If we don’t act with a collective sense of urgency, nobody else will. It’s been more than 50 years since a significant improvement has occurred in the treatment of hydrocephalus.
Transparency Market Research finds that by 2023, the market for cerebrospinal fluid (CSF) management, including the manufacturing and use of shunts and CSF drainage systems, will reach 1,840.5 Million.
HydroAssist™ will allow hydrocephalus patients to record and access their full hydrocephalus treatment history on their smartphones and tablets.
On October 15, the Hydrocephalus Association will hold its annual Vision Dinner to raise crucial funds to kick-start a breakthrough initiative aimed at curing hydrocephalus.
The Hydrocephalus Association’s webinar, Hydrocephalus Treatment Part I, is available online! Dr. Riva-Cambrin discusses the alternative treatments to shunting.
PCORI is awarding a $1.8 million grant in support of a HCRN-proposed randomized control trial to determine the most effective entry site for placing a shunt.
The Boston Globe reports on a new company dedicated to developing treatments for neurological diseases. The company, CereVasc LLC, a partnership between Tufts Medical Center and Aton Partners, LLC, will look into a more successful and cost-effective way to treat communicating hydrocephalus.
The National Center on Birth Defects and Developmental Disabilities (NCBDDD) in partnership with Boston Children’s and the International Federation for Spina Bifida and Hydrocephalus (IF) co-hosted the Spina Bifida and Hydrocephalus Partner Engagement Meeting April 22, 2014. The meeting marked the first ever discussion among the 21 organizations in attendance to advance spina bifida and hydrocephalus prevention and care. The Hydrocephalus Association was in attendance.
Professor Simon Malpas of Auckland University has been awarded over $1 million toward his research to develop a new medical device which would allow the pressure in the brain of individuals with hydrocephalus to be monitored easily without surgery.
Counterbalancing articles in AANS Neurosurgeon about changes in the treatment of hydrocephalus and the impact of new procedures going forward make for interesting reading about the evolution of hydrocephalus treatment.
The Northern Virginia Daily reports on Tracy Barb, a Woodstock, Virginia, resident with hydrocephalus who is unable to afford treatment to install a live-saving shunt due to a lack of Medicaid providers in Virginia.
The Adult Hydrocephalus Clinical Research Network Planning Committee finalizes the policies and procedures for collecting data from adult hydrocephalus patients at its 6 clinical centers and reviews protocols for its first clinical study.
In the National Mirror of Nigeria, Mr. Afolabi Fajemilo shares the story of his son, Festus, exposing the struggle many parents face in Nigeria when confronted with a diagnosis of hydrocephalus and spina bifida. The Fajemilo family founded the Festus Fajemilo Foundation to help other parents learn about the condition and treatment options and wade through cultural stigmas and financial hurdles. The foundation is part of the Hydrocephalus Association Community Support Network.
The Hydrocephalus Association (HA) is proud to be a partner in the second annual #GivingTuesday global movement. HA will raise awareness and funding to cure hydrocephalus, a neurological condition that affects 1 million individuals. All funds raised through #GivingTuesday will support our Reason for Hope Research Campaign.
The Hydrocephalus Association brings the voice of the hydrocephalus community to the NIH NINDS 2013 Nonprofit Forum, held September 10 and 11, 2013, at the NIH Campus in Bethesda, Maryland.
The Hydrocephalus Association is pleased to announce the launch of our Shunt System page on our website. Learn more about shunt system components, valve mechanisms, most common shunt systems, overdrainage control devices, Siphon-resistive devices (SRD) and the different symptoms of malfunction and/or infection.
Robin Friedrich shares her son Clayton’s story of being born with hydrocephalus in the Missourian From Our Readers series. She has made it her life mission to raise awareness for hydrocephalus. She will participate in the St. Louis WALK this September.