fundraising

Two Friends Run 200 Mile Race to Find a Cure for Hydrocephalus

How far would you run to raise awareness and funds for hydrocephalus research? Brett Bauer and buddy Matt Campbell will run 200 miles!

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Hiking for a Cure! An Adventure Seeker Takes on the Appalachian Trail

Willow Bolton decided to hike the Appalachian Trail to raise awareness and funds for hydrocephalus. Read about what inspired her journey.

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Three-Year-Old Dean “The Machine” Becomes Team Captain of First Hydrocephalus Endurance Racecar!

HydroDad Bennett Wilson wanted a creative and fun way to raise awareness and funds for hydrocephalus research & programs, so he built a Hydrocephalus Racecar! Learn more about his racecar journey and how you can help support the Hydrocephalus Racing Team at their first race!

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Teen with money

Money, Money, Money – Helping Out Without Emptying Wallets

TTC Member Megan Rivkin challenges young people to get involved in advocating and fundraising to increase research efforts and public awareness of hydrocephalus.

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Looking Back…Moving Forward: Fresno Says YES to Our Hydrocephalus WALK

As part of our interview series commemorating our 30th anniversary, this week Randi Corey, our National Director of Special Events and Volunteer Support, sits down with Cheryl Merrell, our Hydrocephalus Association WALK Chair in Fresno, California, to talk about volunteering for HA, starting and chairing a HA WALK, and other thoughts about the organization.

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Happening NOW: Veteran WALK Chair Annual Meeting

Randi Corey, Director of Special Events & Volunteer Support for the Hydrocephalus Association, is wrapping up our Veteran WALK Chairs’ annual meeting held this weekend in Charlotte, NC.

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So Many Reasons to be Thankful. So Many Ways to Give.

As the season of giving approaches, the Hydrocephalus Association encourages you to give the gift of Hope this holiday by supporting life-saving research and patient education programs for our community.

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Raising Awareness…From Coast to Coast!

Strength. Perseverance. Endurance. Spirit. Do these traits sound familiar? Of course, these are all words that describe individuals touched by hydrocephalus. These words also describe Mark Paulissen and Mary Sodano. Their spirit of adventure and love for bicycling has spurred them onto a journey of a lifetime. Sponsored by Celsius drink company, Mark and Mary have challenged […]

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2500 Mile Bike Ride will Benefit the Hydrocephalus Association

Mark Paulissen and Mary Sodano  are preparing to embark on a 2500 mile bike ride journey ride for a cause near to their hearts, hydrocephalus. To read the full article, click here.

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Delaware’s Hydrocephalus WALK Highlighted in the Smyrna-Clayton Sun-Times

The Smyrna-Clayton Sun-Times highlights the upcoming Delaware Hydrocephalus WALK which will take place on September 22, 2012 at Smyrna High School. To read the full article, click here.

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CT News Channel WTNH Spotlights the Upcoming Middlebury WALK

Connecticut News Channel WTNH spotlights the upcoming Middlebury WALK that will take place on October 6, 2012 at Meadowview Park. To read the full article, click here.

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Welcome Aisha Heath, CFRE

The Hydrocephalus Association is pleased to announce Aisha Heath, CFRE  as the new Director of Development. Ms. Heath has devoted her professional career to raising awareness and resources for national organizations supporting the health and well-being of children and families. She has worked in the non-profit sector for over 12 years, fundraising for a variety […]

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“Reason for Hope” Campaign Receives Big Boost

On June 21st, the Hydrocephalus Association (HA) announced the launch of its new $3 million dollar fundraising campaign called “Reason for Hope.”  We are very pleased to announce that we have received a commitment for a gift of $500,000 to that campaign.  The anonymous donor requested that these funds be used in support of HA’s […]

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“Reason for Hope” – HA’s New Research Campaign

By Tom Smith We are pleased to announce our new $3 million dollar fundraising campaign called “Reason for Hope”. Its purpose is to fund a five year Research Initiative plan intended to push hydrocephalus research forward. The funds will be used to implement three areas deemed crucial to eventually finding a cure for hydrocephalus. Stimulate […]

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Only One Week Away!!! 12th National Conference on Hydrocephalus! What it’s all about!

Our biennial hydrocephalus conference is one of the traditional cornerstones of the Hydrocephalus Association’s commitment to meeting the far ranging needs of our community. This year, from June 27th through July 1st, the HA invites you to join us in Bethesda, MD at our the 12th National Conference on Hydrocephalus. Education, education, education… Hydrocephalus is […]

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Astronaut Mark Kelly to Headline our 12th National Conference

By Dawn Mancuso, HA CEO Captain Kelly’s biographical information generously provided by Keppler Speakers I am so excited about this news I just had to make it the subject of my blog this month – Captain Mark Kelly will be speaking at our hydrocephalus conference in June! Mark Kelly is an American astronaut, retired US […]

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New HA School WALK Program, a Win-Win

By Randi Corey, National Director of Special Events and Volunteer Support At the 2012 Veteran WALK Chair’s meeting Hydrocephalus Association introduced its new School WALK program.  The program was the brainchild of Long Island WALK Co-Chair, Mia Padron.   The event Mia coordinated last fall raised over $4,000 with 114 kids participating in their own “mini-WALK” […]

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re•search /ˈrēˌsərCH/

By Dawn Mancuso, HA CEO A very famous author from across the pond (hint: “…that which we call a rose by any other name would smell as sweet”) once asked “What’s in a name?” As I travel to meetings on behalf of the Hydrocephalus Association (HA), and as I talk to more and more people […]

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Happy Valentine’s Day! Let’s Show we Care!

The Hydrocephalus Association is dedicated to helping families and individuals whose lives have been touched by hydrocephalus and the professionals who work diligently to create a brighter future through medical excellence and research. There are many ways to show your love and care to the community. We invite you to:     Register to attend […]

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Register Today for the 12th National Conference on Hydrocephalus!

June 27-July 1, 2012 Bethesda North Marriott Hotel & Conference Center, Bethesda, MD The goal of the conference is to provide tools and connections to address the medical, educational and social challenges of living with hydrocephalus and to provide the opportunity for an enjoyable get together! Hydrocephalus is a chronic condition for which there is […]

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Thinking About Starting a Hydrocephalus Association (HA) WALK? My Experience Chairing a New HA WALK!

By Rachel Inskeep, Chair – 2011 Inaugural Wichita WALK for HA Hello prospective WALK chairs!  My name is Rachel Inskeep from Wichita, KS.  I am 35 and I work full time as a registered respiratory therapist at a local hospital.  My husband and I have been married for 8 years; we have a 15-year old son […]

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Hydrocephalus Awareness Hits the Ice

By Jordan Faigen, National Campaigns Manager Are you looking for great ways to raise money as a WALK participant? Eileen Rodger, the HA South Florida WALK Chair, spent an evening on the ice and raised over $1,000 in a matter of hours. Read her inspiring story and explore your community for creative fundraising opportunities, then […]

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Join the 2012 Virtual WALK Community Today

By Jordan Faigen, National Campaigns Manager While our HA WALK events are reaching new cities year after year, many times families and individuals still cannot attend even the closest event. We started our Virtual WALK program last year and we are pleased to announce that we are launching our 2012 Virtual WALK website! By registering […]

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2012 Neuro Film Festival

There is an opportunity to submit a short video to The American Academy of Neurology Foundation telling your story about why more research is needed to find a cure to hydrocephalus. Please read the following on the guidelines and deadline for submission.     The American Academy of Neurology Foundation is calling on all neurology […]

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Special Volunteers Conducting Special Events!

By Randi Corey, HA Director of Special Events 2011 has been a spectacular year for HA WALKs and Special Events. HA’s 2011 WALKs and Special Event season raised over $1,000,000! This is a 55% increase over last year’s total. And all of it is due to HA’s WALK Chairs and all of the volunteers who […]

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Special Volunteers Conducting Special Events!

By Randi Corey, National Director of Special Events As the year winds down Hydrocephalus Association would like to recognize those volunteers who conduct fundraising events for HA throughout the year.  These volunteers initiate the event, plan and organize it, market it and implement it – and all in support of HA’s mission!  These special events […]

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2011 Hydrocephalus Association WALK Highlights

By Jordan Faigen, National Campaigns Manager Throughout the 2011 WALK season I have worked with over 60 WALK Chairs to coordinate 30 plus events all over the country. The Hydrocephalus Association’s (HA) WALK program started in 1983 with a few families walking across the Bay Bridge in San Francisco, CA to support each other and […]

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Elijah Speaks Up About Hydrocephalus!

By Elijah Lawrence I was diagnosed with hydrocephalus before I was born. When I was four days old, I had my first shunt put in. Since then, I have had four revisions, but I have had my current shunt for five years. I am treated at the Children’s National Medical Center in Washington D.C. I […]

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HYDROCEPHALUS WALK TIP OF THE MONTH – August 2011

by Randi Corey, HA Director of Special Events Thank you! As we enter into the heaviest part of our annual Hydrocephalus WALK season we extend special thanks to all of our WALK Chairs, our Team Captains and our walkers! Your participation in the WALK program helps to ensure Hydrocephalus Association (HA) can continue its vital […]

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Hydrocephalus Association WALK and Special Event Partner Profiles

The Hydrocephalus Association (HA) proudly introduces you to some of our outstanding volunteer leaders – the 2011 WALK and Special Event Chairs!  These men and women spend countless hours coordinating HA WALKs and special events in their communities.  They possess great leadership, passion and initiative which in turn allows HA to increase its investment in […]

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Meet Boozle Bear, A Wonderful Educational Tool

By Lisa Sun, HA Administrative and Program Assistant Our Boozle bear, who has hydrocephalus, was created by Dory Kranz and Sarah Zadorozynj. Boozle is used by doctors, nurses and parents to teach children about hydrocephalus and how shunting works. Boozle comes with a detachable ventriculo-peritoneal (VP) shunt which is donated by Codman. Anyone can learn […]

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Hydrocephalus Association Again Part of Combined Federal Campaign

Once again, the Hydrocephalus Association has qualified for inclusion in the Combined Federal Campaign (CFC), the federal government’s workplace giving program. If you are a federal employee you can designate your contribution, or part of it, to the Hydrocephalus Association by designating your contribution to HA with code #10066.

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Veteran Hydrocephalus WALK Chairs Training – A Meeting of Minds

By Jenna Ellis, Co-Chair of HA’s Detroit, MI WALK In the past, (hydrocephalus) WALK Chairs have gotten to know each other through emails and brief encounters at conferences. There was always a feeling that more time was needed to talk about WALK.  This year veteran WALK Chairs from all over the United States gathered in […]

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Hydrocephalus Association Makes the Grade…again

By Rick Smith, Acting CEO, Hydrocephalus Association I’m pleased and proud to forward some great news for the Hydrocephalus Association, and its many volunteers and donors: the National Health Council (NHC), the nation’s largest association of national health related organizations, has renewed HA’s Certification for Charitable Accountability. The NHC requires all of its member organizations […]

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Hydrocephalus Snowshoe WALK a Hit

by Christian Karch The Inaugural Hydrocephalus Association Snowshoe WALK on March 12 in Steamboat Springs, Colorado was a great success! The WALK brought together the hydrocephalus community and generated quite a bit of media exposure, raising awareness through excellent media coverage including live TV, a live radio interview, and a front page article in the […]

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New Hydrocephalus WALK Chair’s Training Meeting – A Study in Dedication and Commitment

By Randi Corey, HA Director of Special Events On Saturday, Feb. 26th at 8:30 am, I stood looking across the room and saw 13 volunteers of all ages, ethnicities, and backgrounds looking back at me expectantly. They had come from cities all across the nation to be here.  Many of them overcoming airline delays and […]

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Hydrocephalus Snowshoe Event Makes Local Paper

The Inaugural Snowshoe Event in Steamboat Springs, CO was featured in the latest edition of Steamboat Today.  It’s an excellent piece that talks about hydrocephalus, the state of research and treatment and features the event organizer Christian Karch, his wife Laura and daughter Sofia who is living with hydrocephalus. Click here to read the article. […]

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HYDROCEPHALUS WALK TIP OF THE MONTH – February 2011

Launching a new WALK! by Randi Corey, HA Director of Special Events Although most HA WALKs are scheduled for the fall, in more than 30 cities across the nation HA volunteer Chairs are hard at work, getting their WALKs underway! (All HA WALKs are totally volunteer initiated and coordinated – our volunteer Chairs are HA’s […]

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Team Hydro Takes Their Goggles to Chicago

On August 20th, 2011 Team Hydro will participate in the first annual Lake Michigan Sharkfest Swim in downtown Chicago. The team will race in memory of Kate Finlayson, who passed away in November of 2010 from complications related to her hydrocephalus. Funds raised from the team’s efforts support the Kate Finlayson Memorial Research Grant which […]

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HYDROCEPHALUS WALK TIP OF THE MONTH – January 2011

The ABC’s of Corporate Sponsorship by Randi Corey, HA Director of Special Events The 2011 WALK season is already underway, which means that every Hydrocephalus Association WALK is actively seeking corporate sponsorship.  Where do you work?  Where does your spouse work?  Where do other family members (even extended family) work?  Because, that’s where you start […]

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