shunt infection

Forbes Features Story on Team Hydro

Forbes features a story on the inspiration behind Team Hydro and their mission to fund hydrocephalus research. Pam Finlayson, a Team Hydro founder and a member of the Hydrocephalus Association Board of Directors, in interviewed with her sons, Peter and Sam.

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Doctor holding a brain shunt

ISHCSF Highlights HCRN Studies on Shunt Failure and Infection

ISHCSF newsletter highlights Hydrocephalus Clinical Research Network (HCRN) studies around hydrocephalus shunt infection rates and risk factors.

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Girl with hydrocephalus and Miss Tennessee

A Gift of Hope for Princess Ema

My family is going into this holiday season a bit more hopeful because of the great research progress that has already been made through thoughtful donations from individuals like you.

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Hydrocephalus Video Blog Parents

Through a Mother’s Eyes: Headaches and Shunt Revisions

In this video blog episode, Debby discusses shunt revisions, headaches and hydrocephalus.

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Dr. Marion Walker, neurosurgeon

Dr. Marion “Jack” Walker Honored for his Contributions to Pediatric Neurosurgery

The AANS/CNS Section on Pediatric Neurosurgery awards Dr. Marion L. Walker the 2014 Franc D. Ingraham Award for Distinguished Service and Achievement.

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WALKing for a Cure after 93 Brain Surgeries

Matt Kocsis will be joined by family, friends, and his life-long neighbor, Brian Osborne, a Season 10 The Bachelorette contestant, as he WALKs for a cure at the 2014 Central PA Hydrocephalus Association WALK in Hershey, PA. Matt, a senior in high school, has undergone 93 brain surgeries to treat his hydrocephalus.

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Dealing with Fear and Uncertainty

In this installment of the Hydrocephalus Association’s video blog series, Through a Mother’s Eye’s, Debby Buffa addresses the question of how to deal with the fear and uncertainty experienced by parents and caregivers supporting a loved one with hydrocephalus.

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Hydrocephalus Research

Help us determine the direction of hydrocephalus research!

The Hydrocephalus Association is excited to announce our collaboration with the Hydrocephalus Clinical Research Network (HCRN) on research projects important to the hydrocephalus community. We would like your input on which areas of hydrocephalus interest you most, and what you would like to be researched. Take our survey!

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Toddler’s First Hearing Experience Goes Viral on Social Media

Dylan, who was born 11 weeks prematurely, acquired hydrocephalus from a brain infection that resulted in 15 brain surgeries and 101 days battling to recover in the NICU. In a video that has gone viral on social media, Dylan receives hearing aids and is able to hear sound for the first time. Laugh with joy with Dylan!

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Research UPDATE: A Clue to Better Understand and Treat Hydrocephalus

Dr. Tamara Simon and her research team out of Seattle Children’s Hospital have uncovered a host of pathogens never before associated with shunt infections in the CSF of eight children, which could lead to new understandings on treating and preventing shunt infections.

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HCRN at the Pediatric Section Meeting

Summary of the presentations by HCRN investigators at the recent AANS/CNS Section on Pediatric Neurological Surgery held in Toronto, December 3-6, 2013.

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Research UPDATE: HCRN Semi-Annual Investigator Meeting Summary

Summary of the Hydrocephalus Clinical Research Network (HCRN) investigators and coordinators’ Fall meeting, November 7- 8, in Salt Lake City.

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A New Meaning for the Word Freedom

Hydrocephalus Association CEO Dawn Mancuso talks about a new kind of freedom this 4th holiday in her monthly blog.

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New Hydrocephalus Shunt Systems Page Launched!

The Hydrocephalus Association is pleased to announce the launch of our Shunt System page on our website. Learn more about shunt system components, valve mechanisms, most common shunt systems, overdrainage control devices, Siphon-resistive devices (SRD) and the different symptoms of malfunction and/or infection.

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