Imagine having a neurological condition that most people have never heard of. Jamie Wright is on a mission to educate others about hydrocephalus.
If we don’t act with a collective sense of urgency, nobody else will. It’s been more than 50 years since a significant improvement has occurred in the treatment of hydrocephalus.
Our Patient Partner Committees provide the patient perspective throughout the duration of a research study, making sure the patient voice is at the table.
How do surgeons make decisions? How do they stand by those decisions and evaluate themselves? The HCRN set out to answer these questions in their study.
Dr. Manuel Cacdac, 74, dies. Cacdac founded the Hydrocephalus Foundation of the Philippines, which helps children born with hydrocephalus.
PCORI is awarding a $1.8 million grant in support of a HCRN-proposed randomized control trial to determine the most effective entry site for placing a shunt.
The Hydrocephalus Association’s National Conference on Hydrocephalus offers adult attendees an opportunity to find the information, resources, and support they need to live confidently with their condition. Join us in Portland, Oregon, July 9-11, 2014.
In the 1960s, a treatable form of dementia was a controversial claim. One man questioned things that others were simply content to accept, and to bring it into the real world as a clinically diagnosable and, more importantly a treatable syndrome known as Normal Pressure Hydrocephalus. Who was Dr. Salomon Hakim?
The Hydrocephalus Association is pleased to announce the Medical Chairs of the 13th National Conference on Hydrocephalus – Drs. Nathan Selden, Marion “Jack” Walker, and Michael A. Williams.
Debby Buffa has raised two daughters with hydrocephalus and provided support to hundreds of families since the early 1980s. As the Hydrocephalus Association (HA) continues its 30th anniversary interview series, Debby shares her journey with HA over the last 30 years.
As the Hydrocephalus Association continues our interview series commemorating our 30th anniversary, we sit down with Dr. John Kestle, founding member of the Hydrocephalus Clinical Research Network (HCRN) and member of our Board of Directors and Medical Advisory Board, as he reflects on the current state and future of hydrocephalus research.
Thrasher Research Fund Study Evaluates New Eye Movement Tracking Method For Detection of Hydrocephalus
The Thrasher Research Fund is conducting a study that tests a new method of eye movement tracking technology to determine if it can assess the function of the nerves impacted by hydrocephalus that are responsible for vision and movement of the eye. The study is based in NYC and is actively seeking participants.
An article in The Saturday Evening Post plays an important role in educating the public and raising awareness about the form of hydrocephalus called Normal Pressure Hydrocephalus or NPH, often referred to as the reversible form of dementia.
HA Board Member and former VP of Sales for Medtronic, Ralph Kistler, reflects back on his 20+ year relationship with the Hydrocephalus Association.
Over the last 30 years, the Hydrocephalus Association has significantly impacted the health care and scientific communities as well as the lives of individuals affected by hydrocephalus. We look back on the last 30 years presented in a timeline of our significant milestones.
The Hydrocephalus Association is excited to announce the formation of our 2013 Scientific and Medical Review Committee (SMRC) for our current grant opportunity in partnership with the Rudi Schulte Research Institute.
In 1983, a small group of parents of children with hydrocephalus living in the San Francisco Bay area came together seeking community and support. Thirty years ago could this group of determined and committed individuals have imagined that the Hydrocephalus Association would become the nation’s largest and most widely respected advocacy group dedicated to hydrocephalus?
South Florida Medical Insider radio show on 1230 WBZT interviews pediatric neurosurgeon Dr. Neil Patel and Hydrocephalus Association Florida Walk Chair Eileen Rodger for an in depth story about hydrocephalus.
Eleanor McDermid, Senior medwireNews Reporter, reports on a study that finds that patients are at particularly high risk for developing epilepsy during the first year after a traumatic brain injury (TBI). TBI includes injuries caused by intracranial bleeding. Dr. Chien-Chang Liao of the Taipei Medical University Hospital, Taiwan, and co-workers in the Journal of Neurology, Neurosurgery, and Psychiatry reported the findings.
Dr. Benjamin Warf and four other Boston colleagues have been named 2012 MacArthur Fellows and awarded $500,000 “genius grants” by the MacArthur Foundation.
The John F. Kennedy Medical Center launched a free Hydrocephalus treatment center in Liberia, a country in West Africa. Three successful surgeries have been performed.