Hydrocephalus Resource Library

Happy Valentine’s Day! Let’s Show we Care!

The Hydrocephalus Association is dedicated to helping families and individuals whose lives have been touched by hydrocephalus and the professionals who work diligently to create a brighter future through medical excellence and research. There are many ways to show your love and care to the community. We invite you to:     Register to attend […]

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Normal Pressure Hydrocephalus Guidelines

By Tom Smith and Michael Williams, MD In 2000, the late Anthony Marmarou, PhD convened an independent study group to begin the process of addressing one of the major issues surrounding Normal Pressure Hydrocephalus (NPH).  After convening, these experts published five guidelines concerning NPH. The guidelines, for the first time, rigorously reviewed the existing evidence […]

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Read About Transition Care in Our Hydrocephalus Resource Library

By Tom Smith, HA Adult Services & Outreach Coordinator A paper by Harold Rekate, MD, ‘The Pediatric Neurosurgical Patient: The Challenge of Growing Up’, published in Seminars in Pediatric Neurology, Vol. 16, 2009 discusses the difficulties faced by children born with hydrocephalus and Spina Bifida as they move from the coordinated care of pediatric facilities […]

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Our Hydrocephalus Resource Library is growing like a tree in well tilled soil!

By Pip Marks, HA Director of Support & Education Every week new published articles related to hydrocephalus are being added to our Hydrocephalus Resource Library.  For example, check out this very interesting, new paper authored by Dr. Leland Albright “Hydrocephalus shunt practice of experienced pediatric neurosurgeons”. This study evaluates the different ways eight extremely experienced […]

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NPH, a Gaited Community

There are three characteristic symptoms that help define Normal Pressure Hydrocephalus (NPH).  They are urinary incontinence or frequency, mild dementia and gait difficulties.  Also known as wet, wacky and wobbly.  Of these three, gait tends to be the most noticeable and is very often the gateway to a final and successful diagnosis as the small, […]

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Hydrocephalus Resource Library: Shunt Taps for Shunt Malfunction in Hydrocephalus

Each week we will feature an article from our Hydrocephalus Resource Library. Since shunts are the mainstay treatment for hydrocephalus, we will begin with an interesting paper regarding malfunction and taps. Shunt malfunction can often be difficult to diagnose. MRI and CT scans are commonly used, but ventricle size does not always change in people […]

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Hydrocephalus Expertise at Your Fingertips — 24/7/365

We at the Hydrocephalus Association are proud to announce our new online Hydrocephalus Resource Library.  For decades now, our hydrocephalus support professionals have been providing education, information, and support to those living with hydrocephalus, their families and loved ones, and professionals working in the field.  We know well how many burning, unanswered questions there are […]

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