When UFC fighter Ray Borg shared how hard it was dealing with his son’s hydrocephalus, away from the rest of his family in New Mexico, it brought together an entire community in Colorado dealing with this disease. Families from across Colorado started writing about their stories online and shared them with 9News Denver. They not only […]
In this installment of our video blog series, Through a Mother’s Eye’s, Debby Buffa shares her personal journey of raising two daughters with hydrocephalus. Make sure to read the list of resources included below the video.
The National Conference on Hydrocephalus offers parents an opportunity to connect with other parents, speak directly with experts on various topics about raising a child with hydrocephalus – social, emotional, educational, financial, and medical – and watch their children interact with other children living with hydrocephalus. Join us in Portland, Oregon, July 9-11, 2014.
PACER Center is the most fabulous resource! It is a parent training and information center for families of children and youth with all disabilities from birth through 21 years old. Located in Minneapolis, it serves families across the nation. Parents can find publications, workshops, and other resources to help make decisions about education, vocational training, […]