Endoscopic Third Ventriculostomy
Is an ETV an option after shunt failure? A recent review of 15 studies reported on the effectiveness of endoscopic third ventriculostomy (ETV) after shunt failure in children. Dr. Jenna Koschnitzky, National Director of Research Programs, summarizes the findings.
The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Teens Take Charge Scholarship Recipients.
The Hydrocephalus Association’s annual Vision Dinner will serve as the catalyst for a focused research initiative that aims to prevent or minimize the development of hydrocephalus after a brain bleed.
Members of the Virginia Hydrocephalus Association Community Network meet Governor Terry McAuliffe and share their personal hydrocephalus stories.
Dr. Jay Riva-Cambrin of Alberta Children’s Hospital is featured in Calgary Metro for his use of the Endoscopic Third Ventriculostomy with Choroid Plexus Cauterization in infants born with hydrocephalus.
The National Conference on Hydrocephalus takes place June 16 – 19th in Minneapolis, Minnesota. Join us! Here are tips to help make it affordable.
SAVE THE DATE: The 14th National Conference on Hydrocephalus will take place in Minneapolis, Minnesota, on June 16-19, 2016! Our patient-centered conferences empower all of us to understand, seek out and put into place the care, programs and services that will meet our needs now and well into the future.
The Hydrocephalus Association’s webinar, Hydrocephalus Treatment Part I, is available online! Dr. Riva-Cambrin discusses the alternative treatments to shunting.
At the age of 25, Haylea is thinking about how she will make a lasting impact in the hydrocephalus community through her volunteerism and estate planning.
Endoscopic Third Ventriculostomy (ETV) in Children: Prospective, Multicenter Results from the Hydrocephalus Clinical Research Network (HCRN)
What determines the success of an ETV for treating hydrocephalus? Dr. Kulkarni shares their initial findings gathered from across HCRN centers.
Tomorrow evening Craig and Vicki Brown will host the 2nd annual Vision Dinner in New York City. The event is featured in an October 10, 2014, article in The Greenville News titled, “Drive Owner Hosts Rare Disease Fundraiser.”
Lisa Jasper shares the story of her 35 year old son, Tommy, and his complicated journey with hydrocephalus. Tommy’s spirit and Lisa’s honesty come through in this touching piece.
Counterbalancing articles in AANS Neurosurgeon about changes in the treatment of hydrocephalus and the impact of new procedures going forward make for interesting reading about the evolution of hydrocephalus treatment.
Haylea Blank shares the take-aways from attending two Hydrocephalus Association national conferences that have helped her manage her hydrocephalus into adulthood.
Summary of the Hydrocephalus Clinical Research Network (HCRN) investigators and coordinators’ Fall meeting, November 7- 8, in Salt Lake City.
The Hydrocephalus Association’s First Annual Vision Dinner, “A Time for Awareness; The Hope for a Cure,” unites politicians, neurosurgeons, scientists, advocates, and business leaders to raise the public profile of hydrocephalus and to share the current research initiatives and successes around the condition.
The International Society for Hydrocephalus and CSF Disorders (ISHCSF) held its 5th annual meeting June 28th – July 2nd in Athens, Greece. The meeting brought together hydrocephalus researchers from around the world to discuss the current state of research for all types of hydrocephalus.
The Hydrocephalus Association discusses Medical Alert IDs and their importance for hydrocephalus patients in an emergency situation – without proper identification, common symptoms, such as headaches, dizziness, sleepiness and vomiting can be misdiagnosed and appropriate care could be jeopardized or delayed.
Tina Daniels, Hydrocephalus Association Support Group leader in Owasso, OK, shares her experiences living with hydrocephalus and her decision to lead a support group.
As a follow up to the previous article on the anatomy and physiology of the brain, the Hydrocephalus Association would like to continue our learning and explore the terms we so often hear when dealing with hydrocephalus.
Our Teens Take Charge (TTC) program provides support, training, awareness and fundraising opportunities so that teens can be an effective force in making their stories heard. As part of our interview series in commemoration of our 30th anniversary, our intern, Jessica Ford, sits down with Haylea Lynn Blank, to talk about growing up with hydrocephalus and her thoughts on the Hydrocephalus Association.
As we look back and commemorate 30 years of supporting, educating, connecting and informing families, we ask where we would be without our volunteers. Our volunteer leaders across the country have helped weave the rich tapestry of our HA history. This week we sit down with our Virginia Support Group Leader, Annie Mason.
Hydrocephalus Clinical Research Network (HCRN) investigators Drs Jay Riva-Cambrin and Curtis Rozelle are in Africa learning how to do Dr. Ben Warf’s new ETV procedure that includes choroid plexus cauterization (CPC). This is an exciting step in training prior to studying the treatment in the network.
My name is Tracy, and I was born with hydrocephalus. My condition went undetected for 23 years, until one morning I woke up and drove to work and was not able to get out of my car. Read more about Tracy’s journey with hydrocephalus.
The NINDS NIH posted a video on Dr. Benjamin Warf and his MacArthur Fellowship Award for his contribution to hydrocephalus research and treatment.
The Millennium Research Group (MRG) – the global authority on medical technology market intelligence – has completed a study that shows that the the European neurosurgical and neurovascular medical device market will grow only slowly through 2016. Treatments such as endoscopic third ventriculostomy (ETV) are contributing to slowed growth for shunt manufacturers.