ETV CPC

Endoscopic Third Ventriculostomy

ETV-CPC for the treatment of infants with hydrocephalus: Predicting Success

The Hydrocephalus Clinical Research Network (HCRN) conducted a study to determine which babies under two years old with hydrocephalus have the best chance of success with an ETV-CPC procedure. In her blog, Dr. Jenna Koschnitzky, National Director of Research Programs, explains why the findings of this study are important when determining if a baby under two years old should receive a shunt or undergo the ETV-CPC procedure.

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qFamily with daughter with hydrocephalus

Hydrocephalus Receives National Attention

TLC aired a feature piece on ‪hydrocephalus that featured three families – Roona in India, Lyndos in Uganda, and Parker in Oklahoma.

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Hydrocephalus Research Webinar Recording Available

Hydrocephalus Treatment Part I Webinar NOW AVAILABLE

The Hydrocephalus Association’s webinar, Hydrocephalus Treatment Part I, is available online! Dr. Riva-Cambrin discusses the alternative treatments to shunting.

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Upcoming Webinar: Hydrocephalus Treatment Part I

In the next webinar hosted by the Hydrocephalus Association, Dr. Riva-Cambrin will provide a general overview of ETV and ETV/CPC.

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National Hydrocephalus Conference 2014

2014 Conference – Parent Track Highlights

The National Conference on Hydrocephalus offers parents an opportunity to connect with other parents, speak directly with experts on various topics about raising a child with hydrocephalus – social, emotional, educational, financial, and medical – and watch their children interact with other children living with hydrocephalus. Join us in Portland, Oregon, July 9-11, 2014.

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National Hydrocephalus Conference 2014

2014 Conference Update – Preliminary Schedule Now Available!

The Hydrocephalus Association staff is happy to announce the release of our preliminary schedule for our upcoming 13th National Conference on Hydrocephalus, Community. Clarity. Cure., July 9-11, 2014, in Portland, OR.

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Vanderbilt Doctor Travels to Uganda to Learn ETV/CPC

Dr. Rob Naftel of Vanderbilt University traveled to Uganda to learn the new surgical treatment for hydrocephalus, endoscopic third ventriculostomy (ETV) combined with choroid plexus cauterization (CPC). Training under Dr. Benjamin Warf of Boston Children’s Hospital, who pioneered the procedure, Dr. Naftel will be able to apply the technique to his current practice, expanding a multi-site outcomes research study led by the Hydrocephalus Clinical Research Network (HCRN), which Vanderbilt joined in 2013.

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