normal pressure hydrocephalus
In her monthly blog, Hydrocephalus Association CEO Dawn Mancuso shares the results of our Stakeholder Survey eliciting input from our members on the state of HA and direction for the future of the association.
Some attendees of the Hydrocephalus Association’s 13th National Conference on Hydrocephalus will be driving only a short distance, while many of us will be flying in from all around the country. See what Portland, OR, has to offer as you plan your trip.
The Adult Hydrocephalus Clinical Research Network Planning Committee finalizes the policies and procedures for collecting data from adult hydrocephalus patients at its 6 clinical centers and reviews protocols for its first clinical study.
The Hydrocephalus Association patient-centered National Conference empowers all of us with the tools and connections to address the medical, educational and social complexities of living with hydrocephalus. Join us in Portland, Oregon, July 9-11, 2014!
Join the Hydrocephalus Association on Monday, March 3, 2014, at 7:00 p.m. EST for our next webinar, “Research Update: Delivering on a Promise,” exploring the latest advances in hydrocephalus research and showcasing several exciting studies being conducted to better understand the basic science of hydrocephalus and clinical protocols for treating patients.
Researchers at the Fraunhofer Institute for Microelectronic Circuits and Systems IMS in Duisburg, Germany, working jointly with Christoph Miethke GmbH and Aesculap AG, engineered a cerebral pressure sensor that is implanted with a shunt that allows physicians to read brain pressure using a hand-held meter.
The Hydrocephalus Association is pleased to announce the Medical Chairs of the 13th National Conference on Hydrocephalus – Drs. Nathan Selden, Marion “Jack” Walker, and Michael A. Williams.
For 30 years, the Hydrocephalus Association has served as the voice for one million patients, raising critical awareness and advocating for greater resources to fund research and better treatment options. We have accomplished so much but yet there is still much to do.
SAVE THE DATE: The 13th National Conference on Hydrocephalus will take place in Portland, Oregon, on July 9-11, 2014! Our patient-centered conferences empower all of us to understand, seek out and put into place the care, programs and services that will meet our needs now and well into the future.
The Hydrocephalus Association’s first webinar on Normal Pressure Hydrocephalus is now available online! “What if it isn’t Alzheimer’s or Parkinson’s?” held on Tuesday, September 10, 2013, with Dr. Michael A Williams, Medical Director, Sandra and Malcolm Berman Brain & Spine Institute, LifeBridge Health at Sinai Hospital of Baltimore, discussed how the diagnosis of Normal Pressure Hydrocephalus can be missed and how it can be made.
Alzheimer’s & Dementia Weekly features a news piece by Dr. Holly Phillips of CBS 2 New York on Normal Pressure Hydrocephalus and how it is often misdiagnosed as Alzheimer’s.
Emily and Russel Fudge receive the Vision Award for Leadership for being part of the initial group of founding members of the Hydrocephalus Association. They received the award at the Hydrocephalus Association’s First Annual Vision Dinner held in New York City on October 10, 2013.
The Barrow Normal Pressure Hydrocephalus Blog from the Barrow Neurological Institute shares the journey of Walter Pries, diagnosed and treated for Normal Pressure Hydrocephalus.
Dr. Barry Jordan of Burke Rehabilitation Hospital will be honored with the Champion of Hope award by the Brain Injury Association of New York State (BIANYS). He has extensive experience in the diagnosis and treatment of brain injuries, including chronic traumatic encephalopathy (CTE), a progressive degenerative disease which can develop into Normal Pressure Hydrocephalus (NPH).
The Brigham and Women’s Hospital Health Blog, Health Hub, features the story of Susan Sontag, diagnosed with Normal Pressure Hydrocephalus (NPH) after a successful recovery from what she was told was terminal brain cancer.
Los Angeles Kings hockey players are scheduled to participate in the inaugural Los Angeles Hydrocephalus Association WALK on September 29, 2013 to help raise awareness of hydrocephalus and the 1 million Americans living with this condition.
Brittney Neidig, our Hydrocephalus Association Louisville, Kentucky WALK Chair, is interviewed by Johnny Archer of WHAS11 News, about the upcoming WALK which took place on September 28, 2013, at the Louisville Zoo.
The Hydrocephalus Association is pleased to announce our 2013 Education and Support webinar series! In this first webinar, Dr. Michael Williams, Medical Director of the Sandra and Malcolm Berman Brain and Spine Institute at Sinai Hospital of Baltimore, will discuss how the diagnosis of normal pressure hydrocephalus can be missed, and how it can be made. Register today!
The Rio Rancho Observer interviews the Hydrocephalus Association New Mexico WALK Chair, Kathy Carillo, about the upcoming WALK and a smaller fundraising dinner she is organizing to galvanize her team. The keynote speaker for the dinner, Sonja McCully, a librarian at Rio Rancho Public Schools, was misdiagnosed with Alzheimer’s, then eventually correctly diagnosed with normal pressure hydrocephalus.
National Public Radio Boston affiliate WBUR’s Here and Now host, Robin Young, interviews Dr. Mark Johnson, neurosurgeon and head of the Adult Hydrocephalus Program at Brigham and Women’s Hospital, about Normal Pressure Hydrocephalus (NPH).
Boston Globe health reporter, Kay Lazar, shares the story of Jim Lambert’s journey of misdiagnosed Normal Pressure Hydrocephalus, after an initial diagnosis of Alzheimer’s.
Eboni Graham with The Amarillo Globe News reports on the challenges both children and adults face living with hydrocephalus. She focuses on Noah Goswick, 3 years old, who acquired hydrocephalus from a brain hemorrhage after a premature birth, and Beverly Cobb, who lives with normal pressure hydrocephalus (NPH).
The International Society for Hydrocephalus and CSF Disorders (ISHCSF) held its 5th annual meeting June 28th – July 2nd in Athens, Greece. The meeting brought together hydrocephalus researchers from around the world to discuss the current state of research for all types of hydrocephalus.
Continuing with our Mentored Young Investigator (MYI) blog series, we want to highlight one of the 2009 recipients, Dana Moore, Ph.D. Her study entitled, “Quantitative measurement of ventricular volume and cortical atrophy to improve diagnosis of Normal Pressure Hydrocephalus (NPH),” aimed to improve diagnosis of NPH through imaging. NPH is a chronic neurological disorder in adults. […]
News 8 out of Connecticut reports that Dr. Adam Mednick has just published a book on Normal Pressure Hydrocephalus (NPH) and is making it a goal to educate other doctors so patients are properly screened and diagnosed.
An article in The Saturday Evening Post plays an important role in educating the public and raising awareness about the form of hydrocephalus called Normal Pressure Hydrocephalus or NPH, often referred to as the reversible form of dementia.
As the Hydrocephalus Association continues our interview series commemorating our 30th anniversary, we sit down with one of our earliest supporters, Dr. Marvin Sussman, former Director of Research and Technology at Cordis Neuroscience Business (now Integra LifeSciences) and member of the HA Board of Directors for 13 years.
Travel Journal Entry #1: Planning my trip to Machu Pichu, Peru. Avid walker, intrepid traveler, and currently treated for Normal Pressure Hydrocephalus, Gina shares her plans for visiting Machu Pichu. Travel suggestions and tips for individuals with hydrocephalus are also provided.
Jillian Keenan of The New York Times puts together a list of questions all adult children need to ask of their parents before a critical medical emergency takes place. In her case, her father had hydrocephalus.
Our history as an association is a reflection of the richness and diversity of the engaged and committed members of our community. As we continue our interview series commemorating our 30th anniversary, we take a moment to hear reflections from individuals around the country who have interacted with the Hydrocephalus Association (HA) and supported HA throughout the years. This week we chat with Angela Lacey. who was 44 years old when she was diagnosed with normal pressure hydrocephalus (NPH).
As a follow up to the previous article on the anatomy and physiology of the brain, the Hydrocephalus Association would like to continue our learning and explore the terms we so often hear when dealing with hydrocephalus.
Memorial Hermann-Texas Medical Center hosts a recorded presentation by Dr. Dong H. Kim, director of the Mischer Neuroscience Institute and chief of neurosurgery, detailing the diagnosis of normal pressure hydrocephalus.