premature birth

Twins with hydrocephalus

Why I WALK to Raise Hydrocephalus Awareness

“…the likelihood of fraternal twins being born with the same variation of hydrocephalus was extremely rare.” One dad shares his story and the inspiration behind raising awareness.

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Gift of Life Hydrocephalus Research Campaign

The Gift of Life: 2015 Year End Research Campaign

Finding a cure for hydrocephalus will take our commitment, determination, and perseverance—the very things we demand of hydrocephalus patients every single day.

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Hydrocephalus Conference Scientific Keynote: Dr. Stephen A. Back

Dr. Stephen A. Back will deliver the scientific keynote address on his work on the development of strategies to promote regeneration and repair of injury to the brain at the Hydrocephalus Association’s 13th National Conference on Hydrocephalus, July 9-11, 2014, Portland, Oregon. Join us!

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Children and Adults Facing the Challenges of Hydrocephalus

Eboni Graham with The Amarillo Globe News reports on the challenges both children and adults face living with hydrocephalus. She focuses on Noah Goswick, 3 years old, who acquired hydrocephalus from a brain hemorrhage after a premature birth, and Beverly Cobb, who lives with normal pressure hydrocephalus (NPH).

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Looking Back…Moving Forward: A Mom with a Mission

As the Hydrocephalus Association continues its interview series in commemoration of their 30th anniversary, Amanda Garzon, HA’s Communications and Marketing Manager, opens up about mothering a child with hydrocephalus and shares her personal reflections on the association.

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Young Boy Embodies Panhandle Spirit

Dillon Wades was born with cerebral palsy, epilepsy, and hydrocephalus, for which he has 2 shunts. ABC 7 affiliate ConnectAmarillo.com highlight the Wades family and their sons, Dillon and Connor, as examples of the Panhandle Spirit.

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Nicole Wiegers: A Crusader, In Every Sense of the Word

The Whitinsville Christian girls basketball team in Whitinsville, Massachusetts, decided to use their school’s “Senior Night” to share the story of their teammate, to raise awareness to some of the challenges of living with hydrocephalus, and to raise money to fund hydrocephalus research.

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HCRN Update: Shunt Outcomes in Post Hemorrhagic Hydrocephalus

In a new Research Department blog series, HCRN Update, Ashly Westrick interviews Dr. Jay Wellons, principal HCRN investigator for the Shunt Outcomes in Post Hemorrhagic Hydrocephalus study.

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