients
If you have Normal Pressure Hydrocephalus (NPH) you might find Cognitive Therapy useful. Trish Bogucki explains what it consists of and shares some tips for others who might be in the same boat she was in.
A Letter of Love to My Son With Hydrocephalus
The day I was told you had hydrocephalus my heart felt like it was breaking, not because I felt there was anything wrong with you, but because I was afraid you would have to endure pain.
En Garde! The Sport of Fencing and Hydrocephalus
Jonathan, who lives with spina bifida and hydrocephalus, shares discovering fencing as a form of exercise and competition.
Whole Foods Features Cider With A Purpose
Jason Spears and his brother Patrick founded Locus Cider in March of 2015 inspired by real, tough people, a.k.a children with hydrocephalus.
Student Spotlight: Jamie Wright Advocates For Hydrocephalus Awareness
Imagine having a neurological condition that most people have never heard of. Jamie Wright is on a mission to educate others about hydrocephalus.
This #GivingTuesday was a HUGE success because of YOU!
Because of you and our generous donors that provided matching funds we were able to exceed our goal!
Young Woman Prepares for 121st Surgery
A Minnesota 20-year-old will undergo here 121st surgery to replace an infected shunt.