Four. That is how many different hospitals I visited trying to transition from a pediatric to an adult neurosurgery program in the midst of a shunt malfunction.
Tristen Pierce was born with a rare birth defect called rhombencephalosynapsis and has a shunt as part of his treatment plan. Despite numerous challenges, Tristen has proved to be a fighter.
Living with hydrocephalus means living with headaches. In his latest post, Dan discusses headaches, weather changes, and the importance of knowing your body.
Is my child’s shunt in failure or is it just a temperature? In her video blog, Debby gives tips on how to figure it out and in trusting your “shunt sense.”
In her monthly blog, Madeleine shares her experience of telling her roommates and friends in college about living with hydrocephalus.
Matthew Schwerha, reporting for The NapervilleSun, interviews Amber Hiland, who’s son Carter passed away from complications of hydrocephalus, at the Hydrocephalus Association Chicago WALK, which took place on August 18, 2013 at Soldier’s Field.
Roxana Ramos became a Hydrocephalus Association Support Group leader to connect her brother to others that have hydrocephalus, only to realize family members benefit, as well. As we continue our interview series commemorating our 30th anniversary, we sit down with Roxana to talk about her motivation behind her volunteer position and the value her service brings to the hydrocephalus community.
In commemoration of the Hydrocephalus Association 30th anniversary, David Walters, Teens Take Charge member, shares his thoughts on the importance of our biannual conference and the impact of the Hydrocephalus Association (HA).
As we continue our interview series in commemoration of the Hydrocephalus Association’s 30th anniversary, we sit down with Phyllis Rogers, who is in her 10th year chairing the Denver WALK, as she reflects on her drive to continue to chair the WALK and her hopes for the future of the Hydrocephalus Association.
The Hydrocephalus Association 30th anniversary interview series continues with our Houston WALK Co-Chair, Margaret Powers as she shares her thoughts about the Hydrocephalus Association and starting and coordinating a WALK.
Rachel Katz, diagnosed with hydrocephalus at the age of 12, shares the transformational gift she received after her last shunt revision. Read her blog, “Brushes with Mortality: 5 Lessons On Dealing with Hard Times.” Be inspired.
The Hydrocephalus Association is pleased to announce the launch of our Shunt System page on our website. Learn more about shunt system components, valve mechanisms, most common shunt systems, overdrainage control devices, Siphon-resistive devices (SRD) and the different symptoms of malfunction and/or infection.
The Whitinsville Christian girls basketball team in Whitinsville, Massachusetts, decided to use their school’s “Senior Night” to share the story of their teammate, to raise awareness to some of the challenges of living with hydrocephalus, and to raise money to fund hydrocephalus research.
Teens Take Charge Advisory Council member, Wyatt Barris, speaks out about living with hydrocephalus and being an advocate for the condition.
Each week we will feature an article from our Hydrocephalus Resource Library. Since shunts are the mainstay treatment for hydrocephalus, we will begin with an interesting paper regarding malfunction and taps. Shunt malfunction can often be difficult to diagnose. MRI and CT scans are commonly used, but ventricle size does not always change in people […]