special needs

Sleep Away Camp for Kids with Hydrocephalus!

Camp Head Strong offers children and teens with hydrocephalus (ages 10-17) six days and five nights of summer fun, education, and social connections.

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Brainy Camp Hydrocephalus

Sleep Away Camp for Kids with Hydrocephalus

We are proud to announce Brainy Camps’ new camp for children living with hydrocephalus. Brainy Camps is a subsidiary of Children’s National Health System.

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American flag framing the White House

The ABLE Act Offers Tax Benefits for Hydrocephalus Families

The ABLE Act allows families with children with disabilities to save for college and other expenses in tax-deferred accounts. A must read with tax season upon us!

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Hydrocephalus Video Blog Parents

Through a Mother’s Eyes: School and Hydrocephalus

In this installment of our video blog series Debby offers tips and suggestions on how to prepare yourself and your child’s educational team for school.

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National Hydrocephalus Conference 2014

2014 Conference – Parent Track Highlights

The National Conference on Hydrocephalus offers parents an opportunity to connect with other parents, speak directly with experts on various topics about raising a child with hydrocephalus – social, emotional, educational, financial, and medical – and watch their children interact with other children living with hydrocephalus. Join us in Portland, Oregon, July 9-11, 2014.

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I Smile Because You Are My Sibling…

The relationship between siblings is complex and sometimes even…shall we say… strained, but there is a powerful, unbreakable bond that endures through the best and hardest of times. Teens Take Charge (TTC) Advisory Council Members, Harrison Silver and Alexis Rocciola, share a special message to their siblings in our National Siblings Day blog honoring a special group of loved ones in our lives – brothers and sisters.

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Have a Heart Home Builds Custom Home for Girl with Hydrocephalus

The Parker family received an early special holiday gift when the Have A Heart Home chose their family from a pool of applicants for a custom-built home in Utah. They were selected after they shared their moving story about their daughter, Emylie, who was born with myelomeningocele spina bifida, Arnold-Chiari II malformation and hydrocephalus.

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New Social Network for Kids with Special Needs

CBS Los Angeles reports on a new closed social networking site created by the Starlight Children’s Foundation. The site allows kids with special needs to connect, chat online, and support each other through various issues.

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San Diego Ad Campaign Features Children with Special Needs

San Diego-based toy company Infantino is creating an ad campaign, called “Everybody Plays,” featuring children with special needs. The children in the campaign have special needs including Down syndrome, Hydrocephalus, visual impairments and congenital heart defects.

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Back To School Time!

It’s that time of the year – back to school time! Most kids around the country will have returned to school this past Tuesday, September 4th, if they have not already. This can be an exciting yet stressful time for parents and kids alike. While kids may be worried about facing the academic rigors of […]

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