The Boozle Bears were fun to help make, and I hope they help children understand their condition, as well as raise money for the research I will one day be conducting!
If you have Normal Pressure Hydrocephalus (NPH) you might find Cognitive Therapy useful. Trish Bogucki explains what it consists of and shares some tips for others who might be in the same boat she was in.
Teens Take Charge Mentor Task Force Member, Madeleine Darowiche, shares the highlights and challenges of her first year away from home at college.
Some attendees of the Hydrocephalus Association’s 13th National Conference on Hydrocephalus will be driving only a short distance, while many of us will be flying in from all around the country. See what Portland, OR, has to offer as you plan your trip.
Join the Hydrocephalus Association on Monday, March 3, 2014, at 7:00 p.m. EST for our next webinar, “Research Update: Delivering on a Promise,” exploring the latest advances in hydrocephalus research and showcasing several exciting studies being conducted to better understand the basic science of hydrocephalus and clinical protocols for treating patients.
The Hydrocephalus Association continues its 30th anniversary history series with an interview with our Long Island WALK Chair, Mia Padron. Mia is determined to raise awareness for hydrocephalus, and it doesn’t stop with leading a WALK. New York celebrates Hydrocephalus Awareness Month because of this woman.
Matthew Schwerha interviews our former Chicago WALK Chair, Sherry Reising, of Oak Forest, on her journey with hydrocephalus, after being diagnosed at 22. The Chicago WALK took place on August 18, 2013 at Soldier’s Field.
Nina is a dog lover. She brings one special French Bulldog into her life as they share a common journey with hydrocephalus. She shares her story with the Hydrocephalus Association.
As we continue our interview series in commemoration of the Hydrocephalus Association’s 30th anniversary, we sit down with Phyllis Rogers, who is in her 10th year chairing the Denver WALK, as she reflects on her drive to continue to chair the WALK and her hopes for the future of the Hydrocephalus Association.
As the Hydrocephalus Association continues our interview series commemorating our 30th anniversary, we sit down with Dr. John Kestle, founding member of the Hydrocephalus Clinical Research Network (HCRN) and member of our Board of Directors and Medical Advisory Board, as he reflects on the current state and future of hydrocephalus research.
The Hydrocephalus Association 30th anniversary interview series continues with our Houston WALK Co-Chair, Margaret Powers as she shares her thoughts about the Hydrocephalus Association and starting and coordinating a WALK.
With recent moves of Hydrocephalus Clinical Research Network (HCRN) investigators Dr. John Wellons to Vanderbilt University and Dr. John Kestle to University of British Columbia, HCRN has decided to expand its network from seven to nine centers to incorporate their respective hospitals in HCRN research.
Each year the American Association for Neurological Surgeons (AANS) hosts its annual scientific meeting bringing together neurosurgeons from across the country. This year’s meeting entitled, “Changing Our Culture to Advance Patient Safety,” focuses on the patient-safety movement. HA staff members join esteemed members of the medical community for this exciting event.
HA Board Member and former VP of Sales for Medtronic, Ralph Kistler, reflects back on his 20+ year relationship with the Hydrocephalus Association.
Our Teens Take Charge (TTC) program provides support, training, awareness and fundraising opportunities so that teens can be an effective force in making their stories heard. As part of our interview series in commemoration of our 30th anniversary, our intern, Jessica Ford, sits down with Haylea Lynn Blank, to talk about growing up with hydrocephalus and her thoughts on the Hydrocephalus Association.
Twelve doctors and neurosurgeons in Zimbabwe were trained in the neuroendoscopic ventriculostomy surgical technique for the treatment of hydrocephalus. The Neurosurgical Education Development Foundation, led by Dr. Mahmood Qureshi, has been promoting better surgical treatment options leading to fewer shunt insertions in order to address the medical and financial constraints of many African countries.
The PR Newswire reports that Dr. Charles J. Winters, of Frederick Memorial Hospital, Maryland, is listed by US News and World Report as a ‘Top Doctor.’ Dr. Winters is a neurosurgeon with a a specialized interest in adult onset hydrocephalus and the surgical treatment of dementia.
Dr. Samuel Browd, Director of Hydrocephalus at Seattle Children’s, performed a new procedure known as Choroid Plexus Cauterization on an infant with hydrocephalus.
The Hydrocephalus Association held it’s 12th National Conference on Hydrocephalus in Bethesda, MD from June 27th through July 1st, 2012. As always we gathered to re-establish our sense of community and educate ourselves about hydrocephalus. Conference Highlights: Advocacy Day On Thursday, June 28th, over 200 participants visited their congressional representatives to lobby for […]
Historical Perspective of Hydrocephalus and its treatment & HA History: 1983 – 2012 – then, now and the future
Ever wanted to know more about the history of hydrocephalus? When was it discovered? How has it evolved over the last 2500 years? Would you like to know more about the work of Dr. Hakim? How about the humble beginnings the Hydrocephalus Association? Well, we invite you to attend the 12th National Conference in Bethesda, […]
By John Kestle, MD, MSc, FRCSC, FACS (re-posted with the author’s permission) The HCRN has successfully launched a new, potentially ground-breaking study across the Network. This study, titled Ventricular Involvement in Neuropsychological Outcomes in Pediatric Hydrocephalus, or VINOH for short, is funded by a Mentored Young Investigator award from the Hydrocephalus Association received by Dr. […]
The Hydrocephalus Association is dedicated to helping families and individuals whose lives have been touched by hydrocephalus and the professionals who work diligently to create a brighter future through medical excellence and research. There are many ways to show your love and care to the community. We invite you to: Register to attend […]
We asked on our Hydrocephalus Facebook community page: “Do you prepare a list of questions to ask your or your child’s doctor before the appointment?” We were so pleased to see the majority of our community members answered “yes” to last week’s Facebook poll question, as it is very critical to be prepared before a […]
The Hydrocephalus Clinical Research Network (HCRN) study on Shunt Protocols, headed by Dr. John Kestle, is making waves in the neurosurgical community. Published in the Journal of Neurosurgery this month, it is an important paper that has already been made available to the public. Click here to read the full article. Also, Dr. Kestle was […]
Each week we will feature an article from our Hydrocephalus Resource Library. Since shunts are the mainstay treatment for hydrocephalus, we will begin with an interesting paper regarding malfunction and taps. Shunt malfunction can often be difficult to diagnose. MRI and CT scans are commonly used, but ventricle size does not always change in people […]
By Jay Wellons, M.D. and David Nilsson, Ph.D. Article first appeared in Pathways, Fall edition 2008 From a developmental perspective, hydrocephalus, as with other forms of neurologic compromise, demonstrates its most prominent disruption to ongoing neurodevelopmental progression of the individual child. As such, many of the developmental consequences of childhood are less obvious, but as […]
Dr. Dave Limbrick, MD, PhD, a neurosurgeon from St. Louis Children’s Hospital — a new member of the Hydrocephalus Clinical Research Network (HCRN) — is conducting a study that seeks to identify bio-markers for hydrocephalus. The study is in its early stages, and you can read more about it, along with other HCRN news, here.
by Pip Marks, HA Director of Support and Education Changes in eye vision of any kind are critical to report as they may well be related to shunt failure/malfunction. Consult with your doctor, neurosurgeon or ophthalmologist, immediately if you ever experience any kind of change in your vision: blurriness, gray outs, double vision, etc. Increased […]