Shunt Malfunction

Dan Kricke, living with hydrocephalus

Aging Out of Pediatric Care: A Cautionary Tale

Four. That is how many different hospitals I visited trying to transition from a pediatric to an adult neurosurgery program in the midst of a shunt malfunction.

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Seattle Boy Proves to be a Fighter

Tristen Pierce was born with a rare birth defect called rhombencephalosynapsis and has a shunt as part of his treatment plan. Despite numerous challenges, Tristen has proved to be a fighter.

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Dan Kricke, living with hydrocephalus

The Day-to-Day of Headaches and Hydrocephalus

Living with hydrocephalus means living with headaches. In his latest post, Dan discusses headaches, weather changes, and the importance of knowing your body.

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Dan Kricke, living with hydrocephalus

Realizing I Had Hydrocephalus

Dan Kricke talks about the first time he realized he had hydrocephalus when he was 5 and the various emotions he had along the way to adulthood.

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Dan Kricke, living with hydrocephalus

Telling My Story

Meet Dan, a new guest blogger lending his voice to our adult hydrocephalus community. We are excited for Dan to share different aspects of his journey each month.

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Hydrocephalus mother video blog

Through a Mother’s Eyes: Is it the Shunt or Just a Temperature?

Is my child’s shunt in failure or is it just a temperature? In her video blog, Debby gives tips on how to figure it out and in trusting your “shunt sense.”

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Madeleine, Hydrocephalus Association Teens Take Charge blogger

Sharing about your Hydrocephalus with College Roommates and Friends – When is the Right Time?

In her monthly blog, Madeleine shares her experience of telling her roommates and friends in college about living with hydrocephalus.

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Hydrocephalus Video Blog Parents

Through a Mother’s Eyes: Headaches and Shunt Revisions

In this video blog episode, Debby discusses shunt revisions, headaches and hydrocephalus.

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Hydrocephalus Teens Take Charge Scholarships

Congratulations 2014 TTC Scholarship Recipients

The Hydrocephalus Association (HA) is pleased and honored to announce our 2014 Hydrocephalus Association Teens Take Charge Scholarship Recipients.

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Chicago-area Mom Honors Memory of her Son at WALK

Matthew Schwerha, reporting for The NapervilleSun, interviews Amber Hiland, who’s son Carter passed away from complications of hydrocephalus, at the Hydrocephalus Association Chicago WALK, which took place on August 18, 2013 at Soldier’s Field.

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Looking Back…Moving Forward: A Sister’s Love

Roxana Ramos became a Hydrocephalus Association Support Group leader to connect her brother to others that have hydrocephalus, only to realize family members benefit, as well. As we continue our interview series commemorating our 30th anniversary, we sit down with Roxana to talk about her motivation behind her volunteer position and the value her service brings to the hydrocephalus community.

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Looking Back…Moving Forward: With A Little Help From My Friends

In commemoration of the Hydrocephalus Association 30th anniversary, David Walters, Teens Take Charge member, shares his thoughts on the importance of our biannual conference and the impact of the Hydrocephalus Association (HA).

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Looking Back…Moving Forward: Celebrating 10 Years as a WALK Chair

As we continue our interview series in commemoration of the Hydrocephalus Association’s 30th anniversary, we sit down with Phyllis Rogers, who is in her 10th year chairing the Denver WALK, as she reflects on her drive to continue to chair the WALK and her hopes for the future of the Hydrocephalus Association.

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A New Meaning for the Word Freedom

Hydrocephalus Association CEO Dawn Mancuso talks about a new kind of freedom this 4th holiday in her monthly blog.

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Congratulations to Our 2013 Scholarship Recipients!

The Hydrocephalus Association is proud to announce our 2013 scholarship recipients.

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Looking Back…Moving Forward: Houston, We Have Lift Off!

The Hydrocephalus Association 30th anniversary interview series continues with our Houston WALK Co-Chair, Margaret Powers as she shares her thoughts about the Hydrocephalus Association and starting and coordinating a WALK.

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Brushes with Mortality: 5 Lessons On Dealing with Hard Times

Rachel Katz, diagnosed with hydrocephalus at the age of 12, shares the transformational gift she received after her last shunt revision. Read her blog, “Brushes with Mortality: 5 Lessons On Dealing with Hard Times.” Be inspired.

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New Hydrocephalus Shunt Systems Page Launched!

The Hydrocephalus Association is pleased to announce the launch of our Shunt System page on our website. Learn more about shunt system components, valve mechanisms, most common shunt systems, overdrainage control devices, Siphon-resistive devices (SRD) and the different symptoms of malfunction and/or infection.

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Nicole Wiegers: A Crusader, In Every Sense of the Word

The Whitinsville Christian girls basketball team in Whitinsville, Massachusetts, decided to use their school’s “Senior Night” to share the story of their teammate, to raise awareness to some of the challenges of living with hydrocephalus, and to raise money to fund hydrocephalus research.

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Looking Back…Moving Forward: It Doesn’t Make Us Different…It Makes Us Stronger

Teens Take Charge Advisory Council member, Wyatt Barris, speaks out about living with hydrocephalus and being an advocate for the condition.

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A Gift of Encouragement: Expand HA’s Support & Community Education

When you are affected by hydrocephalus, sometimes the challenges can be overwhelming. You might have asked these very questions yourself: How do I find a doctor I can trust? What are my treatment options? What are the risks involved with shunt surgery? What are the symptoms of a shunt malfunction? Where can I find emotional support? Every day, people contact the Hydrocephalus Association to find answers and connect with others who can help them manage the ups and downs of living with hydrocephalus.

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Hydrocephalus Resource Library: Shunt Taps for Shunt Malfunction in Hydrocephalus

Each week we will feature an article from our Hydrocephalus Resource Library. Since shunts are the mainstay treatment for hydrocephalus, we will begin with an interesting paper regarding malfunction and taps. Shunt malfunction can often be difficult to diagnose. MRI and CT scans are commonly used, but ventricle size does not always change in people […]

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