Willow Bolton decided to hike the Appalachian Trail to raise awareness and funds for hydrocephalus. Read about what inspired her journey.
HydroDad Bennett Wilson wanted a creative and fun way to raise awareness and funds for hydrocephalus research & programs, so he built a Hydrocephalus Racecar! Learn more about his racecar journey and how you can help support the Hydrocephalus Racing Team at their first race!
TTC Member Megan Rivkin challenges young people to get involved in advocating and fundraising to increase research efforts and public awareness of hydrocephalus.
As part of our interview series commemorating our 30th anniversary, this week Randi Corey, our National Director of Special Events and Volunteer Support, sits down with Cheryl Merrell, our Hydrocephalus Association WALK Chair in Fresno, California, to talk about volunteering for HA, starting and chairing a HA WALK, and other thoughts about the organization.
Randi Corey, Director of Special Events & Volunteer Support for the Hydrocephalus Association, is wrapping up our Veteran WALK Chairs’ annual meeting held this weekend in Charlotte, NC.
As the season of giving approaches, the Hydrocephalus Association encourages you to give the gift of Hope this holiday by supporting life-saving research and patient education programs for our community.
Strength. Perseverance. Endurance. Spirit. Do these traits sound familiar? Of course, these are all words that describe individuals touched by hydrocephalus. These words also describe Mark Paulissen and Mary Sodano. Their spirit of adventure and love for bicycling has spurred them onto a journey of a lifetime. Sponsored by Celsius drink company, Mark and Mary have challenged […]
Mark Paulissen and Mary Sodano are preparing to embark on a 2500 mile bike ride journey ride for a cause near to their hearts, hydrocephalus. To read the full article, click here.
The Smyrna-Clayton Sun-Times highlights the upcoming Delaware Hydrocephalus WALK which will take place on September 22, 2012 at Smyrna High School. To read the full article, click here.
Connecticut News Channel WTNH spotlights the upcoming Middlebury WALK that will take place on October 6, 2012 at Meadowview Park. To read the full article, click here.
The Hydrocephalus Association is pleased to announce Aisha Heath, CFRE as the new Director of Development. Ms. Heath has devoted her professional career to raising awareness and resources for national organizations supporting the health and well-being of children and families. She has worked in the non-profit sector for over 12 years, fundraising for a variety […]
On June 21st, the Hydrocephalus Association (HA) announced the launch of its new $3 million dollar fundraising campaign called “Reason for Hope.” We are very pleased to announce that we have received a commitment for a gift of $500,000 to that campaign. The anonymous donor requested that these funds be used in support of HA’s […]
By Tom Smith We are pleased to announce our new $3 million dollar fundraising campaign called “Reason for Hope”. Its purpose is to fund a five year Research Initiative plan intended to push hydrocephalus research forward. The funds will be used to implement three areas deemed crucial to eventually finding a cure for hydrocephalus. Stimulate […]
Our biennial hydrocephalus conference is one of the traditional cornerstones of the Hydrocephalus Association’s commitment to meeting the far ranging needs of our community. This year, from June 27th through July 1st, the HA invites you to join us in Bethesda, MD at our the 12th National Conference on Hydrocephalus. Education, education, education… Hydrocephalus is […]
By Dawn Mancuso, HA CEO Captain Kelly’s biographical information generously provided by Keppler Speakers I am so excited about this news I just had to make it the subject of my blog this month – Captain Mark Kelly will be speaking at our hydrocephalus conference in June! Mark Kelly is an American astronaut, retired US […]
By Randi Corey, National Director of Special Events and Volunteer Support At the 2012 Veteran WALK Chair’s meeting Hydrocephalus Association introduced its new School WALK program. The program was the brainchild of Long Island WALK Co-Chair, Mia Padron. The event Mia coordinated last fall raised over $4,000 with 114 kids participating in their own “mini-WALK” […]
By Dawn Mancuso, HA CEO A very famous author from across the pond (hint: “…that which we call a rose by any other name would smell as sweet”) once asked “What’s in a name?” As I travel to meetings on behalf of the Hydrocephalus Association (HA), and as I talk to more and more people […]
The Hydrocephalus Association is dedicated to helping families and individuals whose lives have been touched by hydrocephalus and the professionals who work diligently to create a brighter future through medical excellence and research. There are many ways to show your love and care to the community. We invite you to: Register to attend […]
June 27-July 1, 2012 Bethesda North Marriott Hotel & Conference Center, Bethesda, MD The goal of the conference is to provide tools and connections to address the medical, educational and social challenges of living with hydrocephalus and to provide the opportunity for an enjoyable get together! Hydrocephalus is a chronic condition for which there is […]
Thinking About Starting a Hydrocephalus Association (HA) WALK? My Experience Chairing a New HA WALK!
By Rachel Inskeep, Chair – 2011 Inaugural Wichita WALK for HA Hello prospective WALK chairs! My name is Rachel Inskeep from Wichita, KS. I am 35 and I work full time as a registered respiratory therapist at a local hospital. My husband and I have been married for 8 years; we have a 15-year old son […]
By Jordan Faigen, National Campaigns Manager Are you looking for great ways to raise money as a WALK participant? Eileen Rodger, the HA South Florida WALK Chair, spent an evening on the ice and raised over $1,000 in a matter of hours. Read her inspiring story and explore your community for creative fundraising opportunities, then […]
By Jordan Faigen, National Campaigns Manager While our HA WALK events are reaching new cities year after year, many times families and individuals still cannot attend even the closest event. We started our Virtual WALK program last year and we are pleased to announce that we are launching our 2012 Virtual WALK website! By registering […]
There is an opportunity to submit a short video to The American Academy of Neurology Foundation telling your story about why more research is needed to find a cure to hydrocephalus. Please read the following on the guidelines and deadline for submission. The American Academy of Neurology Foundation is calling on all neurology […]
By Randi Corey, HA Director of Special Events 2011 has been a spectacular year for HA WALKs and Special Events. HA’s 2011 WALKs and Special Event season raised over $1,000,000! This is a 55% increase over last year’s total. And all of it is due to HA’s WALK Chairs and all of the volunteers who […]
By Randi Corey, National Director of Special Events As the year winds down Hydrocephalus Association would like to recognize those volunteers who conduct fundraising events for HA throughout the year. These volunteers initiate the event, plan and organize it, market it and implement it – and all in support of HA’s mission! These special events […]
By Jordan Faigen, National Campaigns Manager Throughout the 2011 WALK season I have worked with over 60 WALK Chairs to coordinate 30 plus events all over the country. The Hydrocephalus Association’s (HA) WALK program started in 1983 with a few families walking across the Bay Bridge in San Francisco, CA to support each other and […]
By Elijah Lawrence I was diagnosed with hydrocephalus before I was born. When I was four days old, I had my first shunt put in. Since then, I have had four revisions, but I have had my current shunt for five years. I am treated at the Children’s National Medical Center in Washington D.C. I […]
by Randi Corey, HA Director of Special Events Thank you! As we enter into the heaviest part of our annual Hydrocephalus WALK season we extend special thanks to all of our WALK Chairs, our Team Captains and our walkers! Your participation in the WALK program helps to ensure Hydrocephalus Association (HA) can continue its vital […]
The Hydrocephalus Association (HA) proudly introduces you to some of our outstanding volunteer leaders – the 2011 WALK and Special Event Chairs! These men and women spend countless hours coordinating HA WALKs and special events in their communities. They possess great leadership, passion and initiative which in turn allows HA to increase its investment in […]
By Lisa Sun, HA Administrative and Program Assistant Our Boozle bear, who has hydrocephalus, was created by Dory Kranz and Sarah Zadorozynj. Boozle is used by doctors, nurses and parents to teach children about hydrocephalus and how shunting works. Boozle comes with a detachable ventriculo-peritoneal (VP) shunt which is donated by Codman. Anyone can learn […]
Once again, the Hydrocephalus Association has qualified for inclusion in the Combined Federal Campaign (CFC), the federal government’s workplace giving program. If you are a federal employee you can designate your contribution, or part of it, to the Hydrocephalus Association by designating your contribution to HA with code #10066.
By Jenna Ellis, Co-Chair of HA’s Detroit, MI WALK In the past, (hydrocephalus) WALK Chairs have gotten to know each other through emails and brief encounters at conferences. There was always a feeling that more time was needed to talk about WALK. This year veteran WALK Chairs from all over the United States gathered in […]
By Rick Smith, Acting CEO, Hydrocephalus Association I’m pleased and proud to forward some great news for the Hydrocephalus Association, and its many volunteers and donors: the National Health Council (NHC), the nation’s largest association of national health related organizations, has renewed HA’s Certification for Charitable Accountability. The NHC requires all of its member organizations […]
by Christian Karch The Inaugural Hydrocephalus Association Snowshoe WALK on March 12 in Steamboat Springs, Colorado was a great success! The WALK brought together the hydrocephalus community and generated quite a bit of media exposure, raising awareness through excellent media coverage including live TV, a live radio interview, and a front page article in the […]
By Randi Corey, HA Director of Special Events On Saturday, Feb. 26th at 8:30 am, I stood looking across the room and saw 13 volunteers of all ages, ethnicities, and backgrounds looking back at me expectantly. They had come from cities all across the nation to be here. Many of them overcoming airline delays and […]
The Inaugural Snowshoe Event in Steamboat Springs, CO was featured in the latest edition of Steamboat Today. It’s an excellent piece that talks about hydrocephalus, the state of research and treatment and features the event organizer Christian Karch, his wife Laura and daughter Sofia who is living with hydrocephalus. Click here to read the article. […]
Launching a new WALK! by Randi Corey, HA Director of Special Events Although most HA WALKs are scheduled for the fall, in more than 30 cities across the nation HA volunteer Chairs are hard at work, getting their WALKs underway! (All HA WALKs are totally volunteer initiated and coordinated – our volunteer Chairs are HA’s […]
On August 20th, 2011 Team Hydro will participate in the first annual Lake Michigan Sharkfest Swim in downtown Chicago. The team will race in memory of Kate Finlayson, who passed away in November of 2010 from complications related to her hydrocephalus. Funds raised from the team’s efforts support the Kate Finlayson Memorial Research Grant which […]
The ABC’s of Corporate Sponsorship by Randi Corey, HA Director of Special Events The 2011 WALK season is already underway, which means that every Hydrocephalus Association WALK is actively seeking corporate sponsorship. Where do you work? Where does your spouse work? Where do other family members (even extended family) work? Because, that’s where you start […]
Double your donations…with Matching Gifts! by Randi Corey, Hydrocephalus Association Director of Special Events Thanks to many of you the Hydrocephalus Association had a significant increase in matching gifts for the 2010 WALKs – a great trend that we would like to sustain! Matching gifts…you may have heard the term before but may not be entirely […]