HCRN

The Hydrocephalus Association wants to THANK YOU!

By filling out our online surveys, participating in the clinical research networks, and making donations, we are moving hydrocephalus research forward!

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Hydrocephalus Association Board Member Receives Prestigious Neurosurgical Award

Pediatric neurosurgeon Dr. John R. W. Kestle is awarded the Robert H. Pudenz Award for Excellence in Cerebrospinal Fluid (CSF) Physiology by Medtronic plc.

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Hydrocephalus Research

Scientific Networks are Changing the Research Landscape

Together the HA-funded HCRN, AHCRN and HANDS are changing how hydrocephalus research is conducted and accelerating research progress.

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Hydrocephalus Research Webinar Recording Available

Hydrocephalus Treatment Part I Webinar NOW AVAILABLE

The Hydrocephalus Association’s webinar, Hydrocephalus Treatment Part I, is available online! Dr. Riva-Cambrin discusses the alternative treatments to shunting.

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HCRN Researcher Dr. Jay Wellons Demonstrates Importance of Multi-Center Studies

How do surgeons make decisions? How do they stand by those decisions and evaluate themselves? The HCRN set out to answer these questions in their study.

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Dawn Mancuso, CEO, Hydrocephalus Association

A Season for Thanks

In the spirit of the Thanksgiving season, Hydrocephalus Association CEO Dawn Mancuso shares her heartfelt appreciation to our highly dedicated and committed volunteers.

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Update on the Adult Hydrocephalus Clinical Research Network

The Adult Hydrocephalus Clinical Research Network Planning Committee finalizes the policies and procedures for collecting data from adult hydrocephalus patients at its 6 clinical centers and reviews protocols for its first clinical study.

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Managing Children by a Simple Touch of the Hand

Can the touch of a hand to the head, an assessment tool thought to be time-honored and true for assessing pressure in the brain of an infant, also be consistent across physicians? Dr. John Wellons summarizes the findings of this recent study from the Hydrocephalus Clinical Research Network.

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Adult Hydrocephalus and the Development of a Research Network

Adult Hydrocephalus and the Development of a Research Network

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HCRN Included in US News & World Report 2013 Children’s Hospital Rankings

We would like to congratulate HCRN for being acknowledged for their participation in supporting the hospitals ranked in the 2013 ranking of children’s hospitals in the U.S. by US News & World Report. The acknowledgement of HCRN’s role in these institutions is a great affirmation of their work in the research around the causes and treatment of hydrocephalus.

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Dr. Jay Wellons Recruited to Lead Vanderbilt’s Division of Pediatric Neurosurgery

Dr. Jay Wellons has been recruited by Vanderbilt to lead their Division of Pediatric Neurosurgery. Dr. Wellons will continue his Investigator role with HCRN.

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The Unique Challenges of Adult Hydrocephalus

By Dawn Mancuso “The difference between children and adults is that they’re shorter – not dumber.” ― Mo Willems Normally, I would agree with Mr. Willems. We adults tend to underestimate the intelligence of the children around us, assuming that our life experiences make us somehow smarter.The Unique Challenges of Adult Hydrocephalus However, I’ve learned […]

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“Reason for Hope” Campaign Receives Big Boost

On June 21st, the Hydrocephalus Association (HA) announced the launch of its new $3 million dollar fundraising campaign called “Reason for Hope.”  We are very pleased to announce that we have received a commitment for a gift of $500,000 to that campaign.  The anonymous donor requested that these funds be used in support of HA’s […]

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“Reason for Hope” – HA’s New Research Campaign

By Tom Smith We are pleased to announce our new $3 million dollar fundraising campaign called “Reason for Hope”. Its purpose is to fund a five year Research Initiative plan intended to push hydrocephalus research forward. The funds will be used to implement three areas deemed crucial to eventually finding a cure for hydrocephalus. Stimulate […]

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NIH Supports Upcoming Hydrocephalus Research Conference

We are excited to announce that we have received a commitment from the National Institute of Neurological Disorders and Stroke (NINDS), the leading federal funder of brain science at the National Institutes of Health (NIH), to support our upcoming research conference entitled “Opportunities in Hydrocephalus Research: Pathways to Better Outcomes” in Seattle on July 9-11, […]

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HA Partners with HCRN to Promote Groundbreaking Clinical Research

By Dawn Mancuso, FASAE, CAE, Hydrocephalus Association CEO I am pleased to announce that the Hydrocephalus Association (HA) and the Hydrocephalus Clinical Research Network (HCRN) have signed a partnership agreement that will ensure the continuation of HCRN’s hydrocephalus research. We are honored to be partnered with the first and, so far, only clinical research network […]

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Opportunities in Hydrocephalus Research: Pathways to Better Outcomes

The Hydrocephalus Association, in conjunction with several other institutes and organizations, is pleased to announce a landmark research conference to be held July 9-11, 2012 in Seattle, WA. The title of the conference is “Opportunities in Hydrocephalus Research: Pathways to Better Outcomes.” The focus will be the discussion of current hydrocephalus research from several different […]

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Astronaut Mark Kelly to Headline our 12th National Conference

By Dawn Mancuso, HA CEO Captain Kelly’s biographical information generously provided by Keppler Speakers I am so excited about this news I just had to make it the subject of my blog this month – Captain Mark Kelly will be speaking at our hydrocephalus conference in June! Mark Kelly is an American astronaut, retired US […]

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The Hydrocephalus Association co-hosts the 2012 Research Conference

This July, the Hydrocephalus Association is co-hosting a ground-breaking research conference designed to bring together pre-eminent researchers and scientists to advance research around hydrocephalus. The purpose of this conference is to provide an update on the latest innovations and findings going on in hydrocephalus research, and to strategize about the next great breakthroughs. Scheduled for […]

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New HCRN Study Up and Running

By John Kestle, MD, MSc, FRCSC, FACS (re-posted with the author’s permission) The HCRN has successfully launched a new, potentially ground-breaking study across the Network. This study, titled Ventricular Involvement in Neuropsychological Outcomes in Pediatric Hydrocephalus, or VINOH for short, is funded by a Mentored Young Investigator award from the Hydrocephalus Association received by Dr. […]

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HA Chairman Featured in Xconomy.com

by Tom Smith Paul Gross, HA’s Board Chairman and former Microsoft  senior executive, was asked to contribute a blog to Xconomy.com regarding his recent appointment to the National Institute of Neurological Disorders and Stroke (NINDS) advisory council. Paul tells his personal story about his involvement in the hydrocephalus struggle. He describes his journey as a […]

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Hydrocephalus Clinical Research Network – Making Waves

The Hydrocephalus Clinical Research Network (HCRN) study on Shunt Protocols, headed by Dr. John Kestle, is making waves in the neurosurgical community.  Published in the Journal of Neurosurgery this month, it is an important paper that has already been made available to the public. Click here to read the full article. Also, Dr. Kestle was […]

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HCRN – Moving the Dials on Hydrocephalus Treatment

The Hydrocephalus Clinical Research Network (HCRN) is publishing a paper in the Journal of Neurosurgery.  This paper is about their program to standardize treatment of hydrocephalus in all of their centers and showed a significant drop in post-surgery infection rates. We would like to extend our congratulations and heartfelt thanks to the HCRN and the […]

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HCRN Holds Semi-Annual Meeting

The Hydrocephalus Clinical Research Network (HCRN) recently held a successful two-day meeting in Birmingham, Alabama.  They discussed new research strategies and provided updates on their current research projects. Of particular note were negotiating procedures for enrollment in a study into “best care” for neonatal patients with intraventricular hemorrhage as well as a study launched with […]

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HCRN Developing New Study, Could Lead to New Test for Hydrocephalus

Dr. Dave Limbrick, MD, PhD, a neurosurgeon from St. Louis Children’s Hospital — a new member of the Hydrocephalus Clinical Research Network (HCRN) — is conducting a study that seeks to identify bio-markers for hydrocephalus. The study is in its early stages, and you can read more about it, along with other HCRN news, here.

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Hydrocephalus Research Update – Announcing New Mentored Young Investigator Grants

“The Hydrocephalus Association is pleased to announce its Mentored Young Investigator research awardees for 2010.” Jay Riva-Cambrin, M.D., a pediatric neurosurgeon of the University of Utah and Primary Children’s Medical Center will lead a multi-center study across the Hydrocephalus Clinical Research Network (HCRN) study linking MRI to established and novel measures of neuropsychological outcomes in […]

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Pittsburgh and St. Louis children’s hospitals join HCRN

by Paul Gross Our partners at HCRN have just made a big announcement — that they are adding two new pediatric centers to their network. The network now includes Toronto’s SickKids, Pittsburgh’s Children’s Hospital of Pittsburgh, Birmingham’s Children’s Hospital of Alabama, Houston’s Texas Children’s Hospital, St. Louis is Children’s Hospital, Utah’s primary Children’s Hospital and […]

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From the 5th International Hydrocephalus Workshop!

Our friends over at HCRN have been busy with some exciting work that we wanted to make sure our readers also know about. John Kestle writes about the 5th International Hydrocephalus Workshop and meeting of the International Society for Hydrocephalus and CSF Disorders. Check it out!

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