hydrocephalus in kids

Girl with hydrocephalus

Hope for St. Patrick’s Day!

A little luck? A lot of HOPE! Meet our St. Patrick’s Day charm, Hope, a 3 1/2 year old girl living with hydrocephalus.

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Washington Wizards Grant Teen with Hydrocephalus His Wish

The Washington Wizard with Kids Wish Network granted a Maryland teen, Elijah Taylor, born with hydrocephalus and spina bifida, his dream to attend a game.

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American flag framing the White House

The ABLE Act Offers Tax Benefits for Hydrocephalus Families

The ABLE Act allows families with children with disabilities to save for college and other expenses in tax-deferred accounts. A must read with tax season upon us!

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Research 101: Levels of Evidence in Hydrocephalus Clinical Research Studies

Clinical studies are often reported in the news, but how do you know if the study is strong? Dr. Koschnitzky describes how to interpret the results of a study.

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Dr. Marion Walker, neurosurgeon

Dr. Marion “Jack” Walker Honored for his Contributions to Pediatric Neurosurgery

The AANS/CNS Section on Pediatric Neurosurgery awards Dr. Marion L. Walker the 2014 Franc D. Ingraham Award for Distinguished Service and Achievement.

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Pediatric Hydrocephalus

Pediatric Hydrocephalus Guidelines on Treatment and Management

Guidelines on the treatment and management of pediatric hydrocephalus have been published, with input from HA and members of our Medical Advisory Board.

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Kids becoming medical advocates

Preparing for Transition to Adulthood with Baby Steps (that become huge milestones)! It Starts with YOU.

Preparing children to become adult medical patients can happen earlier than you might think, as Cristin Lind shares in her recent article.

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Hydrocephalus Video Blog Parents

Through a Mother’s Eyes: Learning to Let Go

In this installment of our video blog series, “Through a Mother’s Eye’s,” Debby Buffa talks openly about emotionally letting go as our kids with #hydrocephalus grow up and adventure out.

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Art and hydrocephalus

Calling all of our young artists!

If you are between the ages of 2-12 living with hydrocephalus or a sibling, send us one of your favorite drawings!

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Residents Prize in Hydrocephalus

Hydrocephalus Association Resident Prize Award

Hydrocephalus Association announces Resident Prize Awardee Jennifer Strahle, MD. for her research paper presented at the AANS/CNS Pediatric Section meeting.

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Spread the word about hydrocephalus

Are YOU Up for the Challenge?

Do you want to raise awareness about hydrocephalus? THIS IS THE PERFECT OPPORTUNITY. Read how.

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Chattanooga Mom on a Mission

Chara McLaughen, our Hydrocephalus Association Chattanooga WALK Chair, is on a mission to educate the public about hydrocephalus. She and her daughter Ema are interviewed by WRCB TV’s Latrice Curry about their journey with the condition and the upcoming WALK to raise funds to find a cure.

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National Hydrocephalus Conference 2014

13th National Conference on Hydrocephalus: Highlights

At our 13th National Conference on Hydrocephalus in Portland, OR, July 9-11, 2014, we gathered to re-establish our sense of community and educate ourselves about hydrocephalus. Take a peek at our conference highlights!

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Trick or Treat for Hydrocephalus

It was a Dark and Stormy Night…but NOT for Hydrocephalus Trick or Treaters!

Want a fun FALL fundraiser for hydrocephalus? We’re looking for volunteers to get involved with Trick or Treat for Hydrocephalus! Read more…

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Nasal Spray for Hydrocephalus

Through the NOSE! Non-invasive Modulation of CSF Absorption

A proof of concept paper shows that drugs delivered through a nasal spray could one day provide a non-surgical way to manage hydrocephalus.

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Texas Mother-daughter Duo Raises Hydrocephalus Awareness

The Cross Timbers Gazette features Megan Redfearn and her daughter, Emma, and highlight Megan’s work to support families through leading the Hydrocephalus Association Dallas Community Network and co-chairing the inaugural DFW Hydrocephalus Association 5K WALK on September 27, 2014.

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LA Kings Insider Sends Out an LA Hydrocephalus Association WALK Invitation

Jon Rosen with the LA Kings Insider shares details about hydrocephalus and the upcoming LA Hydrocephalus Association WALK, co-sponsored by the LA Kings.

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Mom Working to Improve Hospital Errors that Led to Son’s Death

Leilani Schweitzer, who lost her 20 months old son Gabriel, who had hydrocephalus, is now a patient liaison with Stanford University Hospital and an advocate for better hospital-patient communication.

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Kids Wish Network Grants California Boy with Hydrocephalus a Disney Adventure

The Kids Wish Network granted 4 year-old Jace Carmack his wish for him and his family to visit Disneyland and Universal Studios. Jace was born with hydrocephalus and has endured numerous brain surgeries to revise his shunt.

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Frisco Commons Park Partners with the Inaugural Hydrocephalus Association WALK in Dallas, TX

Working with the Frisco Parks and Recreation Department, Frisco Commons was selected for the site of the inaugural 2014 Dallas/Fort Worth Hydrocephalus Association WALK which will take place on September 27, 2014.

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Matt Kocsis WALKing Proud for Hydrocephalus Awareness

Matt Kocsis, an entering senior at Cumberland Valley High School, shares his hydrocephalus journey of 98 brain surgeries, three years in a wheelchair, and his enduring hope for better treatment options and a cure. He completed the 2014 Central PA Hydrocephalus Association WALK in Hershey, PA.

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WALKing for a Cure after 93 Brain Surgeries

Matt Kocsis will be joined by family, friends, and his life-long neighbor, Brian Osborne, a Season 10 The Bachelorette contestant, as he WALKs for a cure at the 2014 Central PA Hydrocephalus Association WALK in Hershey, PA. Matt, a senior in high school, has undergone 93 brain surgeries to treat his hydrocephalus.

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Brian Osborne of The Bachelorette Will WALK in Hershey for the Hydrocephalus Association

Brian Osborne, a Season 10 contestant on The Bachelorette, will participate in the 2014 Central PA Hydrocephalus Association WALK in Hershey, PA. He will be participating in support of his life-long naighbor, Matt Kocsis, who has hydrocephalus.

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Dr. Andrew Zabel Tackles Anxiety and Hydrocephalus

Dr. Andrew Zabel, Ph.D., ABPP, Kennedy Krieger Institute, returns to the Hydrocephalus Association’s 13th National Conference on Hydrocephalus to lead two sessions – the ABCs of IEPs and Anxiety, Depression and Hydrocephalus. Join us in Portland, OR, July 9-11.

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Dr. Timothy Vogel Joins the Robert H. Pudenz Lectureship at Conference

Timothy Vogel, MD, will join the Robert H. Pudenz Lectureship scientific research panel at the Hydrocephalus Association’s 13th National Conference on Hydrocephalus, July 9-11, 2014, in Portland, Oregon.

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CNN World Shares Photo of Bangladeshi Orphan with Hydrocephalus

CNN World The Week in 37 Photos raises awareness of hydrocephalus through the sharing of a photo of John, a 1 year old orphan in Dhaka, Bangladesh, suffering from severe hydrocephalus.

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Mary Decker Mentorship Award Recipient Announced

The Hydrocephalus Association is proud to announce Cathy Cartwright as this year’s Mary Decker Mentorship Award recipient for her tremendous passion, caregiving, and nurturing of children with hydrocephalus

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Hydrocephalus Conference Scientific Keynote: Dr. Stephen A. Back

Dr. Stephen A. Back will deliver the scientific keynote address on his work on the development of strategies to promote regeneration and repair of injury to the brain at the Hydrocephalus Association’s 13th National Conference on Hydrocephalus, July 9-11, 2014, Portland, Oregon. Join us!

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It’s never too early for TRICK OR TREAT!

No, it isn’t October (yet!) but it won’t be long! The Hydrocephalus Association (HA) is actively seeking volunteers for its “Trick or Treat for HA” program. Join other families in leading this fun, educational, awareness-building event.

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Insight into the Hydrocephalic Brain Using Diffusion Tensor Imaging

The Hydrocephalus Association aims to help our community understand the latest findings coming out of the hydrocephalus research community. In this blog, we summarize a study about Diffusion Tensor Imaging (DTI) and pediatric hydrocephalus.

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Looking Back…Moving Forward: There Has to be a Better Way

As the Hydrocephalus Association continues its history series commemorating our 30th anniversary, Barrett O’Connor, chair of the HA board of directors, shares a personal message to the hydrocephalus community.

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Congratulations 2013 TTC Scholarship Recipients!

Congratulations to our 2013 Hydrocephalus Association Teens Take Charge (TTC) Scholarship Recipients! Our TTC scholarship program is made possible through the generous support of the Medtronic Foundation.

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Trick or Treat for HA!

The Hydrocephalus Association announces the Trick or Treat for HA FUNdraising initiative. Join the team! Visit www.hydroassoc.com for more information.

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Looking Back…Moving Forward: With Laughter In His Heart

The Hydrocephalus Association continues it’s 30th anniversary interview series with Sam Marks, life-long HA member, as he shares his unique experience growing up with the Hydrocephalus Association and his advice for confronting life’s challenges.

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HA WALK Chair Featured in The Charlotte Observer

Summer Minchew, Hydrocephalus Association Charlotte, NC WALK Chair and support group leader, shares her moving personal experience of her son’s diagnosis and treatment for hydrocephalus, and proudly announces the inaugural WALK for Charlotte in The Charlotte Observer’s MomsCharlotte.com.

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