support group

Looking Back…Moving Forward: WALKING Strong in Atlanta!

As we continue our interview series commemorating our 30th anniversary, this week Randi Corey, our National Director of Special Events and Volunteer Support, sits down with Jennifer Taylor, our HA WALK Chair in Atlanta, Georgia, to ask her about volunteering for HA, chairing a HA WALK, and other thoughts about our association.

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Looking Back…Moving Forward: Prescribing Success

The Hydrocephalus Association’s Medical Advisory Board is comprised of nineteen esteemed medical professionals that work closely with our staff to support the educational needs of our members as well as help guide our research vision. As part of our interview series in commemoration of our 30th anniversary, Ashly Westrick, Research Manager, sits down with Dr. Michael Williams, Medical Advisory Board member and co-chair of our recent national conference, “Getting to the Heart of Hydrocephalus”.

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Celebrate Valentine’s Day!

The Hydrocephalus Association delivers 12 ways to celebrate Valentine’s Day within our community!

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Looking Back…Moving Forward: Commemorating 30 Years

Over the last 30 years, the Hydrocephalus Association has significantly impacted the health care and scientific communities as well as the lives of individuals affected by hydrocephalus. We look back on the last 30 years presented in a timeline of our significant milestones.

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Hydrocephalus Association at 30

In 1983, a small group of parents of children with hydrocephalus living in the San Francisco Bay area came together seeking community and support. Thirty years ago could this group of determined and committed individuals have imagined that the Hydrocephalus Association would become the nation’s largest and most widely respected advocacy group dedicated to hydrocephalus?

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9/15 – Richmond, Virginia Hydrocephalus Support Group Meeting

~Partners Network ~ Hydrocephalus Support Group Meeting  Virginia TOPIC: Overview of 12th HA Conference When: Saturday, September 15, 2012  2:30pm to 4:00pm Where: Rappahannock Regional Library England Run branch 806 Lyons Blvd Fredericksburg, VA 22406 Please R.S.V.P. to Annie Mason by Wednesday March 21, 2012 (540) 898-4568 or Richmondsupport@hydroassoc.biz Find our group on Facebook under […]

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Hydrocephalus Association Support Group Partners, Pt. 1

By Jennifer Bechard, Support Group Liaison Support groups are a vital and cherished resource to our hydrocephalus community. The Hydrocephalus Association currently has 28 support groups that provide open forums and educational meetings to individuals touched by hydrocephalus throughout the country. Support Group Leaders each have their own experiences with hydrocephalus and understand the trials […]

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There are a Million Hydrocephalus Stories; This is the Story of Tracy

Head Above Water By Tracy Taback Today, I am a healthy 31-year-old woman who just happened to be born with hydrocephalus (water on the brain). My condition lay dormant and went undetected for 23 years until one morning I woke up and drove to work but was unable to get out of my car when […]

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HYDROCEPHALUS WALK TIP OF THE MONTH – February 2011

Launching a new WALK! by Randi Corey, HA Director of Special Events Although most HA WALKs are scheduled for the fall, in more than 30 cities across the nation HA volunteer Chairs are hard at work, getting their WALKs underway! (All HA WALKs are totally volunteer initiated and coordinated – our volunteer Chairs are HA’s […]

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Hydrocephalus Support Groups Thrive

By Jennifer Bechard, Support Group Liaison Hydrocephalus Association Support Groups are off to a great start this year.  Each week, we are receiving calls or e-mails from enthusiastic, driven individuals determined to help others who are dealing with the challenges of hydrocephalus. Every child, adolescent, adult and family member has a different story but there […]

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Support Takes Hydrocephalus by Storm…

by Jennifer Bechard, HA Support Group Liaison As you may or may not know, the Hydrocephalus Association started out as a support group, and providing support has remained one of our major services. When a person is first diagnosed with hydrocephalus, receiving high quality education and support can be critical.  Education and support help people […]

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Thank you to 2010 Walk Chairs!

By Randi Corey, Director of Special Events The Hydrocephalus Association would like to extend its most sincere thanks to all of its 2010 WALK Chairs!  HA’s 25 WALKS across the U.S. had more than 7,500 walkers raising over $625,000!  6 of HA’s Walk sites were new this year, including Londonderry (NH), Barrington (RI), Louisville (KY), […]

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You’re Not Alone

By Jennifer Bechard Imagine how a 10 year old would feel lying in a hospital bed not knowing what is going on or where to turn to for support. With too many questions and not enough answers, a condition such as hydrocephalus can take an emotional and physical toll on any individual, especially a child. […]

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