Conference

Announcing National Conference Financial Aid

The Hydrocephalus Association is pleased to announce a financial aid program for the 15th National Conference on Hydrocephalus which will be held in Orange County, California June 28-30, 2018.

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Conference Program Available!

The Hydrocephalus Association staff and the program planning committee are happy to announce the release of our conference agenda for the 15th National Conference on Hydrocephalus, HACONNECT!

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Conference Registration is OPEN!

Registration for our 15th National Conference on Hydrocephalus is OPEN! Join us in Orange County, California, June 28 – 30, 2018.

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Book Your Hotel for Conference!

Housing is open for the National Conference on Hydrocephalus which will take place on June 28-30, 2018 at the Renaissance Newport Beach in Orange County, California. Book your hotel!

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The Power of Storytelling

Storytelling can be a powerful and influential advocacy tool in getting people to understand the breadth and depth of impact hydrocephalus has on individuals and families.Every person afflicted with Hydrocephalus has a story to tell.

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10 Reasons to Attend Conference!

Our biennial conference is a cornerstone of our commitment to serving our community. You don’t *need* a reason to attend conference but here are some good ones!

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National Hydrocephalus Conference

Countdown to Conference: Tips on making it affordable!

The National Conference on Hydrocephalus takes place June 16 – 19th in Minneapolis, Minnesota. Join us! Here are tips to help make it affordable.

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Hydrocephalus Conference

Book Your Hotel for Conference!

Housing is open for the National Conference on Hydrocephalus June 16-19 in Minneapolis, Minnesota. Book your hotel!

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Hydrocephalus Patient Conference

MINNEAPOLIS: We are on our way! 2016 Hydrocephalus Conference

SAVE THE DATE: The 14th National Conference on Hydrocephalus will take place in Minneapolis, Minnesota, on June 16-19, 2016! Our patient-centered conferences empower all of us to understand, seek out and put into place the care, programs and services that will meet our needs now and well into the future.

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National Hydrocephalus Conference 2014

2014 Conference – Parent Track Highlights

The National Conference on Hydrocephalus offers parents an opportunity to connect with other parents, speak directly with experts on various topics about raising a child with hydrocephalus – social, emotional, educational, financial, and medical – and watch their children interact with other children living with hydrocephalus. Join us in Portland, Oregon, July 9-11, 2014.

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Teens with Hydrocephalus

Finding a Voice

Two teens living with hydrocephalus and one sibling share their first conference experiences attending the Hydrocephalus Association’s biennial National Conference on Hydrocephalus.

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National Hydrocephalus Conference 2014

2014 Conference Update – Teen Track Highlights

Highlighting the Hydrocephalus Association’s Teen track for the upcoming 13th National Conference on Hydrocephalus, July 9-11, 2014, in Portland, OR.

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Dr. Timothy Vogel Joins the Robert H. Pudenz Lectureship at Conference

Timothy Vogel, MD, will join the Robert H. Pudenz Lectureship scientific research panel at the Hydrocephalus Association’s 13th National Conference on Hydrocephalus, July 9-11, 2014, in Portland, Oregon.

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National Hydrocephalus Conference 2014

2014 Conference Update – NPH Track Highlights

By Jennifer Bechard Johnson, Education Manager There is something for everyone at our 13th National Conference on Hydrocephalus. We are happy to announce that this year’s conference will have a special track of programming dedicated to meeting the needs of the normal pressure hydrocephalus (NPH) population. Here is a preview of what our conference has to […]

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National Hydrocephalus Conference 2014

2014 Conference Update – Preliminary Schedule Now Available!

The Hydrocephalus Association staff is happy to announce the release of our preliminary schedule for our upcoming 13th National Conference on Hydrocephalus, Community. Clarity. Cure., July 9-11, 2014, in Portland, OR.

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Young Adults at Hydrocephalus Association Conference

Countdown to Conference: Conference’s Biggest Take-Aways

Haylea Blank shares the take-aways from attending two Hydrocephalus Association national conferences that have helped her manage her hydrocephalus into adulthood.

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Meet the Medical Chairs of the 13th National Conference on Hydrocephalus

The Hydrocephalus Association is pleased to announce the Medical Chairs of the 13th National Conference on Hydrocephalus – Drs. Nathan Selden, Marion “Jack” Walker, and Michael A. Williams.

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International Conference on Spina Bifida and Hydrocephalus

The International Federation for Spina Bifida and Hydrocephalus (IF) hosts it’s 24th international conference “Unite and Share” on June 28 and 29, 2013, in Izmir, Turkey. The conference will bring together healthcare professionals and individuals with spina bifida and hydrocephalus to share the latest knowledge and exchange their experiences.

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…times, they are a changin’

  By Dawn Mancuso “…Come senators, congressmen, please heed the call” -Bob Dylan July has been an incredibly busy month for the Hydrocephalus Association.  In fact, it is safe to say that the word busy hardly does it justice.  At the beginning of the month, we wrapped up our biennial conference on hydrocephalus in Bethesda, […]

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The 12th National Conference on Hydrocephalus

    The Hydrocephalus Association held it’s 12th National Conference on Hydrocephalus in Bethesda, MD from June 27th through July 1st, 2012. As always we gathered to re-establish our sense of community and educate ourselves about hydrocephalus. Conference Highlights: Advocacy Day On Thursday, June 28th, over 200 participants visited their congressional representatives to lobby for […]

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Hydrocephalus Research Conference Highlights

By Paul Gross, Chairman of the HA Board of Directors The third NIH sponsored research conference on hydrocephalus concluded on July 11th  and by all accounts was a resounding success!  Entitled “Opportunities in Hydrocephalus Research: Pathways to Better Outcomes“, the conference featured a broad spectrum of thought leaders from bench scientists in molecular biology to […]

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Advocacy Day and the 12th National Conference

Famed football coach Vince Lombardi once said that “My teams have never lost a football game. They just occasionally run out of time to win it.” Here at Hydrocephalus Association, we know first-hand just how time is of the essence. Each day, more children and adults are diagnosed with hydrocephalus. And, those previously diagnosed with hydrocephalus […]

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Hydrocephalus Association Brings its Message to Capitol Hill!

On Thursday, the 28th of July, the second day of our conference, we held our second Advocacy Day on Capitol Hill, “Climbing Capitol Hill for a Cure.”  Hundreds of members of the hydrocephalus community braved the intense heat of a Washington, DC summer day to bring our message of increased funding for hydrocephalus research to […]

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Historical Perspective of Hydrocephalus and its treatment & HA History: 1983 – 2012 – then, now and the future

Ever wanted to know more about the history of hydrocephalus? When was it discovered? How has it evolved over the last 2500 years? Would you like to know more about the work of Dr. Hakim? How about the humble beginnings the Hydrocephalus Association? Well, we invite you to attend the 12th National Conference in Bethesda, […]

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Only One Week Away!!! 12th National Conference on Hydrocephalus! What it’s all about!

Our biennial hydrocephalus conference is one of the traditional cornerstones of the Hydrocephalus Association’s commitment to meeting the far ranging needs of our community. This year, from June 27th through July 1st, the HA invites you to join us in Bethesda, MD at our the 12th National Conference on Hydrocephalus. Education, education, education… Hydrocephalus is […]

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Benjamin Warf, MD – To Speak at 12th National Conference on Hydrocephalus

We are honored and excited to announce that Benjamin Warf, MD is joining our faculty this June in Bethesda, MD.  Dr. Warf is scheduled to give the Keynote Address during lunch on Saturday June 30th.  His Inspirational Keynote Address will encompass his work treating hydrocephalus in Sub-Saharan Africa. Dr. Warf began his career in pediatric […]

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NIH Supports Upcoming Hydrocephalus Research Conference

We are excited to announce that we have received a commitment from the National Institute of Neurological Disorders and Stroke (NINDS), the leading federal funder of brain science at the National Institutes of Health (NIH), to support our upcoming research conference entitled “Opportunities in Hydrocephalus Research: Pathways to Better Outcomes” in Seattle on July 9-11, […]

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Research Conference Sets the Stage for Large Research Investment

by Paul Gross, Chairman of the HA Board of Directors I am excited to announce that Hydrocephalus Association (HA) has partnered with the Rudi Schulte Research Institute (RSRI) to release a major new Request for Applications (RFA) in conjunction with our upcoming research conference in Seattle on July 9-11.  Rudi Schulte was one of the […]

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Climbing Capitol Hill for a Cure! A Day of Action

By Jennifer Bechard, Support Liaison My first conference was at the 11th National Conference on Hydrocephalus in Cleveland OH and it certainly was an experience that I will cherish forever. Meeting world-renowned medical professionals, watching a live endoscopic third ventriculostomy (ETV) surgery, marching in a parade and hearing researchers speak about the advancements and works […]

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Opportunities in Hydrocephalus Research: Pathways to Better Outcomes

The Hydrocephalus Association, in conjunction with several other institutes and organizations, is pleased to announce a landmark research conference to be held July 9-11, 2012 in Seattle, WA. The title of the conference is “Opportunities in Hydrocephalus Research: Pathways to Better Outcomes.” The focus will be the discussion of current hydrocephalus research from several different […]

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12th National Conference: Tips on how you can afford it!

The National Conference on Hydrocephalus is our biennial gathering to self-educate and make or renew connections. Join doctors, nurses, parents, children, people living with hydrocephalus and people affected by it, as we celebrate our community. While we strive to keep costs down for attendees and provide some financial aid for registration, there are other costs […]

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Astronaut Mark Kelly to Headline our 12th National Conference

By Dawn Mancuso, HA CEO Captain Kelly’s biographical information generously provided by Keppler Speakers I am so excited about this news I just had to make it the subject of my blog this month – Captain Mark Kelly will be speaking at our hydrocephalus conference in June! Mark Kelly is an American astronaut, retired US […]

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Ever Wonder What it’s Like to Be Part of a Hydrocephalus Conference?

Watch the highlights from our last conference on hydrocephalus, which took place in Cleveland, OH in 2010. We invite you to register for the upcoming 12th National Conference, which will be held in Bethesda, MD from this June 26th through July 1st.

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12 National Conference on Hydrocephalus: Travel Tips

As you make your way to the 12th National Conference on Hydrocephalus in Bethesda, MD, here is some information to help you plan your trip. Area Airports 1)    Washington Dulles International Airport Chantilly, VA www.metwashairports.com/dulles/dulles.htm Distance from hotel: 25 miles 2)    Ronald Reagan Washington National Airport Arlington, VA www.metwashairports.com/reagan/reagan.htm Distance from hotel: 23 miles 3)   […]

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NINDS Director Dr. Landis to Headline HA’s Conference in June

We are honored and thrilled to report that Dr. Story C. Landis, the distinguished Director of the National Institute for Neurological Disorders and Stroke (NINDS), will be a keynote speaker at the Hydrocephalus Association’s 12th National Conference on Hydrocephalus: Getting to The Heart of Hydrocephalus. Dr. Landis will address the importance of hydrocephalus research and how this […]

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Advocacy Day in Washington, DC: Climbing Capitol Hill for a Cure!

“On Hydrocephalus Advocacy Day, May 30, 2006, 120 hearty souls braved the heat in Washington, D.C. on a mission to ask our elected representatives to devote more federal support to hydrocephalus research and treatment. I was moved by everyone’s vibrant courage. Though most of you had never pursued legislative advocacy before, we did amazing work […]

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Register Today for the 12th National Conference on Hydrocephalus!

June 27-July 1, 2012 Bethesda North Marriott Hotel & Conference Center, Bethesda, MD The goal of the conference is to provide tools and connections to address the medical, educational and social challenges of living with hydrocephalus and to provide the opportunity for an enjoyable get together! Hydrocephalus is a chronic condition for which there is […]

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From the CEO: Another way to say “I Care”

As I sit and write this blog to you, I am thinking about what the month of February means to the hydrocephalus community. Now, for many people, it is the month when the Super Bowl takes place – the culmination of the season-long competition to find out which team goes home with the coveted prize […]

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Meet our Conference Medical Chairs for the 2012 Conference on Hydrocephalus!

For more than 20 years, the Hydrocephalus Association (HA) has been bringing families and professionals together at the National Conferences on Hydrocephalus. The 2012, 12th Conference: Getting to the Heart of Hydrocephalus is no exception. This year we are thrilled to have Drs. Marion L. Walker and Michael A. Williams chairing the conference.  Both have […]

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2012 Conference on Hydrocephalus, ‘Save the Date!’

by Pip Marks and Karima Roumila We are most excited to announce our 12th National Conference on Hydrocephalus which will take place in Bethesda, MD on June 27th – July 1st 2012! The goal of our biennial conferences is to give individuals, families and professionals the tools and connections they need to address the medical, […]

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