NPH
Eau Claire Woman Shares Story In Hopes of Educating Others
After struggling with a declining interest in activities that she loved, decreasing mobility, and urinary incontinence, Dorothy Sorlie was finally diagnosed with Normal Pressure Hydrocephalus (NPH). A recent article in the Leader-Telegram detailed her journey.
The Subjective Experience of Patients Undergoing Shunt Surgery for Idiopathic NPH
A study from Yale School of Medicine looked at the personal experiences of people diagnosed with idiopathic Normal Pressure Hydrocephalus (iNPH).
Top Ten Takeaways from the 2018 HA Conference
I attended HACONNECT and hoped it would be an educational experience and it was, but it was also much more. Here are my top ten takeaways.
Balance Therapy Tips for NPH Patients
A few months ago, I noticed that my balance was deteriorating so I mentioned it to my GP at my annual physical. He immediately ordered a CT scan and more Physical Therapy.
Stanley White: From Aerospace Engineer to NPH Advocate
87-year-old retiree dedicates much of his time to raising awareness about NPH, particularly among medical providers.
Tools To Help Patients With Hydrocephalus Make Informed Decisions About Their Health Care.
Dr. Thomas Beez and Dr. Hans-Jakob Steiger from the Heinrich-Heine-University in Düsseldorf, Germany have developed a new health care quality metric for shunt surgeries.
Exercise Tips for NPH patients
I recommend finding an activity to help you challenge both your mind and body, and have fun while doing it!
TAKE ACTION! Help Veterans Receive Telehealth Benefits
Take action today to support moves in the Senate and the House to support telehealth medicine for our veterans.
Meet our Conference Team!
HA is pleased to announce some of the brightest minds in the field who are generously offering their time, expertise and talent in planning the 15th National Conference on Hydrocephalus
How I decided to have shunt surgery
Trish was diagnosed with NPH in 2015 and had shunt surgery then. Thanks to the surgery and several kinds of therapy, Trish is now back to doing what she loves, including a killer step aerobics class at her gym and singing with her husband in a community chorus
A Look at New Shunt Technology
Biomedical engineers test a sensor that could help predict when a shunt revision is needed.
2017 Rally For Medical Research
We are excited to invite YOU to join the HA staff to represent the hydrocephalus community at the 2017 Rally For Medical Research.
New Insights into Normal Pressure Hydrocephalus
A recently published study attempts to shed light on the long term outcomes of untreated iNPH by examining mortality rates, risk of dementia, and symptom progression in individuals with ventricular enlargement.
PT Tips for NPH Patients
By the time Trish was diagnosed with NPH and had shunt surgery, she had lost her ability to walk unaided, so her neurosurgeon gave her a prescription for physical therapy.
Cognitive Therapy for NPH Patients
If you have Normal Pressure Hydrocephalus (NPH) you might find Cognitive Therapy useful. Trish Bogucki explains what it consists of and shares some tips for others who might be in the same boat she was in.
Over 500 Adult Hydrocephalus Patients Enrolled in Registry
HA is proud to fund the AHCRN as they move research from bench to bedside to find new treatments, preventions and cures for adults living with hydrocephalus and NPH.
Neural Tube Defects (NTD)
Learn about the genetics of neural tube defects, which can lead to hydrocephalus.
Like Father, Like Son: An NPH Journey
One man watched his father decline into a state of confusion until diagnosed with Normal Pressure Hydrocephalus. Then he found himself traveling the same road.
Chicago Neurosurgeon Announced as Medical Honoree of the Chicago Hydrocephalus Association WALK
Arthur DiPatri, MD, announced as the Medical Honoree of the Chicago Hydrocephalus Association WALK on Saturday, September 27, at the Lincoln Park South Rowing Lagoon.
Health System Takes Steps to Educate Medical Professionals on Often Misdiagnosed Brain Condition
The Greenville Health System (GHS) Neurological Institute will host a symposium on normal pressure hydrocephalus (NPH), taking bold steps forward to raise awareness and knowledge about NPH to the medical professionals serving as the first line of defense for early and proper diagnosis.
Next Steps for the Adult Hydrocephalus Clinical Research Network
The Core Data Project of the Adult Hydrocephalus Clinical Research Network (AHCRN) has enrolled nearly 200 patients since in late 2014.
Best-selling Columbia Author Chairs Event for Incurable Brain Condition
Award-winning author Chuck Walsh will serve as the Honorary Chair of the 3rd Annual Columbia Hydrocephalus Association WALK.
Chicago Mayor Rahm Emanuel Proclaims September 9 Hydrocephalus Awareness Day
In honor of National Hydrocephalus Awareness Month, Mayor Rahm Emanuel proclaims September 9, Hydrocephalus Awareness Day in Chicago.
Scientific Networks are Changing the Research Landscape
Together the HA-funded HCRN, AHCRN and HANDS are changing how hydrocephalus research is conducted and accelerating research progress.
From the CEO: Planning with the End Result in Mind
Hydrocephalus Association CEO Dawn Mancuso shares the aggressive strategic plan adopted by the Board of Directors that will guide the work of HA over the next 5 years – our Roadmap to a Cure.
U.S. News & World Report Features Normal Pressure Hydrocephalus
Is it dementia or Normal Pressure Hydrocephalus. U.S. News & World Report reports on the importance of proper diagnosis of this treatable dementia.
Physician Directory
Our Physician Directory is an online tool that allows you to search for a neurologist, neurosurgeon, or neuropsychologist by location, specialty, and/or age served.
2014 Conference Update – NPH Track Highlights
By Jennifer Bechard Johnson, Education Manager There is something for everyone at our 13th National Conference on Hydrocephalus. We are happy to announce that this year’s conference will have a special track of programming dedicated to meeting the needs of the normal pressure hydrocephalus (NPH) population. Here is a preview of what our conference has to […]
Voices from Our Community: Dr. Harold Conn’s Decade of NPH Misdiagnosis
The Hydrocephalus Association is commemorating the 50th anniversary of the recognition of normal pressure hydrocephalus (NPH) as a distinct medical syndrome through the journeys of members of our hydrocephalus community on the road to proper diagnosis and treatment of this life-altering condition.
2014 Conference Update – Preliminary Schedule Now Available!
The Hydrocephalus Association staff is happy to announce the release of our preliminary schedule for our upcoming 13th National Conference on Hydrocephalus, Community. Clarity. Cure., July 9-11, 2014, in Portland, OR.
Bringing Normal Pressure Hydrocephalus Out of Obscurity
In the 1960s, a treatable form of dementia was a controversial claim. One man questioned things that others were simply content to accept, and to bring it into the real world as a clinically diagnosable and, more importantly a treatable syndrome known as Normal Pressure Hydrocephalus. Who was Dr. Salomon Hakim?
50th Anniversary of the Recognition of Normal Pressure Hydrocephalus
March 10, 2014, marks the 50th anniversary of the recognition of NPH as a distinct medical condition, allowing countless people access to the treatment needed to return to active lifestyles after possibly years of living with misdiagnosed dementia. Join the Hydrocephalus Association as we commemorate this year.
Practice Random Acts of Kindness
The Hydrocephalus Association challenges you to practice random acts of kindness leading up to Valentine’s Day! Let’s have some fun!
What if it isn’t Alzheimer’s or Parkinson’s? Understanding Normal Pressure Hydrocephalus
The Hydrocephalus Association’s first webinar on Normal Pressure Hydrocephalus is now available online! “What if it isn’t Alzheimer’s or Parkinson’s?” held on Tuesday, September 10, 2013, with Dr. Michael A Williams, Medical Director, Sandra and Malcolm Berman Brain & Spine Institute, LifeBridge Health at Sinai Hospital of Baltimore, discussed how the diagnosis of Normal Pressure Hydrocephalus can be missed and how it can be made.
NEW Hydrocephalus Educational Webinar Launch
The Hydrocephalus Association is pleased to announce our 2013 Education and Support webinar series! In this first webinar, Dr. Michael Williams, Medical Director of the Sandra and Malcolm Berman Brain and Spine Institute at Sinai Hospital of Baltimore, will discuss how the diagnosis of normal pressure hydrocephalus can be missed, and how it can be made. Register today!
Diagnosing Normal Pressure Hydrocephalus
The Boston Globe provides a concise description of Normal Pressure Hydrocephalus and the steps taken to diagnosis the condition.
Connecticut Neurologist on a Mission to Educate about NPH
News 8 out of Connecticut reports that Dr. Adam Mednick has just published a book on Normal Pressure Hydrocephalus (NPH) and is making it a goal to educate other doctors so patients are properly screened and diagnosed.
Water on the Brain?
TTC Advisory Council Member Madeleine Darowiche shares her recent experience with her mom and a man with Normal Pressure Hydrocephalus.
Wife Fights for Husband’s NPH Diagnosis
Houston’s ABC affiliate KTRK reports on Ron Shillcutt, a Houston resident initially diagnosed with dementia and then found to have Normal Pressure Hydrocephalus (NPH).
Looking Back…Moving Forward: You’re Not In This Alone
As we look back and commemorate 30 years of supporting, educating, connecting and informing families, we ask where we would be without our volunteers. Our volunteer leaders across the country have helped weave the rich tapestry of our HA history. This week we sit down with our Virginia Support Group Leader, Annie Mason.