St. Louis family fights for a cure for leading cause of brain surgery in children Sisters Stephanie (Buffa) Vogt and Sarah Buffa have the same color hair, the same love of math, and the same brain disorder. They both have hydrocephalus, a life-threatening neurological condition that can only be treated with brain surgery. Between the […]
Organized virtual walk in Baltimore to raise money for research. Jacob Heston was just four weeks old when he was diagnosed with hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. Now at 4 years old, Jacob has endured six brain surgeries to treat his condition. That’s […]
Walks Raise Funds to Find a Cure for Chronic Brain Disorder Today there are over 1 million Americans living with hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. In September through November, individuals and families impacted by this condition will come together at a WALK to […]
LA Kings, Little Women: LA Star Terra Jole, and other Celebrities Unite for 5K WALK/Run to Find a Cure for Hydrocephalus
Los Angeles WALK to End Hydrocephalus will take place Sept. 8 at Redondo Beach LOS ANGELES, CA, Sept. 5, 2018: Terra Jole, star of the hit Lifetime show, Little Women: LA and Terra’s Little Family; has one big thing in common with the LA Kings – they want to find a cure for hydrocephalus, a […]
Saint Louis Science Center’s James S. McDonnell Planetarium Lighting for Hydrocephalus Awareness will take place on September 18, 2015, at sunrise and sunset.
TTC Member Megan Rivkin challenges young people to get involved in advocating and fundraising to increase research efforts and public awareness of hydrocephalus.
Chattanooga’s LaTrice Currie, Anchor/Reporter for WRCB TV and Chattanooga Hydrocephalus Association WALK Celebrity Chair, reports on the picture-perfect day enjoyed by nearly 400 WALK participants at this year’s event. Click here to read the full article.
The Long Island WALK is featured on Fios1 News as it unites 1000 individuals to raise their voices for hydrocephalus awareness at their annual Hydrocephalus Association Long Island WALK.
Robyn Shulman of ChicagoNOW writing with Scott Paul share the story of Scott’s son, Charlie, who has hydrocephalus, and encourage readers to support the Clay Matthews Hydrocephalus Challenge,
The upcoming Phoenix Hydrocephalus Association Walk is featured in the Tempe in Motion. The 5th annual WALK hopes to raise awareness and funds to support research into hydrocephalus and provide information about a disease that affects children, the elderly and even pets.
Amanda Seeley, Neurosurgery Nurse Practitioner, Gillette Children’s Hospital, and co-chair of our Twin Cities Hydrocephalus Association WALK held at the Mall of America, provides an informative question and answer blog about hydrocephalus. The blog highlights photos from our annual WALK.
Standing alongside our Long Island Hydrocephalus Association WALK co-chairs, Mia Padron and Jackie Davidson, NY State Senator John Flanagan designates September as Hydrocephalus Awareness Month.
Children’s Memorial Hermann Hospital & Memorial Hermann Mischer Neuroscience Institute are co-sponsoring the 2014 Houston Hydrocephalus Association WALK on Saturday, September 20, at the Houston Zoo.
The Five and Below of Niagra Falls, NY, will donate 10% of dollars spent between August 31, 2014 and September 27, 2014, to Team Hope and the Western New York Hydrocephalus Association WALK on September 13, 2014 at Beaver Island State Park in Grand Island, NY.
Professional Cable / Xavier Cables is a Gold Sponsor at the Hydrocephalus Association Walk in Salt Lake Friday September 12th.
The Smyrna, DE, community is rallying to raise awareness for hydrocephalus and the funds needed to support critical research into better treatment options and a cure for hydrocephalus.
Susan Slattery-Rogers and her daughter, Zoe, are interviewed on WBTV News about the Charlotte, NC Hydrocephalus Association WALK happening September 13th.
Two-year-old Charlie Pope, son of L.A. Kings Communications Manager Jennifer Pope, enjoys drinking chocolate milk from the Stanley Cup, won this year by the L.A. Kings. Now the players will support Charlie in raising hydrocephalus awareness and funds for critical research into better treatment options and a cure for his hydrocephalus.
The Los Angeles Times reports that players from the Stanley Cup champs, the LA Kings, will join little Charlie and over 600 other walkers and runners at the Los Angeles, California – Hydrocephalus Association WALK, co-chaired by Charlie’s mom, Jennifer Pope.
In her monthly CEO blog, Dawn Mancuso showcases four volunteers in our community who have raised awareness for hydrocephalus on a large scale and challenges all of us to think outside the box this Hydrocephalus Awareness Month.
“Most of the time you can’t see it on the outside, but on the inside people know you’re struggling.” Allie Degrood, her mom and neurosurgeon promote our Twin Cities Hydrocephalus Awareness WALK at the Mall of America on KARE 11 News.
The Cross Timbers Gazette features Megan Redfearn and her daughter, Emma, and highlight Megan’s work to support families through leading the Hydrocephalus Association Dallas Community Network and co-chairing the inaugural DFW Hydrocephalus Association 5K WALK on September 27, 2014.
ABC12.com shares that Harry Porterfield, CBS 2 Chicago 11 am news co-anchor with Roseanne Tellez, will serve as the Honorary Chair of the 10th Annual Chicago Hydrocephalus Association WALK on Sunday, September 6, 2014.
Favorite Things for a Cause educates about hydrocephalus and highlights the second annual Greater Charlotte Hydrocephalus Association Walk on September 13, 2014.
Amanda Harris, writing for the South Charlotte News, a community paper of The Charlotte Observer, shares the story of 3 year-old Zoe, the daughter of our Charlotte WALK Co-chair Susan Slattery-Rogers.
The Kenyon Leader features a local Kenyon-Wanaming teen, 16 year-old Allie Degrood, who will lead a team in this year’s Twin Cities Hydrocephalus Association WALK at the Mall of America on September 7.
Haley Lewis, Miss Tennessee 2014, takes the #icebucketchallenge for ALS AND for #HYDROCEPHALUS in honor of little Ema McLaughen, our Chattanooga Hydrocephalus Association WALK Co-chair’s daughter.
Flint Rock Station 101.5’s Chris Monroe makes a call out to the community to support a local Flint family at the 2014 Detroit Hydrocephalus Association WALK.
Jon Rosen with the LA Kings Insider shares details about hydrocephalus and the upcoming LA Hydrocephalus Association WALK, co-sponsored by the LA Kings.
Matthew Schwerha with ViewsMix Chicago features 29 year-old Eric Tolbert who has endured over 500 surgeries to manage his hydrocephalus. Eric will join over 600 other walkers at this year’s 10th Annual Chicago Hydrocephalus Association Walk on Sept. 6, at Lincoln Park Zoo.
The Apple Gold Group, a franchisee of Applebee’s Neighborhood Grill and Bar, is hosting a fundraiser to support the 2nd annual Hydrocephalus Association of Columbia WALK. The CEO of Apple Gold Group encourages the Columbia, South Carolina community to support the cause.
The Hydrocephalus Association would like to thank Brian Osborne, a season 10 Bachelorette contestant, for supporting our Hydrocephalus Association Hershey, PA WALK, on August 3, 2014. Brian has been an active advocate for hydrocephalus awareness since signing on, actively tweeting about the WALK as well as doing a number of press interviews about hydrocephalus and […]