Posts Tagged ‘hydrocephalus advocacy’
Get the Hydrocephalus Scoop on Capitol Hill for February 2024
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
Read MoreHydrocephalus Association Unites Advocates for 2024 Rare Disease Week
Members from the Hydrocephalus Association Action Network came to Washington, DC, to participate in the Everylife Foundation for Rare Disease’s Rare Disease Week, which took place from February 25-28, 2024.
Read MoreGet the Hydrocephalus Scoop on Capitol Hill for January 2024
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
Read MoreThe Hydrocephalus Scoop on Capitol Hill for December 2023
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
Read MoreThe Hydrocephalus Scoop on Capitol Hill for November 2023
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
Read MoreThe Hydrocephalus Scoop on Capitol Hill for October 2023
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
Read MoreThe Hydrocephalus Scoop on Capitol Hill for September 2023
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
Read MoreThe Hydrocephalus Scoop on Capital Hill for May 2023
Right now, Congress has two important tasks as it works to increase the country’s debt limit and also come to agreement on how much money will be spent in next year’s federal budget. Here’s the scoop on what’s happening on hydrocephalus issues.
Read MoreCongressman Mike Levin Joins Congressional Hydrocephalus Caucus
Caucus helps families impacted by a brain condition that has no cure. Rep. Mike Levin (CA-49) has joined…
Read MoreCongresswoman Cindy Axne Joins Congressional Hydrocephalus Caucus
Caucus helps find solutions for the leading cause of brain surgery in children. Rep. Cindy Axne (IA-3) has…
Read MoreThe Hydrocephalus Scoop on Capitol Hill – Sept/Oct 2021
The Hydrocephalus Association has been busy protecting hydrocephalus-related research dollars in Congress, and working with members Congress to recognize National Hydrocephalus Awareness Month.
Read MoreThe Hydrocephalus Scoop on Capitol Hill for September-October 2020
In addition to celebrating Hydrocephalus Awareness month, the Hydrocephalus Association has been tracking the ins and outs of what’s happening on Capitol Hill. Read our latest advocacy update!
Read MoreThe Hydrocephalus Scoop on Capital Hill for August 2020
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
Read MoreAdvocacy Wins for the Hydrocephalus Community
While impeachment still occupies the headlines, it’s not the only thing that happened this past December in Washington, DC. Amidst all the end-of-year chaos, Congress handed the hydrocephalus community a number of big wins!
Read MoreThe Hydrocephalus Scoop on Capitol Hill
Believe it or not, the impeachment debate isn’t the only thing happening in Washington, DC! Here’s a quick rundown.
Read MorePartnering with Government to Shape Disease Research
HA played a key role at the annual NINDS Nonprofit Forum, which provides an opportunity for nonprofit leaders to engage in dialogue with NINDS staff.
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