In this webinar, attendees will learn how to educate others about their condition, receiving tips and practical ways to share their story. They will also learn how to take charge and advocate for themselves and the condition.
The Hydrocephalus Association brings the voice of the hydrocephalus community to the NIH NINDS 2013 Nonprofit Forum, held September 10 and 11, 2013, at the NIH Campus in Bethesda, Maryland.
In her monthly blog, Hydrocephalus Association CEO Dawn Mancuso summarizes the proceedings from the public workshop of the Institute of Medicine, “Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement.”
In her monthly CEO blog, Dawn Mancuso shares her insights on the beauty and power of patient advocacy organizations like the Hydrocephalus Association, learned from a recent personal journey.
CEO Dawn Mancuso & Research Programs Manager Ashly Westrick are attending the Rare Diseases Day Conference at the National Institutes of Health (NIH) in Bethesda, MD, today and tomorrow.
Hydrocephalus Association commemorates our 30th anniversary with a series of interviews with members of our community. These intimate and conversational pieces provide both educational content as well as a historical perspective on the heart behind the work of our association. This week we sit down with two of our founding members, Emily Fudge and Cynthia Solomon, to discuss the early days of forming the association, including their vision and their challenges.