In addition to celebrating Hydrocephalus Awareness month, the Hydrocephalus Association has been tracking the ins and outs of what’s happening on Capitol Hill. Read our latest advocacy update!
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
While impeachment still occupies the headlines, it’s not the only thing that happened this past December in Washington, DC. Amidst all the end-of-year chaos, Congress handed the hydrocephalus community a number of big wins!
Congress is currently debating a bill that could have major implications for hydrocephalus research through the Department of Defense CDMRP program.
HA played a key role at the annual NINDS Nonprofit Forum, which provides an opportunity for nonprofit leaders to engage in dialogue with NINDS staff.
In this webinar, attendees will learn how to educate others about their condition, receiving tips and practical ways to share their story. They will also learn how to take charge and advocate for themselves and the condition.
As a young adult, does my voice count? Can I make a difference in the hydrocephalus community? Listen to our latest webinar recording for youth to learn how.
Ever thought of talking with your local, state or national government representatives about hydrocephalus but you were afraid to start the conversation, didn’t know how, or thought you were too young? Our upcoming webinar is for you!
The Hydrocephalus Association is the nation’s largest and most widely respected organization dedicated to hydrocephalus … and you are part of our success. As we prepare to make 2014 a year of unprecedented accomplishments, please help us by renewing your membership support.
The Patient-Centered Outcomes Research Institute (PCORI) has announced openings on four Advisory Panels: Clinical Trails, Rare Disease, Assessment of Prevention, Diagnosis, and Treatment Options, and Improving Healthcare Systems.
For 30 years, the Hydrocephalus Association has served as the voice for one million patients, raising critical awareness and advocating for greater resources to fund research and better treatment options. We have accomplished so much but yet there is still much to do.
Matthew Schwerha, reporting for the Barrington Courier-Review, interviews one of our current Chicago WALK Chairs, Katie Cook, who’s son Conor has hydrocephalus. The Chicago WALK took place on August 18, 2013 at Soldier’s Field.
The National Institutes of Health (NIH) will hold four meetings open to the public to discuss the Brain Research through Advancing Innovative Neurotechnologies (BRAIN) Initiative. The Hydrocephalus Association encourages members of the hydrocephalus community to participate and ensure that our community is represented.