Hydrocephalus Clinical Research Network

Hydrocephalus Association Board Member Receives Prestigious Neurosurgical Award

Pediatric neurosurgeon Dr. John R. W. Kestle is awarded the Robert H. Pudenz Award for Excellence in Cerebrospinal Fluid (CSF) Physiology by Medtronic plc.

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Hydrocephalus Research Webinar Recording Available

Hydrocephalus Treatment Part I Webinar NOW AVAILABLE

The Hydrocephalus Association’s webinar, Hydrocephalus Treatment Part I, is available online! Dr. Riva-Cambrin discusses the alternative treatments to shunting.

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Dawn Mancuso, CEO, Hydrocephalus Association

A Season for Thanks

In the spirit of the Thanksgiving season, Hydrocephalus Association CEO Dawn Mancuso shares her heartfelt appreciation to our highly dedicated and committed volunteers.

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Paul Gross’ Can’t Not Do

The Microsoft Alumni Foundation highlights Paul Gross as part of their alumni profiles for the, “What is it in life that you ‘can’t not do'” campaign, for his commitment to find better treatment options and a cure for hydrocephalus through his work with the Hydrocephalus Association and the Hydrocephalus Clinical Research Network.

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Update on the Adult Hydrocephalus Clinical Research Network

The Adult Hydrocephalus Clinical Research Network Planning Committee finalizes the policies and procedures for collecting data from adult hydrocephalus patients at its 6 clinical centers and reviews protocols for its first clinical study.

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Vanderbilt Doctor Travels to Uganda to Learn ETV/CPC

Dr. Rob Naftel of Vanderbilt University traveled to Uganda to learn the new surgical treatment for hydrocephalus, endoscopic third ventriculostomy (ETV) combined with choroid plexus cauterization (CPC). Training under Dr. Benjamin Warf of Boston Children’s Hospital, who pioneered the procedure, Dr. Naftel will be able to apply the technique to his current practice, expanding a multi-site outcomes research study led by the Hydrocephalus Clinical Research Network (HCRN), which Vanderbilt joined in 2013.

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Good Housekeeping Magazine Raises Awareness of Hydrocephalus

Cortney Pellettieri of Los Angeles, CA, is selected as one of 5 women committed to a cause and making a difference. She is the co-chair for the Los Angeles Hydrocephalus WALK, which will raise funds and awareness for a condition that affects 1 million Americans and is the leading cause for brain surgery in children.

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HCRN Update: Shunt Outcomes in Post Hemorrhagic Hydrocephalus

In a new Research Department blog series, HCRN Update, Ashly Westrick interviews Dr. Jay Wellons, principal HCRN investigator for the Shunt Outcomes in Post Hemorrhagic Hydrocephalus study.

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Vanderbilt’s Pediatric Neurosurgery Department Expands its Research Efforts

The Vanderbilt University Medical Center Reporter reports that Chevis Shannon, MBA, MPH, Dr.PH., will serve as the director of the Vanderbilt Pediatric Neurosurgery Clinical Research Initiative. Dr. Shannon will play an instrumental role in establishing Vanderbilt as a collaborator in the Hydrocephalus Clinical Research Network (HCRN).

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HCRN Included in US News & World Report 2013 Children’s Hospital Rankings

We would like to congratulate HCRN for being acknowledged for their participation in supporting the hospitals ranked in the 2013 ranking of children’s hospitals in the U.S. by US News & World Report. The acknowledgement of HCRN’s role in these institutions is a great affirmation of their work in the research around the causes and treatment of hydrocephalus.

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Dr. Curtis Rozzelle Joins the Hydrocephalus Clinical Research Network

Dr. Curtis Rozzelle will represent Birmingham Children’s Hospital and oversee their participation in the Hydrocephalus Clinical Research Network (HCRN).

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HA Partners with HCRN to Promote Groundbreaking Clinical Research

By Dawn Mancuso, FASAE, CAE, Hydrocephalus Association CEO I am pleased to announce that the Hydrocephalus Association (HA) and the Hydrocephalus Clinical Research Network (HCRN) have signed a partnership agreement that will ensure the continuation of HCRN’s hydrocephalus research. We are honored to be partnered with the first and, so far, only clinical research network […]

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Hydrocephalus Clinical Research Network – Making Waves

The Hydrocephalus Clinical Research Network (HCRN) study on Shunt Protocols, headed by Dr. John Kestle, is making waves in the neurosurgical community.  Published in the Journal of Neurosurgery this month, it is an important paper that has already been made available to the public. Click here to read the full article. Also, Dr. Kestle was […]

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HCRN – Moving the Dials on Hydrocephalus Treatment

The Hydrocephalus Clinical Research Network (HCRN) is publishing a paper in the Journal of Neurosurgery.  This paper is about their program to standardize treatment of hydrocephalus in all of their centers and showed a significant drop in post-surgery infection rates. We would like to extend our congratulations and heartfelt thanks to the HCRN and the […]

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