patient registry

NINDS Nonprofit Forum Hydrocephalus Registry

Partnering with Government to Shape Disease Research

HA played a key role at the annual NINDS Nonprofit Forum, which provides an opportunity for nonprofit leaders to engage in dialogue with NINDS staff.

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Hydrocephalus Clinical Research Network

Hydrocephalus Clinical Research Network Meets in Toronto

Principal investigators from the Hydrocephalus Clinical Research Network (HCRN) are meeting today and tomorrow at the Hospital for Sick Children in Toronto, Ontario.

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Registry for North Dakotans who have Suffered Brain Injury Approved

Representative Dick Anderson (R) has introduced a North Dakota House bill that would create a registry for those who have suffered a traumatic brain injury.

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HCRN Adds Centers in Vancouver and Tennessee

With recent moves of Hydrocephalus Clinical Research Network (HCRN) investigators Dr. John Wellons to Vanderbilt University and Dr. John Kestle to University of British Columbia, HCRN has decided to expand its network from seven to nine centers to incorporate their respective hospitals in HCRN research.

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Establishment of a Hydrocephalus Registry Currently Under Consideration in Australia

The Australian Government Department of Health and Aging has submitted a report currently under review to establish a registry of individuals with hydrocephalus. The registry is part of a larger initiative by the Australian government to improve surveillance of certain high risk implantable medical devices as well as track patient outcomes.

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