Posts Tagged ‘NPH’
The Phoenix Community Rallies for Hydrocephalus
President and CEO of Anuncia Medical, Inc., will join hundreds of families and medical professionals at the Phoenix WALK to End Hydrocephalus as they rally to raise awareness and critical funds for hydrocephalus.
Read MoreCommunity Rallies Together in Saying “No More Brain Surgery”
Patients, family members and local businesses will raise awareness and critical funds for a brain condition that has no cure and that affects more than 1 million Americans.
Read MoreAHCRN Awarded $14 Million NINDS Grant to Study Effectiveness of Shunt Treatment for idiopathic Normal Pressure Hydrocephalus
The AHCRN, one of three research networks HA funds, was awarded a $14 million federal grant to study the effectiveness of shunt treatment for NPH.
Read MoreThe Use of Lumboperitoneal Shunts in iNPH Patients
In the United States, the standard treatment for idiopathic Normal Pressure Hydrocephalus (iNPH) patients is a ventriculoperitoneal shunt (VPS). But a new study explores the effectiveness of lumboperitoneal shunts (LPS), which have also been shown to improve iNPH symptoms and are widely used in Japan.
Read MoreDorothy Sorlie: A Teacher’s Unbreakable Spirit
Dorothy Sorlie spent months suffering with debilitating symptoms until finally being diagnosed with NPH. Now she educates others about this little-known condition.
Read MoreIndividuals Diagnosed with Idiopathic Normal Pressure Hydrocephalus Show Improved Quality of Life after Shunting
A new study found that shunting improved quality of life for people living with Idiopathic Normal Pressure Hydrocephalus (iNPH).
Read MoreGet to Know Dr. Joel Geerling: HA 2019 Innovator Award Grantee
In the 3rd installment of our Meet the Innovator Awardees Blog Series, we interviewed Dr. Joel Geerling, one of four scientists who received our 2019 Innovator Award, and Maggie Tish, who works in Dr. Geerling’s lab. They delve deeper into their fascinating research on Normal Pressure Hydrocephalus (NPH).
Read MoreHA Volunteer Educates Senior Citizens About NPH
NPH continues to be relatively unknown among the general public and even in the medical community. In April, Trish Bogucki, a longtime HA volunteer, led a presentation on NPH and cognitive therapy for senior citizens in Midland Park, NJ.
Read MoreNew Clinical Trial Aims to Determine Effectiveness of Shunting for iNPH Patients
Patients diagnosed with idiopathic Normal Pressure Hydrocephalus (iNPH) are typically treated by having a shunt placed surgically. A new clinical trial will determine whether or not shunts are an effective form of treatment for iNPH patients.
Read MoreThe Subjective Experience of Patients Undergoing Shunt Surgery for Idiopathic NPH
A study from Yale School of Medicine looked at the personal experiences of people diagnosed with idiopathic Normal Pressure Hydrocephalus (iNPH).
Read MoreBalance Therapy Tips for NPH Patients
A few months ago, I noticed that my balance was deteriorating so I mentioned it to my GP at my annual physical. He immediately ordered a CT scan and more Physical Therapy.
Read MoreStanley White: From Aerospace Engineer to NPH Advocate
87-year-old retiree dedicates much of his time to raising awareness about NPH, particularly among medical providers.
Read MoreTools To Help Patients With Hydrocephalus Make Informed Decisions About Their Health Care.
Dr. Thomas Beez and Dr. Hans-Jakob Steiger from the Heinrich-Heine-University in Düsseldorf, Germany have developed a new health care quality metric for shunt surgeries.
Read MoreExercise Tips for NPH patients
Trish recommends finding an activity to help you challenge both your mind and body and have fun while doing it! Read more about her exercise tips for NPH patients.
Read MoreHow I Decided to have Shunt Surgery
Trish was diagnosed with NPH in 2015 and had shunt surgery then. Thanks to the surgery and several kinds of therapy, Trish is now back to doing what she loves, including a killer step aerobics class at her gym and singing with her husband in a community chorus
Read MoreA Look at New Shunt Technology
Biomedical engineers test a sensor that could help predict when a shunt revision is needed.
Read MoreNew Insights into Normal Pressure Hydrocephalus (NPH)
A recently published study attempts to shed light on the long term outcomes of untreated iNPH by examining mortality rates, risk of dementia, and symptom progression in individuals with ventricular enlargement.
Read MorePhysical Therapy Tips for NPH Patients
By the time Trish was diagnosed with NPH and had shunt surgery, she had lost her ability to walk unaided, so her neurosurgeon gave her a prescription for physical therapy.
Read MoreCognitive Therapy for NPH Patients
If you have Normal Pressure Hydrocephalus (NPH) you might find Cognitive Therapy useful. Trish Bogucki explains what it consists of and shares some tips for others who might be in the same boat she was in.
Read MoreOver 500 Adult Hydrocephalus Patients Enrolled in Registry
HA is proud to fund the AHCRN as they move research from bench to bedside to find new treatments, preventions and cures for adults living with hydrocephalus and NPH.
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