hydrocephalus in children

Shunt to treat hydrocephalus on glass model skull

INPUT NEEDED on Device to Detect CSF Build Up at Home

Two bioengineering students out of Rice University are working on a device that can be used by patients for at-home diagnosis of CSF buildup for hydrocephalus patients.

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Pediatric Hydrocephalus study on shunt entry points

HCRN Study Begins Enrolling Pediatric Patients

The Hydrocephalus Clinical Research Network begins enrolling patients in a new study that examines the best placement for a shunt in infants and children.

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National Hydrocephalus Conference 2014

2014 Conference Update – Teen Track Highlights

Highlighting the Hydrocephalus Association’s Teen track for the upcoming 13th National Conference on Hydrocephalus, July 9-11, 2014, in Portland, OR.

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Congratulations 2013-2014 Brian Christopher Newcomer Reaching for Racquets Tennis Scholarship Recipients!

The Hydrocephalus Association is so pleased to announce the 2013-2014 Brian Christopher Newcomer Reaching for Racquets Tennis Scholarship Recipients!

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Looking Back…Moving Forward: Building Bridges Between Pediatric and Adult Hydrocephalus

As the Hydrocephalus Association continues our 30th year anniversary commemoration, Dr. Marion “Jack” Walker, pediatric neurosurgeon, Primary Children’s Medical Center, Salt Lake City, Utah, reflects on his 37 years of service to the hydrocephalus community.

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Are we looking for innovation or revolution?

In her monthly blog, Hydrocephalus Association CEO Dawn Mancuso explores how a simple paradigm shift in thinking presented at a recent conference at Children’s Hospital of Alabama, might cause a revolutionary change in the rate of progress for research around hydrocephalus.

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NEW Tennis Scholarship Available!

The Hydrocephalus Association is pleased to announce a special scholarship that is available for children who have hydrocephalus and their siblings between the ages of 4 to 12. “The Brian Christopher Newcomer Reaching for Racquets Tennis Scholarship” was established to support and encourage children with hydrocephalus to play tennis. It is intended to foster and promote confidence, friendship, comfort with social situations, and athletics.

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Kentucky Family Raises Awareness of Hydrocephalus

Oliviah Jade Thornton was born with hydrocephalus. Now this Kentucky family is raising awareness in their local community.

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Kentucky Man with Hydrocephalus Helps 11 Children in Developing Countries Receive Surgery

Eleven children received life-changing surgeries by Michael May of Cynthia, Kentucky, who worked with CURE celebrity fitness trainers to attain his fitness goals and raise money. May has hydrocephalus and is the winner of the inaugural CURE Champion Team.

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Dallas Community Support Leader Featured in Local Newspaper

Megan Redfearn, Hydrocephalus Association Community Support leader in Dallas, Texas, shares her journey with daughter, Emma, who has hydrocephalus, with The Cross Timbers Gazette.

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Young Indian Toddler Recovering from Brain Surgery to Treat Severe Hydrocephalus

CNN International provides an update on young Roona Begum, who recently underwent a series of surgeries to treat a severe case of hydrocephalus.

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Digital Journal Features Lexi Rocciola’s Trip to Meet Taylor Swift

Digital Journal features Alexis “Lexi” Rocciola, who recently attended a meet and greet with Taylor Swift before her August 27, 2013, concert in Sacramento. Alexis shared her journey of living with hydrocephalus with the famous singer.

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Looking Back…Moving Forward: Dedicated to Human and Community Service

“Be yourself, and do not let hydrocephalus define who you are.” A quote from a graduating college senior as she reflects on the 30th anniversary of the Hydrocephalus Association in our interview series.

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