After struggling with a declining interest in activities that she loved, decreasing mobility, and urinary incontinence, Dorothy Sorlie was finally diagnosed with Normal Pressure Hydrocephalus (NPH). A recent article in the Leader-Telegram detailed her journey.
A recently published study attempts to shed light on the long term outcomes of untreated iNPH by examining mortality rates, risk of dementia, and symptom progression in individuals with ventricular enlargement.
Donate now through October 31st and your gift will be matched dollar for dollar by a generous donor who will give up to $100,000 to further research into adult hydrocephalus!
The hydrocephalus community claimed a big victory on Capitol Hill when we helped ensure Congress did not restrict medical research for veterans living with hydrocephalus.
Approximately 10% of those diagnosed with Alzheimer’s or dementia are living with Normal Pressure Hydrocephalus. Why is it so often mis- or undiagnosed?
The Greenville Health System (GHS) Neurological Institute will host a symposium on normal pressure hydrocephalus (NPH), taking bold steps forward to raise awareness and knowledge about NPH to the medical professionals serving as the first line of defense for early and proper diagnosis.
On November 24, 2015, NBC’s Chicago Med aired an episode which highlighted Normal Pressure Hydrocephalus (NPH), often referred to as a treatable dementia.
On Thursday, March 19, 2015, Grey’s Anatomy aired an episode which highlighted Normal Pressure Hydrocephalus and raised awareness of a “treatable dementia.”
Is it dementia or Normal Pressure Hydrocephalus. U.S. News & World Report reports on the importance of proper diagnosis of this treatable dementia.
With it’s recent story on Normal Pressure Hydrocephalus, Fox News plays an important role in our continued efforts to educate the public and raise awareness about hydrocephalus and normal pressure hydrocephalus to a large national audience.
The Adult Hydrocephalus Clinical Research Network officially launched in October, with a goal to deliver high quality, high impact hydrocephalus research.
Codman Neuro, part of DePuy Synthes Companies of Johnson & Johnson, are providing the funding behind the new Bertil Romner Memorial Hydrocephalus Research Prize, a grant to support further research into Normal Pressure Hydrocephalus.
Reporter Peter King with Newsday interviews Dr. Norman Relkin about Normal Pressure Hydrocephalus and the difficulties with discerning between it and Alzheimer’s.
Dr. Daniele Rigamonte, director of the Department of Neurosurgery’s stereotactic radiosurgery at Johns Hopkins, shares his vast knowledge of Normal Pressure Hydrocephalus in a newly published book, “Adult Hydrocephalus.” In the book he sites a 2007 study he led that highlights the potential national cost savings to proper timely diagnosis of NPH by the medical community.
Normal pressure hydrocephalus (NPH) is an accumulation of cerebrospinal fluid (CSF) that causes the ventricles in the brain to become enlarged, sometimes with little or no increase in intracranial pressure (ICP).
Researchers presenting at the 2014 International Stroke Conference found patients with intraventricular hemorrhage after intracerebral hemorrhage have an increased risk for developing two of the three classic normal pressure hydrocephalus symptoms.
The April 2014 issue of the AARP Bulletin featured an article that highlights normal pressure hydrocephalus as a condition that mimics dementia, helping raise awareness about an often undiagnosed or misdiagnosed treatable neurological condition that affects up to 700,000 persons in the United States alone.
In the 1960s, a treatable form of dementia was a controversial claim. One man questioned things that others were simply content to accept, and to bring it into the real world as a clinically diagnosable and, more importantly a treatable syndrome known as Normal Pressure Hydrocephalus. Who was Dr. Salomon Hakim?
March 10, 2014, marks the 50th anniversary of the recognition of NPH as a distinct medical condition, allowing countless people access to the treatment needed to return to active lifestyles after possibly years of living with misdiagnosed dementia. Join the Hydrocephalus Association as we commemorate this year.
Fox 10 News Phoenix airs a powerful interview with famous rock musician Dick Wagner about his long road to receiving the proper diagnosis of Normal Pressure Hydrocephalus.
Dr. Richard Ellenbogen, a UW neurosurgeon and a member of the Hydrocephalus Association Medical Advisory Board, will serve as a principal investigator on a two-year, $2.4 million study looking into the long-term implications of damage to the brain caused by TBI, funded by Seattle Seahawks owner and Microsoft Co-founder, Paul Allen.
The Hydrocephalus Association’s first webinar on Normal Pressure Hydrocephalus is now available online! “What if it isn’t Alzheimer’s or Parkinson’s?” held on Tuesday, September 10, 2013, with Dr. Michael A Williams, Medical Director, Sandra and Malcolm Berman Brain & Spine Institute, LifeBridge Health at Sinai Hospital of Baltimore, discussed how the diagnosis of Normal Pressure Hydrocephalus can be missed and how it can be made.
Alzheimer’s & Dementia Weekly features a news piece by Dr. Holly Phillips of CBS 2 New York on Normal Pressure Hydrocephalus and how it is often misdiagnosed as Alzheimer’s.
The Barrow Normal Pressure Hydrocephalus Blog from the Barrow Neurological Institute shares the journey of Walter Pries, diagnosed and treated for Normal Pressure Hydrocephalus.
Phoenix-based CBS Channel 5 shares the story of Fran Rutledge, who was originally diagnosed with Alzheimer’s but, after a fall that broke her back, it was discovered she had Normal Pressure Hydrocephalus (NPH).
The Hydrocephalus Association is pleased to announce our 2013 Education and Support webinar series! In this first webinar, Dr. Michael Williams, Medical Director of the Sandra and Malcolm Berman Brain and Spine Institute at Sinai Hospital of Baltimore, will discuss how the diagnosis of normal pressure hydrocephalus can be missed, and how it can be made. Register today!
National Public Radio Boston affiliate WBUR’s Here and Now host, Robin Young, interviews Dr. Mark Johnson, neurosurgeon and head of the Adult Hydrocephalus Program at Brigham and Women’s Hospital, about Normal Pressure Hydrocephalus (NPH).
Continuing with our Mentored Young Investigator (MYI) blog series, we want to highlight one of the 2009 recipients, Dana Moore, Ph.D. Her study entitled, “Quantitative measurement of ventricular volume and cortical atrophy to improve diagnosis of Normal Pressure Hydrocephalus (NPH),” aimed to improve diagnosis of NPH through imaging. NPH is a chronic neurological disorder in adults. […]