patient advocacy

National Hydrocephalus Conference

Conference Registration is OPEN!

Registration for our 14th National Conference on Hydrocephalus is OPEN! Join us in Minneapolis, Minnesota, June 16 – 19, 2016.

CONTINUE READING

10 Reasons to Attend Conference!

Our biennial conference is a cornerstone of our commitment to serving our community. You don’t *need* a reason to attend conference but here are some good ones!

CONTINUE READING
14th National Conference on Hydrocephalus

LEARN MORE: National Conference on Hydrocephalus

LEARN MORE: The 14th National Conference on Hydrocephalus will take place in Minneapolis, Minnesota, on June 16-19, 2016!

CONTINUE READING
Hydrocephalus Conference

Book Your Hotel for Conference!

Housing is open for the National Conference on Hydrocephalus June 16-19 in Minneapolis, Minnesota. Book your hotel!

CONTINUE READING
Hydrocephalus Association Webinar Speak Up!

Upcoming Webinar – Speak Up! Owning Your Condition

In this webinar, attendees will learn how to educate others about their condition, receiving tips and practical ways to share their story. They will also learn how to take charge and advocate for themselves and the condition.

CONTINUE READING

A Seat at the Table: NINDS Nonprofit Forum 2013

The Hydrocephalus Association brings the voice of the hydrocephalus community to the NIH NINDS 2013 Nonprofit Forum, held September 10 and 11, 2013, at the NIH Campus in Bethesda, Maryland.

CONTINUE READING

IOM Releases Partnering with Patients Workshop Proceedings

In her monthly blog, Hydrocephalus Association CEO Dawn Mancuso summarizes the proceedings from the public workshop of the Institute of Medicine, “Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement.”

CONTINUE READING

The Patient’s Perspective

In her monthly CEO blog, Dawn Mancuso shares her insights on the beauty and power of patient advocacy organizations like the Hydrocephalus Association, learned from a recent personal journey.

CONTINUE READING

Happening NOW: HA Attends the Rare Disease Day Conference at NIH

CEO Dawn Mancuso & Research Programs Manager Ashly Westrick are attending the Rare Diseases Day Conference at the National Institutes of Health (NIH) in Bethesda, MD, today and tomorrow.

CONTINUE READING

Looking Back…Moving Forward: One Vision Built on Determination

Hydrocephalus Association commemorates our 30th anniversary with a series of interviews with members of our community. These intimate and conversational pieces provide both educational content as well as a historical perspective on the heart behind the work of our association. This week we sit down with two of our founding members, Emily Fudge and Cynthia Solomon, to discuss the early days of forming the association, including their vision and their challenges.

CONTINUE READING
Change this in Theme Options
Change this in Theme Options