Members of Congress are determining how to allocate money among government agencies for the next year. Learn about the budget process and how to get involved.
Barrett O’Connor, a Hydrocephalus Association-nominated patient advocate, is serving on the latest panel reviewing applications for medical research at the DoD.
A thought-provoking piece by Dr. Robert Pearl, CEO of the Permanente Medical Group, on funding medical research, featuring an honest and emotional opening by Susan Fiorella about her son, Jake, who has hydrocephalus.
In the last few weeks, I have been privileged to represent the hydrocephalus community at a number of interesting and important events having to do with chronic medical conditions. The first of these was the Voluntary Health Leadership Conference, an annual event hosted by the National Health Council (NHC). The second meeting was the Rare Disease Day Conference held on the NIH campus.