dementia
Eau Claire Woman Shares Story In Hopes of Educating Others
After struggling with a declining interest in activities that she loved, decreasing mobility, and urinary incontinence, Dorothy Sorlie was finally diagnosed with Normal Pressure Hydrocephalus (NPH). A recent article in the Leader-Telegram detailed her journey.
New Insights into Normal Pressure Hydrocephalus
A recently published study attempts to shed light on the long term outcomes of untreated iNPH by examining mortality rates, risk of dementia, and symptom progression in individuals with ventricular enlargement.
We’re Partnering With The Mighty!
We’re thrilled to announce a new partnership with The Mighty where stories of individuals living with hydrocephalus will be featured.
Like Father, Like Son: An NPH Journey
One man watched his father decline into a state of confusion until diagnosed with Normal Pressure Hydrocephalus. Then he found himself traveling the same road.
Double Your Impact for Adult Hydrocephalus Research!
Donate now through October 31st and your gift will be matched dollar for dollar by a generous donor who will give up to $100,000 to further research into adult hydrocephalus!
2016 Member Impact Report
I hope you take great pride in all that we continue to accomplish with your support.
Senate Demonstrates Support for Continued Research for Veterans Living with Hydrocephalus
The hydrocephalus community claimed a big victory on Capitol Hill when we helped ensure Congress did not restrict medical research for veterans living with hydrocephalus.
The Power of Sharing
I look forward to going back to the hydrocephalus conference to reconnect with old friends, meet new friends and learn the latest and greatest information…
Coping with Normal Pressure Hydrocephalus
Ontario man shares his journey with Normal Pressure Hydrocephalus and the support he received to cope with the diagnosis.
The Difficulties of Diagnosing Normal Pressure Hydrocephalus
Approximately 10% of those diagnosed with Alzheimer’s or dementia are living with Normal Pressure Hydrocephalus. Why is it so often mis- or undiagnosed?
Health System Takes Steps to Educate Medical Professionals on Often Misdiagnosed Brain Condition
The Greenville Health System (GHS) Neurological Institute will host a symposium on normal pressure hydrocephalus (NPH), taking bold steps forward to raise awareness and knowledge about NPH to the medical professionals serving as the first line of defense for early and proper diagnosis.
Chicago Med Raises Awareness of Treatable Dementia
On November 24, 2015, NBC’s Chicago Med aired an episode which highlighted Normal Pressure Hydrocephalus (NPH), often referred to as a treatable dementia.
It’s Time to Start Taking Action!
It’s time to start energizing our hydrocephalus grassroots network! Here are a few assignments for you to help make you a star advocate.
Hydrocephalus Awareness Infographic
Raise hydrocephalus awareness by sharing this infographic!
The Miami Herald Raises Awareness of Normal Pressure Hydrocephalus
When our traditional notions of aging can cloud our ability to ask questions early and often for our loved ones…
Grey’s Anatomy Highlights Misdiagnosis of Normal Pressure Hydrocephalus
On Thursday, March 19, 2015, Grey’s Anatomy aired an episode which highlighted Normal Pressure Hydrocephalus and raised awareness of a “treatable dementia.”
U.S. News & World Report Features Normal Pressure Hydrocephalus
Is it dementia or Normal Pressure Hydrocephalus. U.S. News & World Report reports on the importance of proper diagnosis of this treatable dementia.
FOX News Educates the Public on Normal Pressure Hydrocephalus
With it’s recent story on Normal Pressure Hydrocephalus, Fox News plays an important role in our continued efforts to educate the public and raise awareness about hydrocephalus and normal pressure hydrocephalus to a large national audience.
Study States Concussions Lead to Increased Risk of Dementia in Adults
A new study has found that there is an increased risk of dementia in adults 55 years old and over.
TBI associated with higher risk of dementia in adults 55 and older
Traumatic brain injuries appear to be positively correlated with a higher risk of dementia in older adults, a new study says.
Building Community: A case for adult hydrocephalus research
The Adult Hydrocephalus Clinical Research Network officially launched in October, with a goal to deliver high quality, high impact hydrocephalus research.
Codman Neuro Inaugurates Hydrocephalus Research Prize at ISHCSF
Codman Neuro, part of DePuy Synthes Companies of Johnson & Johnson, are providing the funding behind the new Bertil Romner Memorial Hydrocephalus Research Prize, a grant to support further research into Normal Pressure Hydrocephalus.
Newsday Features Normal Pressure Hydrocephalus
Reporter Peter King with Newsday interviews Dr. Norman Relkin about Normal Pressure Hydrocephalus and the difficulties with discerning between it and Alzheimer’s.
New Book on NPH Sights Considerable Savings with Proper Diagnosis
Dr. Daniele Rigamonte, director of the Department of Neurosurgery’s stereotactic radiosurgery at Johns Hopkins, shares his vast knowledge of Normal Pressure Hydrocephalus in a newly published book, “Adult Hydrocephalus.” In the book he sites a 2007 study he led that highlights the potential national cost savings to proper timely diagnosis of NPH by the medical community.
Normal Pressure Hydrocephalus
Normal pressure hydrocephalus (NPH) is an accumulation of cerebrospinal fluid (CSF) that causes the ventricles in the brain to become enlarged, sometimes with little or no increase in intracranial pressure (ICP).
NPH-type Symptoms Found after Intraventricular Hemorrhage
Researchers presenting at the 2014 International Stroke Conference found patients with intraventricular hemorrhage after intracerebral hemorrhage have an increased risk for developing two of the three classic normal pressure hydrocephalus symptoms.
AARP Bulletin Features Normal Pressure Hydrocephalus
The April 2014 issue of the AARP Bulletin featured an article that highlights normal pressure hydrocephalus as a condition that mimics dementia, helping raise awareness about an often undiagnosed or misdiagnosed treatable neurological condition that affects up to 700,000 persons in the United States alone.
Bringing Normal Pressure Hydrocephalus Out of Obscurity
In the 1960s, a treatable form of dementia was a controversial claim. One man questioned things that others were simply content to accept, and to bring it into the real world as a clinically diagnosable and, more importantly a treatable syndrome known as Normal Pressure Hydrocephalus. Who was Dr. Salomon Hakim?
50th Anniversary of the Recognition of Normal Pressure Hydrocephalus
March 10, 2014, marks the 50th anniversary of the recognition of NPH as a distinct medical condition, allowing countless people access to the treatment needed to return to active lifestyles after possibly years of living with misdiagnosed dementia. Join the Hydrocephalus Association as we commemorate this year.
Musician Dick Wagner Shares the Long Road to Diagnosis of Normal Pressure Hydrocephalus
Fox 10 News Phoenix airs a powerful interview with famous rock musician Dick Wagner about his long road to receiving the proper diagnosis of Normal Pressure Hydrocephalus.
Medical Advisory Board Member on Research Team to Investigate Long-Term Outcomes of TBI
Dr. Richard Ellenbogen, a UW neurosurgeon and a member of the Hydrocephalus Association Medical Advisory Board, will serve as a principal investigator on a two-year, $2.4 million study looking into the long-term implications of damage to the brain caused by TBI, funded by Seattle Seahawks owner and Microsoft Co-founder, Paul Allen.
What if it isn’t Alzheimer’s or Parkinson’s? Understanding Normal Pressure Hydrocephalus
The Hydrocephalus Association’s first webinar on Normal Pressure Hydrocephalus is now available online! “What if it isn’t Alzheimer’s or Parkinson’s?” held on Tuesday, September 10, 2013, with Dr. Michael A Williams, Medical Director, Sandra and Malcolm Berman Brain & Spine Institute, LifeBridge Health at Sinai Hospital of Baltimore, discussed how the diagnosis of Normal Pressure Hydrocephalus can be missed and how it can be made.
Alzheimer’s Weekly Features Normal Pressure Hydrocephalus
Alzheimer’s & Dementia Weekly features a news piece by Dr. Holly Phillips of CBS 2 New York on Normal Pressure Hydrocephalus and how it is often misdiagnosed as Alzheimer’s.
Adult Hydrocephalus and the Development of a Research Network
Adult Hydrocephalus and the Development of a Research Network
Mississippi Woman Misdiagnosed with Alzheimer’s
Phoenix-based CBS Channel 5 shares the story of Fran Rutledge, who was originally diagnosed with Alzheimer’s but, after a fall that broke her back, it was discovered she had Normal Pressure Hydrocephalus (NPH).
NEW Hydrocephalus Educational Webinar Launch
The Hydrocephalus Association is pleased to announce our 2013 Education and Support webinar series! In this first webinar, Dr. Michael Williams, Medical Director of the Sandra and Malcolm Berman Brain and Spine Institute at Sinai Hospital of Baltimore, will discuss how the diagnosis of normal pressure hydrocephalus can be missed, and how it can be made. Register today!
NPH Featured on Boston National Public Radio Show
National Public Radio Boston affiliate WBUR’s Here and Now host, Robin Young, interviews Dr. Mark Johnson, neurosurgeon and head of the Adult Hydrocephalus Program at Brigham and Women’s Hospital, about Normal Pressure Hydrocephalus (NPH).
Research UPDATE: Improving Diagnosis of NPH Through Imaging
Continuing with our Mentored Young Investigator (MYI) blog series, we want to highlight one of the 2009 recipients, Dana Moore, Ph.D. Her study entitled, “Quantitative measurement of ventricular volume and cortical atrophy to improve diagnosis of Normal Pressure Hydrocephalus (NPH),” aimed to improve diagnosis of NPH through imaging. NPH is a chronic neurological disorder in adults. […]
Dr. Adam Mednick Interviewed About NPH on Connecticut Morning News Program
Dr. Adam Mednick is interviewed by WTIC Fox Connecticut about the diagnosis and treatment of Normal Pressure Hydrocephalus.