hydrocephalus advocate

Where we Stand on the Issues

On April 10, 2017, the Hydrocephalus Association Board of Directors approved our position statements on key legislative issues. This is how we stand.

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Hydrocephalus Action Network

4 Keys to Being an Effective Hydrocephalus Advocate!

Hydrocephalus Advocacy Training Webinar! You’ll learn the four keys to effective advocacy, as well as what you can do at home to make a difference.

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Hydrocephalus Teen Webinar

Speak Up: Owning Your Condition Webinar Recording NOW Available!

Tess Jacobsen, presents tips, resources, and solutions on how to own your condition in this recent Webinar recording now available!

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Hydrocephalus Teens on Capitol Hill

Finding Your Voice: Advocacy Training for Youth Impacted by Hydrocephalus

Ever thought of talking with your local, state or national government representatives about hydrocephalus but you were afraid to start the conversation, didn’t know how, or thought you were too young? Our upcoming webinar is for you!

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Teens with Hydrocephalus

Finding a Voice

Two teens living with hydrocephalus and one sibling share their first conference experiences attending the Hydrocephalus Association’s biennial National Conference on Hydrocephalus.

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Looking Back…Moving Forward: Rising to the Challenge

As we continue our interview series commemorating the 30th anniversary of the Hydrocephalus Association, we sit down with former Board of Directors member and lifelong hydrocephalus advocate Mark Geiger.

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