normal pressure hydrocephalus
The Hydrocephalus Association’s Medical Advisory Board is comprised of nineteen esteemed medical professionals that work closely with our staff to support the educational needs of our members as well as help guide our research vision. As part of our interview series in commemoration of our 30th anniversary, Ashly Westrick, Research Manager, sits down with Dr. Michael Williams, Medical Advisory Board member and co-chair of our recent national conference, “Getting to the Heart of Hydrocephalus”.
Houston’s ABC affiliate KTRK reports on Ron Shillcutt, a Houston resident initially diagnosed with dementia and then found to have Normal Pressure Hydrocephalus (NPH).
As we look back and commemorate 30 years of supporting, educating, connecting and informing families, we ask where we would be without our volunteers. Our volunteer leaders across the country have helped weave the rich tapestry of our HA history. This week we sit down with our Virginia Support Group Leader, Annie Mason.
Medwire news reports on a research study that shows that an adjustable Strata valve shunt set at the highest setting and slowly calibrated down in a patient being treated for idiopathic normal pressure hydrocephalus (INPH) reduces the cases of subdural effusion and shows improvement in gait and/or cognitive function.
ABC News Worldwide features a story today on guitar rock legend, Dick Wagner and his diagnosis of Normal Pressure Hydrocephalus (NPH). The article – Rock Star Nearly Loses Career with “Curable” Dementia – is another step forward in increasing public awareness of both NPH and hydrocephalus.
ABC News features a story about rock legend, Dick Wagner (lead guitarist for Alice Cooper, Aerosmith and KISS) and his journey with hydrocephalus. Wagner was treated at the Barrow Neurological Institute. After receiving a shunt, he was back on the road making music.
I was diagnosed with Normal Pressure Hydrocephalus (NPH) after over 15 years of experiencing a slow progression of seemingly inexplicable mental and physical decline. Thanks to the Hydrocephalus Association and my medical team, I was able to learn more about Normal Pressure Hydrocephalus and pursue treatment.
Writing for the New York Times in a two-part series, Dr. P. Murali Doraiswamy, a psychiatry professor at Duke University Medical Center and an author of “The Alzheimer’s Action Plan” answers reader’s questions about Alzheimer’s Disease and addresses misdiagnosis of Normal Pressure Hydrocephalus (NPH).
Parade Magazine features a story on normal pressure hydrocephalus (NPH) and the journey of Jimmy Nowell of Clifton, Texas to find a diagnosis and treatment. Dr’s Mark Luciano and Michael Williams of the HA Medical Advisory Board are interviewed for the article.
Christine Bartel, reporter for CBS Denver’s Aging Independently series, reports on local Denver resident, Bill White, and his diagnosis and treatment of Normal Pressure Hydrocephalus. Dr. Mark Watts of Exempla Denver Neurologic and Spine Associates, Mr. White’s neurosurgeon is also interviewed.
Today’s article in Parade Magazine, What If Grandpa Doesn’t Really Have Alzheimer’s?, plays an important role in our quest to educate the public about the form of hydrocephalus called Normal Pressure Hydrocephalus or NPH. While the condition was identified over 50 years ago, there is little research into the condition, which so far is the only known reversible form of dementia but it is often mistaken for Alzheimer’s or Parkinson’s Disease.
A new study from Kuopio University Hospital, Finland found that around half of patients with idiopathic normal pressure hydrocephalus (iNPH) will develop dementia, despite responding to shunting. Many patients had other contributing factors.
Joyce Schwartz shares her 23 year journey of searching for a diagnosis and then treatment for Normal Pressure Hydrocephalus (HA).
Fog is Lifted After 15 Years of Confusion and Misdiagnosis Milt Newman’s retirement was not living up to expectations due to a slow progression of seemingly inexplicable mental and physical decline. What no one knew was that Milt, then 73, was suffering from Normal Pressure Hydrocephalus (NPH), a treatable neurological disorder in which excess fluid […]
by Jennifer Bechard, Support Group Liaison This September, the Hydrocephalus Association (HA) invites you to celebrate and honor the estimated one million Americans touched by hydrocephalus. As a community, we can do this by raising awareness about hydrocephalus either in our own circles or to the larger networks of which we are a part. This […]
Connecticut News Channel WTNH spotlights the upcoming Middlebury WALK that will take place on October 6, 2012 at Meadowview Park. To read the full article, click here.
The Wall Street Journal shares the story of 70-year-old Jasper “J.D.” Cain, misdiagnosed with Parkinson’s disease but ultimately receives diagnosis of NPH. To read the full article, click here.
By Dawn Mancuso “The difference between children and adults is that they’re shorter – not dumber.” ― Mo Willems Normally, I would agree with Mr. Willems. We adults tend to underestimate the intelligence of the children around us, assuming that our life experiences make us somehow smarter.The Unique Challenges of Adult Hydrocephalus However, I’ve learned […]
Our biennial hydrocephalus conference is one of the traditional cornerstones of the Hydrocephalus Association’s commitment to meeting the far ranging needs of our community. This year, from June 27th through July 1st, the HA invites you to join us in Bethesda, MD at our the 12th National Conference on Hydrocephalus. Education, education, education… Hydrocephalus is […]
By Tom Smith and Michael Williams, MD In 2000, the late Anthony Marmarou, PhD convened an independent study group to begin the process of addressing one of the major issues surrounding Normal Pressure Hydrocephalus (NPH). After convening, these experts published five guidelines concerning NPH. The guidelines, for the first time, rigorously reviewed the existing evidence […]
Harold O. Conn, MD was a world-famous doctor specializing in diseases of the liver. After his retirement he developed Normal Pressure Hydrocephalus (NPH) and thus embarked on his second career which was to study and spread awareness of this condition. His perspective was unique and informed, and his work was generous and insightful. In this […]
There is an opportunity to submit a short video to The American Academy of Neurology Foundation telling your story about why more research is needed to find a cure to hydrocephalus. Please read the following on the guidelines and deadline for submission. The American Academy of Neurology Foundation is calling on all neurology […]
By Karima Roumila, MPH, Community Programs Director After posing this question to our Facebook members we received many comments from our community about the causes of their hydrocephalus as well as their age of diagnosis. 61% of the respondents said they or their loved one were born with hydrocephalus, meaning they have congenital hydrocephalus, while, […]
By Tom Smith, HA Adult Services & Outreach Coordinator The Need Best estimates indicate that there are 350,000 persons in the United States living with Normal Pressure Hydrocephalus (NPH). Roughly five percent of persons diagnosed with Alzheimer’s or Parkinson ‘s disease actually have misdiagnosed NPH. NPH mostly affects people over the age of 55 and […]
There is a growing body of work surrounding Normal Pressure Hydrocephalus (NPH) that simultaneously moves us forward and illustrates how far there is to go. Two recently published studies aim at establishing parameters of the effects of NPH specifically on cognition, and generally, on the effect that treatment can have on quality of life. The […]
by Marvin Sussman, Ph.D., HA Board Member and Pip Marks, Director of Support and Education Respected Colombian neurosurgeon Salomon Hakim, MD, PhD, who worked extensively in the field of hydrocephalus, has died at the age of 88. Dr. Hakim passed away in a Bogota hospital in the early hours of Thursday morning, May 5, due […]
Once again, the Hydrocephalus Association has qualified for inclusion in the Combined Federal Campaign (CFC), the federal government’s workplace giving program. If you are a federal employee you can designate your contribution, or part of it, to the Hydrocephalus Association by designating your contribution to HA with code #10066.
There are three characteristic symptoms that help define Normal Pressure Hydrocephalus (NPH). They are urinary incontinence or frequency, mild dementia and gait difficulties. Also known as wet, wacky and wobbly. Of these three, gait tends to be the most noticeable and is very often the gateway to a final and successful diagnosis as the small, […]
The Dana Alliance for Brain Initiative launched Brain Awareness Week (BAW) back in 1996. The Hydrocephalus Association proudly partners with the Dana Foundation for this global campaign to increase public awareness about the progress and benefits of brain research. This global coalition of BAW partners includes more than 2000 universities, K-12 schools, hospitals, patient groups, museums, […]
By Jennifer Bechard, Support Group Liaison Hydrocephalus Association Support Groups are off to a great start this year. Each week, we are receiving calls or e-mails from enthusiastic, driven individuals determined to help others who are dealing with the challenges of hydrocephalus. Every child, adolescent, adult and family member has a different story but there […]
The Hydrocephalus Association’s Support and Education department is committed to keeping our hydrocephalus related educational materials updated. When you consider the scope of the material, booklets, fact sheets, directories, webpages and other e-resources, etc., you can appreciate that this is a process that never truly ends. So, whenever we begin to run out of a […]
On August 20th, 2011 Team Hydro will participate in the first annual Lake Michigan Sharkfest Swim in downtown Chicago. The team will race in memory of Kate Finlayson, who passed away in November of 2010 from complications related to her hydrocephalus. Funds raised from the team’s efforts support the Kate Finlayson Memorial Research Grant which […]
by Karima Roumila, HA Community Programs Director One of the symptoms of Normal Pressure Hydrocephalus (NPH) is memory difficulties. The Alzheimer’s Foundation of America (AFA) has initiated a National Memory Screening Day. According to AFA, this event was first introduced in November of 2003 and since then it became a national event that occurs every […]
by Laurene McKillop, PhD What better kind of day to walk than a bright, late summer day, crispy cool in the morning and warming up as the Walk proceeds? “Crispy cool” lets you know that I wasn’t on the east coast: this was the Detroit Walk, held on August 7th, 2010. I arrived early, along […]
If you want to understand better how basic scientific research produces better clinical outcomes, be sure to read Dr. Madsen’s article, “A Very Narrow Bridge: Translational Research.” Dr. Madsen, a member of the Hydrocephalus Association Medical Advisory Board, directs a lab at the Children’s Hospital of Boston, where he treats children with hydrocephalus. He spoke […]
by Randi Corey, HA Director of Special Events ‘Twas the night before Walk and all it entails Walk Chairs all over were pacing and biting their nails. Although the site was set up with care they wished – and wondered “Would the walkers be there?” “And will the weather be sunny and bright?” “Or, will […]