Shunts

2016 Innovator Award Announcement

The Hydrocephalus Association is pleased to announce the funding of three hydrocephalus researchers through the HA Network for Discovery Science (HANDS), Innovator Award.

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Summer camp for special needs kids

Splash Into Summer Fun with Summer Camp

Summer is right around the corner. Where will you child go to summer camp this year? A young adult from our community offers some insight and tips.

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Going Beyond Your Comfort Zone – A Pathway to Confidence

In her October Teens Take Charge Blog, Madeleine Darowiche shares about a leadership retreat she attended and the lessons in courage and teamwork she learned.

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Romania will Provide Shunts for Hydrocephalus Treatment

After years of lobbying by LUMOS, the Romanian government will provide shunts for the treatment of hydrocephalus. Shunts were previously provided by the Romanian Association of Spina Bifida and Hydrocephalus (ARSBH) through private fundraising and awareness building.

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Looking Back…Moving Forward: A Trusted Source for Information

As the Hydrocephalus Association continues it’s interview series commemorating our 30th anniversary, Tammy Knight, our Utah Community Support Network leader, shares the value of support and trusted information for parents and individuals.

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HCRN Update: Shunt Infection Risk and Treatment in Children

Dr. Tamara Simon discusses her work as the Principal Investigator for the shunt infection registry for the Hydrocephalus Clinical Research Network. Her study aims to understand the risk factors associated with shunt infection and how shunt infections are being treated.

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Looking Back…Moving Forward: A Journey of Support

Debby Buffa has raised two daughters with hydrocephalus and provided support to hundreds of families since the early 1980s. As the Hydrocephalus Association (HA) continues its 30th anniversary interview series, Debby shares her journey with HA over the last 30 years.

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Medical Device Development and Evolution: A Comparative Study

In this educational blog, Marvin Sussman, PhD, compares the evolution of the cardiac pacemaker and radiation oncology with that of the shunt to treat hydrocephalus over a 60 year period.

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Young Boy Embodies Panhandle Spirit

Dillon Wades was born with cerebral palsy, epilepsy, and hydrocephalus, for which he has 2 shunts. ABC 7 affiliate ConnectAmarillo.com highlight the Wades family and their sons, Dillon and Connor, as examples of the Panhandle Spirit.

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Looking Back…Moving Forward: Focusing on the PATIENT

As the Hydrocephalus Association continues our interview series commemorating our 30th anniversary, we sit down with one of our earliest supporters, Dr. Marvin Sussman, former Director of Research and Technology at Cordis Neuroscience Business (now Integra LifeSciences) and member of the HA Board of Directors for 13 years.

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Looking Back…Moving Forward: The Heart of a Pediatric Neurosurgeon

As the Hydrocephalus Association continues its interview series in commemoration of their 30th anniversary, Dr. Harold L. Rekate, Director of the Chiari Institute in New York, sits down and shares a personal account of what inspired him to become a neurosurgeon, a career shaped by hydrocephalus and its patients, and his relationship with the Hydrocephalus Association.

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Looking Back…Moving Forward: It’s About Relationships

HA Board Member and former VP of Sales for Medtronic, Ralph Kistler, reflects back on his 20+ year relationship with the Hydrocephalus Association.

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Looking Back…Moving Forward: Growing Up with HA

Our Teens Take Charge (TTC) program provides support, training, awareness and fundraising opportunities so that teens can be an effective force in making their stories heard. As part of our interview series in commemoration of our 30th anniversary, our intern, Jessica Ford, sits down with Haylea Lynn Blank, to talk about growing up with hydrocephalus and her thoughts on the Hydrocephalus Association.

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Looking Back…Moving Forward: Commemorating 30 Years

Over the last 30 years, the Hydrocephalus Association has significantly impacted the health care and scientific communities as well as the lives of individuals affected by hydrocephalus. We look back on the last 30 years presented in a timeline of our significant milestones.

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Successful Surgical Procedure on Infant to Treat Hydrocephalus and Extreme Macrocephaly

Neurosurgeons at All Children’s Hospital/Johns Hopkins Medicine and the University of South Florida Morsani College of Medicine successfully performed back to back surgeries on an infant within the first week of life to treat hydrocephalus and extreme macrocephaly. This is the first reported case of cranial fixation in such a young child with extreme hydrocephalus.

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The Hydrocephalus Association Provides Commentary to the Food and Drug Administration

On September 13, 2010, the Hydrocephalus Association had the opportunity to provide commentary at an Open Public Hearing sponsored by the Food and Drug Administration (FDA).  FDA currently funds a project called the “Ask Study,”  which aims to assess, from the perspective of a young person,  the effectiveness of various neurological medical devices they use […]

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