hydrocephalus awareness

Star Wars Night Presented by the Hydrocephalus Association is Tomorrow at 7:15 pm

May 4th, 2017, the Chattanooga Lookouts will host their annual Star Wars Night at AT&T Field, this year in partnership with the Hydrocephalus Association.

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What Can’t You Live Without?

Read Genesis Espaillat first-person account of life with hydrocephalus, which she wrote in honor of September being Hydrocephalus Awareness month.

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New York City Hydrocephalus WALK

HA WALK Takes a Bite Out of the Big Apple!

With the addition of our inaugural New York City Hydrocephalus WALK, the Hydrocephalus Association now hosts WALKS in all major cities in the United States.

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Chicago WALK Chair featured on MIX Matters

Chicago radio station 101.9FM The Mix featured Katie Cook, our Chicago Hydrocephalus Association WALK Chair, on their weekly radio show “MIX Matters” with Susan Wiencek.

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Madeleine, Hydrocephalus Association Teens Take Charge blogger

Living with Anxiety and Hydrocephalus

Madeleine shares her experience of living with the challenges of anxiety and hydrocephalus.

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Dara Hydrocephalus Teens Take Charge Mentor

College Bound? Tips on the College Application Process

Hydrocephalus Teens Take Charge Mentor Task Force member offers advice on how to tackle the college application process and shares insight from her personal experience.

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Local High School Drum Line to Lead Hydrocephalus WALKERS

Members of the Cinco Ranch High School band have volunteered to kick-off the Houston Hydrocephalus Association WALK which takes place on Saturday, October 17, at Fellowship Church, Houston.

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WNYH Announces Western New York WALK

Western New York had an amazing WALK on Saturday, September 19th. WNYH helped promote the WALK during a news segment. Adam Page served as the honorary chair.

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Dawn Mancuso, CEO, Hydrocephalus Association

From the CEO: Planning with the End Result in Mind

Hydrocephalus Association CEO Dawn Mancuso shares the aggressive strategic plan adopted by the Board of Directors that will guide the work of HA over the next 5 years – our Roadmap to a Cure.

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Teen with money

Money, Money, Money – Helping Out Without Emptying Wallets

TTC Member Megan Rivkin challenges young people to get involved in advocating and fundraising to increase research efforts and public awareness of hydrocephalus.

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4th Annual Hydrocephalus Walk takes place in Chattanooga, TN

Nearly 400 people attended the walk this year in Chattanooga, raising money for hydrocephalus.

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Picture-perfect Day for Chattanooga Hydrocephalus WALK

Chattanooga’s LaTrice Currie, Anchor/Reporter for WRCB TV and Chattanooga Hydrocephalus Association WALK Celebrity Chair, reports on the picture-perfect day enjoyed by nearly 400 WALK participants at this year’s event. Click here to read the full article.

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Hiking for Hydrocephalus Event Raising Money for Knoxville Families

The event, where the group will hike from Smoky Pearl, supports those affected by the condition, in addition to their families.

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Chattanooga Mom on a Mission

Chara McLaughen, our Hydrocephalus Association Chattanooga WALK Chair, is on a mission to educate the public about hydrocephalus. She and her daughter Ema are interviewed by WRCB TV’s Latrice Curry about their journey with the condition and the upcoming WALK to raise funds to find a cure.

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Trick or Treat for Hydrocephalus

It was a Dark and Stormy Night…but NOT for Hydrocephalus Trick or Treaters!

Want a fun FALL fundraiser for hydrocephalus? We’re looking for volunteers to get involved with Trick or Treat for Hydrocephalus! Read more…

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The Doctors Television Program Features Hydrocephalus

The Doctors dedicate a segment to hydrocephalus, focusing on infants born with hydrocephalus. The segment follows up on baby Roona Begum from India who gained national attention when her untreated hydrocephalus caused an international outpouring of support for her treatment.

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Clay Matthews Issues a Hydrocephalus Challenge

Donate $10 for hydrocephalus and win two tickets to the Packers vs. Panthers game on October 19, Delta Airline vouchers, 2-night stay in a Marriott hotel, and autographed merchandise by Clay Matthews. Drawing closes 9/29.

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Q&A on Hydrocephalus from Gillette Children’s Hospital

Amanda Seeley, Neurosurgery Nurse Practitioner, Gillette Children’s Hospital, and co-chair of our Twin Cities Hydrocephalus Association WALK held at the Mall of America, provides an informative question and answer blog about hydrocephalus. The blog highlights photos from our annual WALK.

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Senator John Flanagan Designates September Hydrocephalus Awareness Month in New York

Standing alongside our Long Island Hydrocephalus Association WALK co-chairs, Mia Padron and Jackie Davidson, NY State Senator John Flanagan designates September as Hydrocephalus Awareness Month.

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Delaware Community Rallies to Raise Awareness

The Smyrna, DE, community is rallying to raise awareness for hydrocephalus and the funds needed to support critical research into better treatment options and a cure for hydrocephalus.

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Charlotte Hydrocephalus Association WALK Co-chair Interviewed on Local News

Susan Slattery-Rogers and her daughter, Zoe, are interviewed on WBTV News about the Charlotte, NC Hydrocephalus Association WALK happening September 13th.

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LA Kings Players Join 600 WALKERS at the LA Hydrocephalus Association WALK

The Los Angeles Times reports that players from the Stanley Cup champs, the LA Kings, will join little Charlie and over 600 other walkers and runners at the Los Angeles, California – Hydrocephalus Association WALK, co-chaired by Charlie’s mom, Jennifer Pope.

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Alabama Company Challenges Local Meteorologist to Ice Bucket Challenge for Hydrocephalus

Charles Daniel, Alabama ABC 33/40 Meteorologist, takes the ‪#‎IceBucketChallenge‬ and dedicates it to ‪#‎hydrocephalus‬ after being challenged by Wettermark Keith Personal Injury Lawyers.

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Twin Cities Hydrocephalus Association WALK Featured on KARE11 News

“Most of the time you can’t see it on the outside, but on the inside people know you’re struggling.” Allie Degrood, her mom and neurosurgeon promote our Twin Cities Hydrocephalus Awareness WALK at the Mall of America on KARE 11 News. ‪

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CBS 2 Chicago Morning Anchor Announced Honorary Chair of the Hydrocephalus Association Chicago WALK

ABC12.com shares that Harry Porterfield, CBS 2 Chicago 11 am news co-anchor with Roseanne Tellez, will serve as the Honorary Chair of the 10th Annual Chicago Hydrocephalus Association WALK on Sunday, September 6, 2014.

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Non-profit Helps Raise Hydrocephalus Awareness

Favorite Things for a Cause educates about hydrocephalus and highlights the second annual Greater Charlotte Hydrocephalus Association Walk on September 13, 2014.

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Charlotte Hydrocephalus Association WALK Featured in The Charlotte Observer

Amanda Harris, writing for the South Charlotte News, a community paper of The Charlotte Observer, shares the story of 3 year-old Zoe, the daughter of our Charlotte WALK Co-chair Susan Slattery-Rogers.

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Walking on the WILD SIDE in Houston

Woodlands Online features the upcoming Houston Hydrocephalus Association WALK which will take place at the Houston Zoo on September 20th.

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16 Year Old Leads Local Team in Twin Cities Hydrocephalus WALK

The Kenyon Leader features a local Kenyon-Wanaming teen, 16 year-old Allie Degrood, who will lead a team in this year’s Twin Cities Hydrocephalus Association WALK at the Mall of America on September 7.

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Miss TN Takes the Ice Bucket Challenge for Hydrocephalus and ALS

Haley Lewis, Miss Tennessee 2014, takes the ‪#‎icebucketchallenge‬ for ALS AND for ‪#‎HYDROCEPHALUS‬ in honor of little Ema McLaughen, our Chattanooga Hydrocephalus Association WALK Co-chair’s daughter.

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Flint Rock Station Unites Behind Detroit Hydrocephalus Association WALK

Flint Rock Station 101.5’s Chris Monroe makes a call out to the community to support a local Flint family at the 2014 Detroit Hydrocephalus Association WALK.

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LA Kings Insider Sends Out an LA Hydrocephalus Association WALK Invitation

Jon Rosen with the LA Kings Insider shares details about hydrocephalus and the upcoming LA Hydrocephalus Association WALK, co-sponsored by the LA Kings.

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500 Surgeries for Hydrocephalus and Still WALKING Strong

Matthew Schwerha with ViewsMix Chicago features 29 year-old Eric Tolbert who has endured over 500 surgeries to manage his hydrocephalus. Eric will join over 600 other walkers at this year’s 10th Annual Chicago Hydrocephalus Association Walk on Sept. 6, at Lincoln Park Zoo.

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Apple Gold Group Joins with HA to Raise Funds for Hydrocephalus

The Apple Gold Group, a franchisee of Applebee’s Neighborhood Grill and Bar, is hosting a fundraiser to support the 2nd annual Hydrocephalus Association of Columbia WALK. The CEO of Apple Gold Group encourages the Columbia, South Carolina community to support the cause.

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Charlotte HA WALK Featured on WCCB Charlotte

WCCB Charlotte features the 2nd Annual Greater Charlotte Hydrocephalus Association WALK which will take place on September 13, 2014, at the Elizabeth Park, Little Sugar Creek Greenway.

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Interpersonal Connection…You Really DO Get It.

At the Hydrocephalus Association’s biennial national conference, interpersonal connection sessions allow attendees, like the Rocciola family, to meet lifelong friends who share their journey with hydrocephalus – other moms, dads, siblings, and peers.

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Lamb Derby Parade Willow Grove CA

Wyatt Parade Blog

This past May, I was able to walk in the Lamb Derby in Willows, CA. You can read the history about theparade below. My hometown is Willows, CA. The weather was perfect on the day of the parade and everyone was enthusiastic about walking for the Hydrocephalus Association (HA) and Teens Take Charge (TTC) program. […]

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Local Performer Sings to Raise Awareness for Son’s Incurable Brain Condition

KRSL Radio out of Russell, Kansas, features an upcoming concert to benefit the Hydrocephalus Association. Stephanie Oltean will perform holiday favorites on December 1st in Lucas, Kansas.

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Over 300 Chattanoogans Participate in Annual WALK

WRCB reports on the Greater Chattanooga Hydrocephalus Association WALK, which took place on October 26, 2013, in Coolidge Park. Over 300 walkers were in attendance.

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Country Singer Raises Awareness of Hydrocephalus Through Her Music

Angie Marie Raulerson, country music singer and mom to 26 year-old Gina, who has hydrocephalus, hosts a concert to raise awareness and funds through her charity, Gina’s Hope, for the Hydrocephalus Association, The University of Michigan Health System, United Cerebral Palsy of Michigan and the Johnny Burke Children’s Foundation. The concert takes place October 23, 2013.

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