hydrocephalus registry

Hydrocephalus Action Network

Congressional Action Supports the Hydrocephalus Community

Congress is hearing our message and starting to act on measures that will help our #hydrocephalus community, but we need to keep pushing our priorities.

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Hydrocephalus Action Network

Time to Attend a Town Hall Meeting!

Your representatives will be home May 30th, a perfect time to attend a town hall and advocate for legislation important to the hydrocephalus community.

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Hydrocephalus Action Network

It’s Time for a National Hydrocephalus Registry

The Advancing Research for Hydrocephalus Act (H.R.2313) would establish a national hydrocephalus registry. It’s time to ask Congress to act.

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American flag framing the White House

Congress to Consider Possible Increased Funding for Medical Research

Members of Congress are determining how to allocate money among government agencies for the next year. Learn about the budget process and how to get involved.

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Hydrocephalus Action Network

It’s Time to Start Taking Action!

It’s time to start energizing our hydrocephalus grassroots network! Here are a few assignments for you to help make you a star advocate.

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Rally for Medical Research

National Day of Action is THURSDAY

This Thursday is a National Day of Action to support the Rally for Medical Research and the advocates raising their voices on Capitol Hill. PARTICIPATE!

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Australian Government Denies Hydrocephalus Registry

The Australian government chose not appropriate $200,000 for a national registry of shunt operations in the Australia federal budget, despite honoring a commitment from the previous Labor government for a $150,000 start-up grant to the Neurosurgical Society of Australasia.

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