hydrocephalus support group

Staff of the Hydrocephalus Association

2016 Year-In-Review

As we close out yet another banner year, we are grateful for all that we have been able to achieve through the support of our caring community.

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Texas Mother-daughter Duo Raises Hydrocephalus Awareness

The Cross Timbers Gazette features Megan Redfearn and her daughter, Emma, and highlight Megan’s work to support families through leading the Hydrocephalus Association Dallas Community Network and co-chairing the inaugural DFW Hydrocephalus Association 5K WALK on September 27, 2014.

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Hydrocephalus Teens Take Charge Advisory Council Member

That Moment You Realize You’re Not Alone on This Journey…

In her monthly blog, Madeleine, a Hydrocephalus Association Teens Take Charge Advisory Council member, shares her first experience meeting other teens with hydrocephalus and how it changed her whole outlook on life.

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Looking Back…Moving Forward: Mentoring the Future Voice of Hydrocephalus

Jennifer Bechard Johnson, the Hydrocephalus Association’s Teens Take Charge mentor and Education and Support Manager, shares her views on growing up with hydrocephalus and mentoring the future voice of hydrocephalus through her work with the teen and young adult community.

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Looking Back…Moving Forward: A Trusted Source for Information

As the Hydrocephalus Association continues it’s interview series commemorating our 30th anniversary, Tammy Knight, our Utah Community Support Network leader, shares the value of support and trusted information for parents and individuals.

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Looking Back…Moving Forward: Creating a Sense of Community

The Hydrocephalus Association continues our 30th anniversary interview series with Summer Minchew, our Charlotte, NC Support Group leader. She reflects on her role as a support group leader and moving the vision beyond the traditional support group framework and into creating a hydrocephalus community.

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Looking Back…Moving Forward: Adding a Touch of Pixie Dust

Tina Daniels, Hydrocephalus Association Support Group leader in Owasso, OK, shares her experiences living with hydrocephalus and her decision to lead a support group.

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