shunt surgery

Hydrocephalus Association Board Member Hosts Vision Dinner

Liv Osby of Greenville News interviews Craig Brown, senior vice chair of the HA Board of Directors, who, with his wife Vicki, will host the Vision Dinner in New York City to increase public awareness, stimulate research, and spark physician interest in specializing in hydrocephalus. Craig and Vicki have a son and a nephew with hydrocephalus.

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Dawn Mancuso, CEO, Hydrocephalus Association

Hydrocephalus in the Spotlight

In her monthly CEO blog, Dawn Mancuso showcases four volunteers in our community who have raised awareness for hydrocephalus on a large scale and challenges all of us to think outside the box this Hydrocephalus Awareness Month.

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Looking Back…Moving Forward: There Has to be a Better Way

As the Hydrocephalus Association continues its history series commemorating our 30th anniversary, Barrett O’Connor, chair of the HA board of directors, shares a personal message to the hydrocephalus community.

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Gala Dinner Early Fundraiser for New Mexico WALK

The Rio Rancho Observer interviews the Hydrocephalus Association New Mexico WALK Chair, Kathy Carillo, about the upcoming WALK and a smaller fundraising dinner she is organizing to galvanize her team. The keynote speaker for the dinner, Sonja McCully, a librarian at Rio Rancho Public Schools, was misdiagnosed with Alzheimer’s, then eventually correctly diagnosed with normal pressure hydrocephalus.

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Medical Device Development and Evolution: A Comparative Study

In this educational blog, Marvin Sussman, PhD, compares the evolution of the cardiac pacemaker and radiation oncology with that of the shunt to treat hydrocephalus over a 60 year period.

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Looking Back…Moving Forward: Rising to the Challenge

As we continue our interview series commemorating the 30th anniversary of the Hydrocephalus Association, we sit down with former Board of Directors member and lifelong hydrocephalus advocate Mark Geiger.

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Raising Awareness about Hydrocephalus, One Stroke at a Time

Thomas, who was diagnosed with hydrocephalus as an infant, has become a successful competitive swimmer, finding balance and freedom in the pool.

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Looking Back…Moving Forward: With A Little Help From My Friends

In commemoration of the Hydrocephalus Association 30th anniversary, David Walters, Teens Take Charge member, shares his thoughts on the importance of our biannual conference and the impact of the Hydrocephalus Association (HA).

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Looking Back…Moving Forward: Creating a Sense of Community

The Hydrocephalus Association continues our 30th anniversary interview series with Summer Minchew, our Charlotte, NC Support Group leader. She reflects on her role as a support group leader and moving the vision beyond the traditional support group framework and into creating a hydrocephalus community.

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Looking Back…Moving Forward: A Mom with a Mission

As the Hydrocephalus Association continues its interview series in commemoration of their 30th anniversary, Amanda Garzon, HA’s Communications and Marketing Manager, opens up about mothering a child with hydrocephalus and shares her personal reflections on the association.

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Water on the Brain?

TTC Advisory Council Member Madeleine Darowiche shares her recent experience with her mom and a man with Normal Pressure Hydrocephalus.

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Olivia Maccoux Dubbed ‘Iron Athlete’ By High School Teammates

The Minneapolis Star Tribune reports on our very own Olivia Maccoux who has shone as a star athlete. Park Center high school classmates have dubbed her the ‘Iron Athlete’ for her incredible athletic performances and perseverance.

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A Gift of Encouragement: Expand HA’s Support & Community Education

When you are affected by hydrocephalus, sometimes the challenges can be overwhelming. You might have asked these very questions yourself: How do I find a doctor I can trust? What are my treatment options? What are the risks involved with shunt surgery? What are the symptoms of a shunt malfunction? Where can I find emotional support? Every day, people contact the Hydrocephalus Association to find answers and connect with others who can help them manage the ups and downs of living with hydrocephalus.

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Hydrocephalus Awareness – Baby Klaus

You may have heard about Baby Klaus in the news recently. Ten months ago, he was born with hydrocephalus in El Paso, TX.  For unknown reasons, he was not treated with the standard surgical placement of a shunt for hydrocephalus – a life-long neurological condition with no cure – but sent home and his parents […]

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