hydrocephalus treatment

Conference Registration is OPEN!

Registration for our 15th National Conference on Hydrocephalus is OPEN! Join us in Orange County, California, June 28 – 30, 2018.

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Susan Fiorella, hydrocephalus advocate, with her son.

Together Towards Tomorrow

If we don’t act with a collective sense of urgency, nobody else will. It’s been more than 50 years since a significant improvement has occurred in the treatment of hydrocephalus.

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Adult with Hydrocephalus

The Power of Sharing

I look forward to going back to the hydrocephalus conference to reconnect with old friends, meet new friends and learn the latest and greatest information…

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FDA Clears New MRI-Compatible Shunt

The Federal Drug Administration (FDA) cleared Medtronic’s StrataMR valve for the treatment of hydrocephalus. The valve is MRI- compatible in a full body scan.

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Million Dollar Market in Cerebrospinal Fluid Management by 2023

Transparency Market Research finds that by 2023, the market for cerebrospinal fluid (CSF) management, including the manufacturing and use of shunts and CSF drainage systems, will reach 1,840.5 Million.

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Hydrocephalus Teens Take Charge Scholarships

Announcing 2015 TTC Scholarship Recipients!

The Hydrocephalus Association (HA) is pleased and honored to announce our 2015 Hydrocephalus Association Teens Take Charge Scholarship Recipients.

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New Mobile App is First to Allow Hydrocephalus Patients and Doctors to Manage Care Collectively

HydroAssist™ will allow hydrocephalus patients to record and access their full hydrocephalus treatment history on their smartphones and tablets.

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Annual Vision Dinner to Provide Funds to Find a Cure for Hydrocephalus

On October 15, the Hydrocephalus Association will hold its annual Vision Dinner to raise crucial funds to kick-start a breakthrough initiative aimed at curing hydrocephalus.

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Identifying Best Candidates For Spina Bifida In-Utero Surgery

A new study found that fetuses with enlarged brain ventricles are more likely to get a second surgery after birth.

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Hydrocephalus Research

Scientific Networks are Changing the Research Landscape

Together the HA-funded HCRN, AHCRN and HANDS are changing how hydrocephalus research is conducted and accelerating research progress.

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Hydrocephalus Research Webinar Recording Available

Hydrocephalus Treatment Part I Webinar NOW AVAILABLE

The Hydrocephalus Association’s webinar, Hydrocephalus Treatment Part I, is available online! Dr. Riva-Cambrin discusses the alternative treatments to shunting.

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My 4-H Speech about Hydrocephalus

India is a 5th grade school “buddy” to a Kindergartner who has hydrocephalus. India used her 4-H competition to educate the public and share her friendship.

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Upcoming Webinar: Hydrocephalus Treatment Part I

In the next webinar hosted by the Hydrocephalus Association, Dr. Riva-Cambrin will provide a general overview of ETV and ETV/CPC.

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Guidelines for the Treatment of Pediatric Hydrocephalus

The Journal of Neurosurgery published an evaluation of current treatments for pediatric hydrocephalus and guidelines for continued treatment.

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Brain Shunt to Treat Hydrocephalus

HCRN-HA Partnership Results in $1.8 Million Hydrocephalus Research Grant

PCORI is awarding a $1.8 million grant in support of a HCRN-proposed randomized control trial to determine the most effective entry site for placing a shunt.

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Nasal Spray for Hydrocephalus

Through the NOSE! Non-invasive Modulation of CSF Absorption

A proof of concept paper shows that drugs delivered through a nasal spray could one day provide a non-surgical way to manage hydrocephalus.

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New Partnership Will Focus on Advancing Treatment for Communicating Hydrocephalus

The Boston Globe reports on a new company dedicated to developing treatments for neurological diseases. The company, CereVasc LLC, a partnership between Tufts Medical Center and Aton Partners, LLC, will look into a more successful and cost-effective way to treat communicating hydrocephalus.

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Global Partners Unite Around Spina Bifida and Hydrocephalus

The National Center on Birth Defects and Developmental Disabilities (NCBDDD) in partnership with Boston Children’s and the International Federation for Spina Bifida and Hydrocephalus (IF) co-hosted the Spina Bifida and Hydrocephalus Partner Engagement Meeting April 22, 2014. The meeting marked the first ever discussion among the 21 organizations in attendance to advance spina bifida and hydrocephalus prevention and care. The Hydrocephalus Association was in attendance.

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New Zealand Researcher Hopes to Develop New Hydrocephalus Treatment

Professor Simon Malpas of Auckland University has been awarded over $1 million toward his research to develop a new medical device which would allow the pressure in the brain of individuals with hydrocephalus to be monitored easily without surgery.

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HCRN PI’s offer point and counterpoint of shunting and ETV/CPC

Counterbalancing articles in AANS Neurosurgeon about changes in the treatment of hydrocephalus and the impact of new procedures going forward make for interesting reading about the evolution of hydrocephalus treatment.

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Struggling to be Treated for Hydrocephalus

The Northern Virginia Daily reports on Tracy Barb, a Woodstock, Virginia, resident with hydrocephalus who is unable to afford treatment to install a live-saving shunt due to a lack of Medicaid providers in Virginia.

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Update on the Adult Hydrocephalus Clinical Research Network

The Adult Hydrocephalus Clinical Research Network Planning Committee finalizes the policies and procedures for collecting data from adult hydrocephalus patients at its 6 clinical centers and reviews protocols for its first clinical study.

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Money and Superstition Delay Treatment of Hydrocephalus for Nigerian Children

In the National Mirror of Nigeria, Mr. Afolabi Fajemilo shares the story of his son, Festus, exposing the struggle many parents face in Nigeria when confronted with a diagnosis of hydrocephalus and spina bifida. The Fajemilo family founded the Festus Fajemilo Foundation to help other parents learn about the condition and treatment options and wade through cultural stigmas and financial hurdles. The foundation is part of the Hydrocephalus Association Community Support Network.

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A Better Way Forward

A special holiday message from the Hydrocephalus Association Chairwoman of the Board of Directors.

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HA Joins #GivingTuesday THIS December 3, 2013

The Hydrocephalus Association (HA) is proud to be a partner in the second annual #GivingTuesday global movement. HA will raise awareness and funding to cure hydrocephalus, a neurological condition that affects 1 million individuals. All funds raised through #GivingTuesday will support our Reason for Hope Research Campaign.

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A Seat at the Table: NINDS Nonprofit Forum 2013

The Hydrocephalus Association brings the voice of the hydrocephalus community to the NIH NINDS 2013 Nonprofit Forum, held September 10 and 11, 2013, at the NIH Campus in Bethesda, Maryland.

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Update on Baby Roona

The British online newspaper, MailOnline, provides an update on Baby Roona with moving pictures and accounts from her parents.

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New Hydrocephalus Shunt Systems Page Launched!

The Hydrocephalus Association is pleased to announce the launch of our Shunt System page on our website. Learn more about shunt system components, valve mechanisms, most common shunt systems, overdrainage control devices, Siphon-resistive devices (SRD) and the different symptoms of malfunction and/or infection.

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HA Mom Raises Awareness in the Missourian

Robin Friedrich shares her son Clayton’s story of being born with hydrocephalus in the Missourian From Our Readers series. She has made it her life mission to raise awareness for hydrocephalus. She will participate in the St. Louis WALK this September.

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