rare disease

Hydrocephalus Advocates Join Rare Disease Week

HA staff were joined by members of our Hydrocephalus Action Network (HAN) to represent our hydrocephalus community in Rare Disease Week.

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Rare Artist Contest

Rare Artist Contest Now Accepting Submissions!

Enter the 8th annual Rare Artist contest and be eligible to win a trip to Washington, DC, to see your artwork displayed on Capitol Hill.

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American flag framing the White House

Congress to Consider Possible Increased Funding for Medical Research

Members of Congress are determining how to allocate money among government agencies for the next year. Learn about the budget process and how to get involved.

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The Power Among Us

In the last few weeks, I have been privileged to represent the hydrocephalus community at a number of interesting and important events having to do with chronic medical conditions. The first of these was the Voluntary Health Leadership Conference, an annual event hosted by the National Health Council (NHC). The second meeting was the Rare Disease Day Conference held on the NIH campus.

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