cdmrp

How a Changed Congress Could Impact Hydrocephalus

On Tuesday, November 6th, voters went to the polls and made some significant changes to the U.S. Congress. Due to the bi-partisan nature of policy issues impacting the hydrocephalus community, this outcome represents both opportunities and challenges moving forward.

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Our Advocacy Efforts on Capitol Hill Worked!

The budget bill recently signed by President Trumps protects and increases funding for several crucial hydrocephalus-related research programs.

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Tracking the FY 2019 Spending Bills in Congress

The Hydrocephalus Association joined 35 other patient groups in asking Congress to protect funding for hydrocephalus-related research programs at the Department of Defense (DoD) — and it worked!

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Congress Preserves Program Essential to Quality Hydrocephalus Research

Thanks to the efforts of a range of advocates, including the hydrocephalus community, Congress has preserved the Congressionally Directed Medical Research Program (CDMRP).

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Hydrocephalus Action Network

A Possible Cut in Hydrocephalus Research Funding from Capitol Hill

Congress is currently debating a bill that could have major implications for hydrocephalus research through the Department of Defense CDMRP program.

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Hydrocephalus Advocate Joins Scientific Peer Review of Research Applications for the Department of Defense Peer Reviewed Medical Research Program

Peer review advocate Barrett O’Connor participated in the evaluation of research applications submitted to the PRMRP sponsored by the Department of Defense.

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Susan Fiorella, hydrocephalus advocate, with her son.

Moms on a MISSION: Susan Fiorella, Advocate

Mom #2 – Susan Fiorella, The Advocate. Join us as we profile 7 (S)HEroes of our #hydrocephalus community – MOMS ON A MISSION! Happy Mother’s Day!

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Dawn Mancuso, CEO, Hydrocephalus Association

Celebrating a BANNER Year!

With our eligibility to receive research funding through the CDMRP to launching our Adult Hydrocephalus Clinical Research Network, it has been a year of WINS.

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