NIH

2017 Rally For Medical Research

We are excited to invite YOU to join the HA staff to represent the hydrocephalus community at the 2017 Rally For Medical Research.

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Hydrocephalus Action Network

September 22 is a National Day of Action!

Thursday is a National Day of Action across the country as advocates converge on Capitol Hill at the Rally for Medical Research.

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NINDS Nonprofit Forum Hydrocephalus Registry

Partnering with Government to Shape Disease Research

HA played a key role at the annual NINDS Nonprofit Forum, which provides an opportunity for nonprofit leaders to engage in dialogue with NINDS staff.

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New NIH NINDS Director Announced

Walter J. Koroshetz, MD, was named the Director of the NIH National Institute of Neurological Disorders and Strokes (NINDS).

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Hydrocephalus Conference Scientific Keynote: Dr. Stephen A. Back

Dr. Stephen A. Back will deliver the scientific keynote address on his work on the development of strategies to promote regeneration and repair of injury to the brain at the Hydrocephalus Association’s 13th National Conference on Hydrocephalus, July 9-11, 2014, Portland, Oregon. Join us!

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Adult Hydrocephalus and the Development of a Research Network

Adult Hydrocephalus and the Development of a Research Network

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NIH Approves High Priority Research Within BRAIN Initiative

Hydrocephalus Association Research Programs Manager, Ashly Westrick, provides an update on the NIH BRAIN Working Group, who presented their preliminary report identifying research priorities to the Advisory Committee to the Director.

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NIH Invitation to Public Meetings on the BRAIN Initiative

The National Institutes of Health (NIH) will hold four meetings open to the public to discuss the Brain Research through Advancing Innovative Neurotechnologies (BRAIN) Initiative. The Hydrocephalus Association encourages members of the hydrocephalus community to participate and ensure that our community is represented.

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Obama Proposes BRAIN Initiative

President Obama proposed $100 million in funding for the Brain Research Through Advancing Innovative Neurotechnologies, or BRAIN, Initiative with the goal of gaining a better understanding of the functioning of the brain to in turn find better treatment options for a range of brain disorders.

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Looking Back…Moving Forward: Commemorating 30 Years

Over the last 30 years, the Hydrocephalus Association has significantly impacted the health care and scientific communities as well as the lives of individuals affected by hydrocephalus. We look back on the last 30 years presented in a timeline of our significant milestones.

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NIH Announces Improved CT Scanner

NIH engineers working along with engineers at Toshiba Medical Systems have announced a new computed tomography (CT) scanner that substantially reduces potentially harmful radiation while still improving overall image quality.

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A Gift of Advocacy: Support Your Voice in Washington

The Hydrocephalus Association’s advocacy strategy spans a broad range of activities from local, grassroots awareness efforts such as our WALK program, to state level efforts to establish hydrocephalus awareness days/months, to our federal efforts which focus on research programs at the National Institutes of Health (NIH) and legislation with Congress. Our primary advocacy goal is […]

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The 12th National Conference on Hydrocephalus

    The Hydrocephalus Association held it’s 12th National Conference on Hydrocephalus in Bethesda, MD from June 27th through July 1st, 2012. As always we gathered to re-establish our sense of community and educate ourselves about hydrocephalus. Conference Highlights: Advocacy Day On Thursday, June 28th, over 200 participants visited their congressional representatives to lobby for […]

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Only One Week Away!!! 12th National Conference on Hydrocephalus! What it’s all about!

Our biennial hydrocephalus conference is one of the traditional cornerstones of the Hydrocephalus Association’s commitment to meeting the far ranging needs of our community. This year, from June 27th through July 1st, the HA invites you to join us in Bethesda, MD at our the 12th National Conference on Hydrocephalus. Education, education, education… Hydrocephalus is […]

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NIH Supports Upcoming Hydrocephalus Research Conference

We are excited to announce that we have received a commitment from the National Institute of Neurological Disorders and Stroke (NINDS), the leading federal funder of brain science at the National Institutes of Health (NIH), to support our upcoming research conference entitled “Opportunities in Hydrocephalus Research: Pathways to Better Outcomes” in Seattle on July 9-11, […]

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Slow and Steady wins the Race

By Dawn Mancuso, FASAE, CAE, HA CEO Sometimes we all encounter frustration. We feel like we work and we work, but that things just don’t change as fast as we would like or need.  At times like these, when my patience is wearing thin, I often look to those wiser than myself for inspiration and […]

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NINDS Director Dr. Landis to Headline HA’s Conference in June

We are honored and thrilled to report that Dr. Story C. Landis, the distinguished Director of the National Institute for Neurological Disorders and Stroke (NINDS), will be a keynote speaker at the Hydrocephalus Association’s 12th National Conference on Hydrocephalus: Getting to The Heart of Hydrocephalus. Dr. Landis will address the importance of hydrocephalus research and how this […]

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Advocacy Update: HA Points to Increased Funding but Calls for More

By Rick Smith, HA Acting CEO As a delegation from the Hydrocephalus Association heads to Washington D.C. to participate in the September 23rd Day of Testimony, we thought we would provide you with a complete update of our advocacy efforts. First, we have just completed an in-depth analysis of investments in hydrocephalus research by the […]

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HA Chairman, Paul Gross, Joins NINDS Advisory Council

By Rick Smith, HA Acting CEO I am pleased to announce that Paul Gross, Chairman of Hydrocephalus Association’s (HA) Board of Directors, has been selected to join the 18 member National Advisory Neurological Disorders and Stroke Council -the major advisory panel to the National Institute of Neurological Disorders and Stroke (NINDS).  Paul joins three other […]

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NIH NINDS Forum Provides Insight into Hydrocephalus Funding

By Paul Gross, Chairman of the Board I attended the National Institutes of Health (NIH) National Institute of Neurological Disorders and Stroke (NINDS) nonprofit forum on June 1st.  Of the 27 institutes that make up NIH, NINDS is the largest potential grantor in hydrocephalus research.  The event is put on by the NINDS staff to […]

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