National Institutes of Health

Identifying Best Candidates For Spina Bifida In-Utero Surgery

A new study found that fetuses with enlarged brain ventricles are more likely to get a second surgery after birth.

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Hydrocephalus Research

Scientific Networks are Changing the Research Landscape

Together the HA-funded HCRN, AHCRN and HANDS are changing how hydrocephalus research is conducted and accelerating research progress.

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NIH Invitation to Public Meetings on the BRAIN Initiative

The National Institutes of Health (NIH) will hold four meetings open to the public to discuss the Brain Research through Advancing Innovative Neurotechnologies (BRAIN) Initiative. The Hydrocephalus Association encourages members of the hydrocephalus community to participate and ensure that our community is represented.

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On the Edge of the Fiscal Cliff: Our Interests in the Debates

The energetic debates in Washington are addressing the spending issues that need to be resolved by January 2013, including the across-the-board spending cuts (called “sequestration”) scheduled to take place before the first of the year. Unless legislation to replace sequestration is passed by the Congress and signed by the President before January, many government programs will face at least a 7.8 percent cut, including $2.5 billion in critical research funding at the National Institutes of Health. It is time for us to refocus our fight for basic research funding towards better treatments and eventually a cure for hydrocephalus.

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Delivering on a Promise

Update on the current research initiatives of the Hydrocephalus Association, focusing on a presentation by Paul Gross, Board Chairman, at the Trans-NIH Hydrocephalus Meeting in October. The meeting included representatives from four different Institutes within the NIH – the NINDS, the National Institute of Child Health and Human Development (NICHD), the National Heart, Lung & Blood Institute, and the National Institute of Biomedical Imaging and Bioengineering (NIBIB).

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NIH Supports Upcoming Hydrocephalus Research Conference

We are excited to announce that we have received a commitment from the National Institute of Neurological Disorders and Stroke (NINDS), the leading federal funder of brain science at the National Institutes of Health (NIH), to support our upcoming research conference entitled “Opportunities in Hydrocephalus Research: Pathways to Better Outcomes” in Seattle on July 9-11, […]

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Slow and Steady wins the Race

By Dawn Mancuso, FASAE, CAE, HA CEO Sometimes we all encounter frustration. We feel like we work and we work, but that things just don’t change as fast as we would like or need.  At times like these, when my patience is wearing thin, I often look to those wiser than myself for inspiration and […]

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NIH NINDS Forum Provides Insight into Hydrocephalus Funding

By Paul Gross, Chairman of the Board I attended the National Institutes of Health (NIH) National Institute of Neurological Disorders and Stroke (NINDS) nonprofit forum on June 1st.  Of the 27 institutes that make up NIH, NINDS is the largest potential grantor in hydrocephalus research.  The event is put on by the NINDS staff to […]

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