normal pressure hydrocephalus

Conference is only 3 short months away!

Join us in Portland, Oregon, July 9-11, 2014, for our 13th National Conference on Hydrocephalus hosted by the Hydrocephalus Association.

CONTINUE READING

Bringing Normal Pressure Hydrocephalus Out of Obscurity

In the 1960s, a treatable form of dementia was a controversial claim. One man questioned things that others were simply content to accept, and to bring it into the real world as a clinically diagnosable and, more importantly a treatable syndrome known as Normal Pressure Hydrocephalus. Who was Dr. Salomon Hakim?

CONTINUE READING

50th Anniversary of the Recognition of Normal Pressure Hydrocephalus

March 10, 2014, marks the 50th anniversary of the recognition of NPH as a distinct medical condition, allowing countless people access to the treatment needed to return to active lifestyles after possibly years of living with misdiagnosed dementia. Join the Hydrocephalus Association as we commemorate this year.

CONTINUE READING

Musician Dick Wagner Shares the Long Road to Diagnosis of Normal Pressure Hydrocephalus

Fox 10 News Phoenix airs a powerful interview with famous rock musician Dick Wagner about his long road to receiving the proper diagnosis of Normal Pressure Hydrocephalus.

CONTINUE READING

The Results of a Strong Partnership

In her monthly blog, Hydrocephalus Association CEO Dawn Mancuso shares the results of our Stakeholder Survey eliciting input from our members on the state of HA and direction for the future of the association.

CONTINUE READING

Get to Know Our Conference Host City – Portland, Oregon

Some attendees of the Hydrocephalus Association’s 13th National Conference on Hydrocephalus will be driving only a short distance, while many of us will be flying in from all around the country. See what Portland, OR, has to offer as you plan your trip.

CONTINUE READING

Update on the Adult Hydrocephalus Clinical Research Network

The Adult Hydrocephalus Clinical Research Network Planning Committee finalizes the policies and procedures for collecting data from adult hydrocephalus patients at its 6 clinical centers and reviews protocols for its first clinical study.

CONTINUE READING

13th National Conference on Hydrocephalus: Community. Clarity. Cure.

The Hydrocephalus Association patient-centered National Conference empowers all of us with the tools and connections to address the medical, educational and social complexities of living with hydrocephalus. Join us in Portland, Oregon, July 9-11, 2014!

CONTINUE READING

Upcoming Research Webinar: Delivering on a Promise

Join the Hydrocephalus Association on Monday, March 3, 2014, at 7:00 p.m. EST for our next webinar, “Research Update: Delivering on a Promise,” exploring the latest advances in hydrocephalus research and showcasing several exciting studies being conducted to better understand the basic science of hydrocephalus and clinical protocols for treating patients.

CONTINUE READING

Practice Random Acts of Kindness

The Hydrocephalus Association challenges you to practice random acts of kindness leading up to Valentine’s Day! Let’s have some fun!

CONTINUE READING

New Sensor Works with Shunt to Monitor Brain Pressure

Researchers at the Fraunhofer Institute for Microelectronic Circuits and Systems IMS in Duisburg, Germany, working jointly with Christoph Miethke GmbH and Aesculap AG, engineered a cerebral pressure sensor that is implanted with a shunt that allows physicians to read brain pressure using a hand-held meter.

CONTINUE READING

Meet the Medical Chairs of the 13th National Conference on Hydrocephalus

The Hydrocephalus Association is pleased to announce the Medical Chairs of the 13th National Conference on Hydrocephalus – Drs. Nathan Selden, Marion “Jack” Walker, and Michael A. Williams.

CONTINUE READING

2013: A Year in Review

As we wrap up 2013, Dawn Mancuso, CEO, Hydrocephalus Association, reflects back on (and marvels at) all that has happened this past year for the hydrocephalus community.

CONTINUE READING

The Gift of a Voice

For 30 years, the Hydrocephalus Association has served as the voice for one million patients, raising critical awareness and advocating for greater resources to fund research and better treatment options. We have accomplished so much but yet there is still much to do.

CONTINUE READING

Portland: Here We Come! 2014 Hydrocephalus Conference

SAVE THE DATE: The 13th National Conference on Hydrocephalus will take place in Portland, Oregon, on July 9-11, 2014! Our patient-centered conferences empower all of us to understand, seek out and put into place the care, programs and services that will meet our needs now and well into the future.

CONTINUE READING

Active Lifestyle Magazine features Educational Video on NPH

Active Lifestyles Magazine, through OrangeTV, interviews Dr. John Fleming of Florida Hospital about Normal Pressure Hydrocephalus.

CONTINUE READING

What if it isn’t Alzheimer’s or Parkinson’s? Understanding Normal Pressure Hydrocephalus

The Hydrocephalus Association’s first webinar on Normal Pressure Hydrocephalus is now available online! “What if it isn’t Alzheimer’s or Parkinson’s?” held on Tuesday, September 10, 2013, with Dr. Michael A Williams, Medical Director, Sandra and Malcolm Berman Brain & Spine Institute, LifeBridge Health at Sinai Hospital of Baltimore, discussed how the diagnosis of Normal Pressure Hydrocephalus can be missed and how it can be made.

CONTINUE READING

Alzheimer’s Weekly Features Normal Pressure Hydrocephalus

Alzheimer’s & Dementia Weekly features a news piece by Dr. Holly Phillips of CBS 2 New York on Normal Pressure Hydrocephalus and how it is often misdiagnosed as Alzheimer’s.

CONTINUE READING

Adult Hydrocephalus and the Development of a Research Network

Adult Hydrocephalus and the Development of a Research Network

CONTINUE READING

Leadership Award for Two Founding Members of HA

Emily and Russel Fudge receive the Vision Award for Leadership for being part of the initial group of founding members of the Hydrocephalus Association. They received the award at the Hydrocephalus Association’s First Annual Vision Dinner held in New York City on October 10, 2013.

CONTINUE READING

Finding Treatment for Normal Pressure Hydrocephalus

The Barrow Normal Pressure Hydrocephalus Blog from the Barrow Neurological Institute shares the journey of Walter Pries, diagnosed and treated for Normal Pressure Hydrocephalus.

CONTINUE READING

Neurologist Specializing in CTE Receives Champion of Hope Award

Dr. Barry Jordan of Burke Rehabilitation Hospital will be honored with the Champion of Hope award by the Brain Injury Association of New York State (BIANYS). He has extensive experience in the diagnosis and treatment of brain injuries, including chronic traumatic encephalopathy (CTE), a progressive degenerative disease which can develop into Normal Pressure Hydrocephalus (NPH).

CONTINUE READING

A Diagnosis of NPH after a Successful Recovery from Brain Cancer

The Brigham and Women’s Hospital Health Blog, Health Hub, features the story of Susan Sontag, diagnosed with Normal Pressure Hydrocephalus (NPH) after a successful recovery from what she was told was terminal brain cancer.

CONTINUE READING

L.A. King Players Will Attend L.A. WALK for Hydrocephalus

Los Angeles Kings hockey players are scheduled to participate in the inaugural Los Angeles Hydrocephalus Association WALK on September 29, 2013 to help raise awareness of hydrocephalus and the 1 million Americans living with this condition.

CONTINUE READING

Louisville WALK Chair Interviewed by Local TV Station

Brittney Neidig, our Hydrocephalus Association Louisville, Kentucky WALK Chair, is interviewed by Johnny Archer of WHAS11 News, about the upcoming WALK which took place on September 28, 2013, at the Louisville Zoo.

CONTINUE READING

NEW Hydrocephalus Educational Webinar Launch

The Hydrocephalus Association is pleased to announce our 2013 Education and Support webinar series! In this first webinar, Dr. Michael Williams, Medical Director of the Sandra and Malcolm Berman Brain and Spine Institute at Sinai Hospital of Baltimore, will discuss how the diagnosis of normal pressure hydrocephalus can be missed, and how it can be made. Register today!

CONTINUE READING

Gala Dinner Early Fundraiser for New Mexico WALK

The Rio Rancho Observer interviews the Hydrocephalus Association New Mexico WALK Chair, Kathy Carillo, about the upcoming WALK and a smaller fundraising dinner she is organizing to galvanize her team. The keynote speaker for the dinner, Sonja McCully, a librarian at Rio Rancho Public Schools, was misdiagnosed with Alzheimer’s, then eventually correctly diagnosed with normal pressure hydrocephalus.

CONTINUE READING

NPH Featured on Boston National Public Radio Show

National Public Radio Boston affiliate WBUR’s Here and Now host, Robin Young, interviews Dr. Mark Johnson, neurosurgeon and head of the Adult Hydrocephalus Program at Brigham and Women’s Hospital, about Normal Pressure Hydrocephalus (NPH).

CONTINUE READING

Boston Globe Shares Local Man’s Journey with NPH

Boston Globe health reporter, Kay Lazar, shares the story of Jim Lambert’s journey of misdiagnosed Normal Pressure Hydrocephalus, after an initial diagnosis of Alzheimer’s.

CONTINUE READING

Diagnosing Normal Pressure Hydrocephalus

The Boston Globe provides a concise description of Normal Pressure Hydrocephalus and the steps taken to diagnosis the condition.

CONTINUE READING

Children and Adults Facing the Challenges of Hydrocephalus

Eboni Graham with The Amarillo Globe News reports on the challenges both children and adults face living with hydrocephalus. She focuses on Noah Goswick, 3 years old, who acquired hydrocephalus from a brain hemorrhage after a premature birth, and Beverly Cobb, who lives with normal pressure hydrocephalus (NPH).

CONTINUE READING

Research UPDATE: Researchers in Hydrocephalus Convene in Greece

The International Society for Hydrocephalus and CSF Disorders (ISHCSF) held its 5th annual meeting June 28th – July 2nd in Athens, Greece. The meeting brought together hydrocephalus researchers from around the world to discuss the current state of research for all types of hydrocephalus.

CONTINUE READING

Research UPDATE: Improving Diagnosis of NPH Through Imaging

Continuing with our Mentored Young Investigator (MYI) blog series, we want to highlight one of the 2009 recipients, Dana Moore, Ph.D. Her study entitled, “Quantitative measurement of ventricular volume and cortical atrophy to improve diagnosis of Normal Pressure Hydrocephalus (NPH),” aimed to improve diagnosis of NPH through imaging. NPH is a chronic neurological disorder in adults. […]

CONTINUE READING

Dr. Adam Mednick Interviewed About NPH on Connecticut Morning News Program

Dr. Adam Mednick is interviewed by WTIC Fox Connecticut about the diagnosis and treatment of Normal Pressure Hydrocephalus.

CONTINUE READING

Connecticut Neurologist on a Mission to Educate about NPH

News 8 out of Connecticut reports that Dr. Adam Mednick has just published a book on Normal Pressure Hydrocephalus (NPH) and is making it a goal to educate other doctors so patients are properly screened and diagnosed.

CONTINUE READING

Normal Pressure Hydrocephalus Featured in The Saturday Evening Post

An article in The Saturday Evening Post plays an important role in educating the public and raising awareness about the form of hydrocephalus called Normal Pressure Hydrocephalus or NPH, often referred to as the reversible form of dementia.

CONTINUE READING

Water on the Brain?

TTC Advisory Council Member Madeleine Darowiche shares her recent experience with her mom and a man with Normal Pressure Hydrocephalus.

CONTINUE READING

Looking Back…Moving Forward: Focusing on the PATIENT

As the Hydrocephalus Association continues our interview series commemorating our 30th anniversary, we sit down with one of our earliest supporters, Dr. Marvin Sussman, former Director of Research and Technology at Cordis Neuroscience Business (now Integra LifeSciences) and member of the HA Board of Directors for 13 years.

CONTINUE READING

Looking Back…Moving Forward: Six Years After My Shunt Was Installed

In this two part blog, Gilda Katz opens by sharing her journey of being diagnosed with Normal Pressure Hydrocephalus and the importance of her interactions with the Hydrocephalus Association. A must read for individuals living with NPH, recently diagnosed with NPH, or concerned about symptoms of memory loss, confusion, incontinence, and a troubling gait.

CONTINUE READING

The Intrepid Traveler: Machu Pichu, Here I Come!

Travel Journal Entry #1: Planning my trip to Machu Pichu, Peru. Avid walker, intrepid traveler, and currently treated for Normal Pressure Hydrocephalus, Gina shares her plans for visiting Machu Pichu. Travel suggestions and tips for individuals with hydrocephalus are also provided.

CONTINUE READING
Change this in Theme Options
Change this in Theme Options