intraventricular hemorrhage

Hydrocephalus Association Scholarships

Announcing Our 2016 Hydrocephalus Association Scholarship Recipients!

The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Scholarship Recipients.

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Hydrocephalus Teen Webinar

Speak Up: Owning Your Condition Webinar Recording NOW Available!

Tess Jacobsen, presents tips, resources, and solutions on how to own your condition in this recent Webinar recording now available!

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Brain 101 Educational Blog Series

Brain 101: An Overview of the Anatomy and Physiology of the Brain

The brain is a fascinating and complex organ. Research of the brain and understanding the inner workings of the brain will help us to learn about the mechanisms of certain neurological conditions, including hydrocephalus.

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Pediatric Hydrocephalus

Pediatric Hydrocephalus Guidelines on Treatment and Management

Guidelines on the treatment and management of pediatric hydrocephalus have been published, with input from HA and members of our Medical Advisory Board.

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NPH-type Symptoms Found after Intraventricular Hemorrhage

Researchers presenting at the 2014 International Stroke Conference found patients with intraventricular hemorrhage after intracerebral hemorrhage have an increased risk for developing two of the three classic normal pressure hydrocephalus symptoms.

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HCRN at the Pediatric Section Meeting

Summary of the presentations by HCRN investigators at the recent AANS/CNS Section on Pediatric Neurological Surgery held in Toronto, December 3-6, 2013.

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Research UPDATE: Preventing Hydrocephalus in Premature Infants

In a study published in the journal Brain, researchers find that the infusion of a naturally occurring protein can prevent the development of hydrocephalus after an intraventricular hemorrhage. The results show great promise in the work to develop a preventive therapy for the development of hydrocephalus, particularly in one of our most fragile populations, premature infants.

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HCRN Update: Shunt Infection Risk and Treatment in Children

Dr. Tamara Simon discusses her work as the Principal Investigator for the shunt infection registry for the Hydrocephalus Clinical Research Network. Her study aims to understand the risk factors associated with shunt infection and how shunt infections are being treated.

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Looking Back…Moving Forward: The Need to Value Shunt Management

As the Hydrocephalus Association continues our 30th anniversary interview series, Ann Marie Flannery, M.D., shares her thoughts on young adults transitioning to adult neurological care and issues a call to action for society to value the management of shunts and the individuals living with them.

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Children and Adults Facing the Challenges of Hydrocephalus

Eboni Graham with The Amarillo Globe News reports on the challenges both children and adults face living with hydrocephalus. She focuses on Noah Goswick, 3 years old, who acquired hydrocephalus from a brain hemorrhage after a premature birth, and Beverly Cobb, who lives with normal pressure hydrocephalus (NPH).

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HCRN Update: Biomarkers in Post Hemorrhagic Hydrocephalus

Dr. David Limbrick discuss his current research study which aims to develop a complimentary tool to supplement the information from imaging in order to determine the best time to treat infants with post hemorrhagic hydrocephalus.

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HCRN Update: Shunt Outcomes in Post Hemorrhagic Hydrocephalus

In a new Research Department blog series, HCRN Update, Ashly Westrick interviews Dr. Jay Wellons, principal HCRN investigator for the Shunt Outcomes in Post Hemorrhagic Hydrocephalus study.

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Looking Back…Moving Forward: It Doesn’t Make Us Different…It Makes Us Stronger

Teens Take Charge Advisory Council member, Wyatt Barris, speaks out about living with hydrocephalus and being an advocate for the condition.

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What is SPML Anyway (and try saying it 3X quickly)?

Lori Poliski shares her family’s experience with SPML, a surgical treatment for children and adults primarily with Spastic Diplegia Cerebral Palsy (SDCP).

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HCRN Lead Investigator Conferred MSPH Degree by the University of Alabama, Birmingham

Hydrocephalus Clinic Research Network, Lead Investigator, Professor Jay Wellons, has been awarded his MSPH Degree by the University of Alabama, Birmingham.

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