Hydrocephalus Awareness Month
Initiative aims to raise awareness of an incurable brain disorder that affects 1 million Americans Olivia Maccoux, a college senior from Minneapolis, MN, Jennifer Bechard, a 30-year-old from Detroit, MI, and five-year-old Abagail McCall from Washington, DC all have one thing in common. Each of them has celebrated more brain surgeries than birthdays. That’s because […]
Local volunteers joined forces with elected state representatives in Connecticut, New York, Tennessee, Virginia, South Carolina, Colorado and Illinois to proclaim September as Hydrocephalus Awareness Month.
In her monthly CEO blog, Dawn Mancuso showcases four volunteers in our community who have raised awareness for hydrocephalus on a large scale and challenges all of us to think outside the box this Hydrocephalus Awareness Month.
The Hydrocephalus Association continues its 30th anniversary history series with an interview with our Long Island WALK Chair, Mia Padron. Mia is determined to raise awareness for hydrocephalus, and it doesn’t stop with leading a WALK. New York celebrates Hydrocephalus Awareness Month because of this woman.
This September, the Hydrocephalus Association (HA) invites you to celebrate and honor the many faces of hydrocephalus, and to unite with us to create one strong voice of awareness during Hydrocephalus Awareness Month. Let’s challenge ourselves to find new ways to get involved in raising awareness through education and advocacy activities.
The Hydrocephalus Association’s advocacy strategy spans a broad range of activities from local, grassroots awareness efforts such as our WALK program, to state level efforts to establish hydrocephalus awareness days/months, to our federal efforts which focus on research programs at the National Institutes of Health (NIH) and legislation with Congress. Our primary advocacy goal is […]
Pennsylvania State Representative Justin Simmons (R-Lehigh/Northampton) sponsored a resolution that designates November 2012 as Hydrocephalus Awareness Month in Pennsylvania.The resolution was unanimously approved.
September is not the only month to raise awareness about hydrocephalus. Join us in celebrating the launch of our Advocacy Toolkit, a resource to communicate with elected officials and the media.
Four years ago, Mia Padron of Long Island, New York, was on a mission to make a difference for the life of her son and all other individuals living with hydrocephalus. Her son, Tyler, who is now 10, was born with hydrocephalus but not diagnosed until he was 23 months old. Those 23 months were […]
by Jennifer Bechard, Support Group Liaison This September, for Hydrocephalus Awareness Month, the Hydrocephalus Association (HA) invites you to celebrate and honor the estimated one million Americans touched by hydrocephalus. As a community, we can do this by raising awareness about hydrocephalus either in our own circles or to the larger networks of which we […]
McQ and Heather Olsen of Boise, ID are the proud parents of Tessa who was diagnosed at 20 weeks of age with aqueductal stenosis and hydrocephalus. Last month, McQ and Heather took it upon themselves to raise awareness about hydrocephalus. During the month of September, National Hydrocephalus Awareness Month, they appeared in various local news […]
By Rick Smith, HA Acting CEO As we enter September, which has been designated as National Hydrocephalus Awareness Month, HA is working with the Pediatric Hydrocephalus Foundation and other organizations on the planning and organizing of A Day of Testimony on Capitol Hill. The Day of Testimony will take place on September 23rd, and our […]