The Doctors dedicate a segment to hydrocephalus, focusing on infants born with hydrocephalus. The segment follows up on baby Roona Begum from India who gained national attention when her untreated hydrocephalus caused an international outpouring of support for her treatment.
Prior to the introduction of an effective treatment for hydrocephalus, most individuals did not survive. However, with advances in diagnosis and treatment since the 1950s, the majority of individuals with hydrocephalus are transitioning into adulthood. This transition comes with significant challenges that a recent article in the Wall Street Journal highlights.
Leilani Schweitzer, who lost her 20 months old son Gabriel, who had hydrocephalus, is now a patient liaison with Stanford University Hospital and an advocate for better hospital-patient communication.
Matthew Schwerha with ViewsMix Chicago features 29 year-old Eric Tolbert who has endured over 500 surgeries to manage his hydrocephalus. Eric will join over 600 other walkers at this year’s 10th Annual Chicago Hydrocephalus Association Walk on Sept. 6, at Lincoln Park Zoo.
The Kids Wish Network granted 4 year-old Jace Carmack his wish for him and his family to visit Disneyland and Universal Studios. Jace was born with hydrocephalus and has endured numerous brain surgeries to revise his shunt.
Working with the Frisco Parks and Recreation Department, Frisco Commons was selected for the site of the inaugural 2014 Dallas/Fort Worth Hydrocephalus Association WALK which will take place on September 27, 2014.
Matt Kocsis, an entering senior at Cumberland Valley High School, shares his hydrocephalus journey of 98 brain surgeries, three years in a wheelchair, and his enduring hope for better treatment options and a cure. He completed the 2014 Central PA Hydrocephalus Association WALK in Hershey, PA.
Matt Kocsis will be joined by family, friends, and his life-long neighbor, Brian Osborne, a Season 10 The Bachelorette contestant, as he WALKs for a cure at the 2014 Central PA Hydrocephalus Association WALK in Hershey, PA. Matt, a senior in high school, has undergone 93 brain surgeries to treat his hydrocephalus.
WCCB Charlotte features the 2nd Annual Greater Charlotte Hydrocephalus Association WALK which will take place on September 13, 2014, at the Elizabeth Park, Little Sugar Creek Greenway.
The Chattanoogan.com features Ema McLaughen’s visit to the Miss Tennessee Pageant preliminary round as the special guest of Miss Metropolitan Darby Schumacher, a pageant contestant. The Chattanooga WALK is also featured in the piece, which will take place on October 25, 2014, at Coolidge Park in Chattanooga.
The Courier-Post shares the accomplishment of 17-year-old Michaela Healy who graduated from high school with her peers, despite having over 200 surgeries to treat her hydrocephalus. Click here to read the article.
WTVC NewsChannel 9 features Ema McLaughen’s backstage experience at the Miss Tennessee Scholarship Pageant and her heartwarming meeting with the 2013 Miss Tennessee, Shelby Claire Thompson, and pageant contestant Darby Schumacher.
WBBJ 7 Eyewitness news features Ema, daughter of Chara McLaughen, our 2014 Greater Chattanooga Hydrocephalus Association WALK Chair, as she spends a special evening with the contestants of the Miss Tennessee Scholarship Pageant after 3 recent surgeries for her hydrocephalus.
In this installment of the Hydrocephalus Association’s video blog series, Through a Mother’s Eye’s, Debby Buffa addresses the question of how to deal with the fear and uncertainty experienced by parents and caregivers supporting a loved one with hydrocephalus.
In her monthly blog, Madeleine, a Hydrocephalus Association Teens Take Charge Advisory Council member, shares her first experience meeting other teens with hydrocephalus and how it changed her whole outlook on life.
The Columbus Dispatch reports on a recent study from the Journal of the American Medical Association that showed a 29.1% increase in the number of patients being treated for traumatic brain injury in emergency rooms.
Dr. Stephen A. Back will deliver the scientific keynote address on his work on the development of strategies to promote regeneration and repair of injury to the brain at the Hydrocephalus Association’s 13th National Conference on Hydrocephalus, July 9-11, 2014, Portland, Oregon. Join us!
Haylea Blank shares the take-aways from attending two Hydrocephalus Association national conferences that have helped her manage her hydrocephalus into adulthood.
The Hydrocephalus Association patient-centered National Conference empowers all of us with the tools and connections to address the medical, educational and social complexities of living with hydrocephalus. Join us in Portland, Oregon, July 9-11, 2014!
Join the Hydrocephalus Association on Monday, March 3, 2014, at 7:00 p.m. EST for our next webinar, “Research Update: Delivering on a Promise,” exploring the latest advances in hydrocephalus research and showcasing several exciting studies being conducted to better understand the basic science of hydrocephalus and clinical protocols for treating patients.
Amber Fantaci, a Kidsday Reporter, of Long Island’s Newday, shares her story of living with hydrocephalus. Amber’s story helps raise awareness for this condition that is the leading cause of brain surgery in children. Thanks, Amber!
Stephanie Oltean has a son with hydrocephalus. Her community of Lucas, Kansas, came out to celebrate the holiday season and learn more about hydrocephalus at a benefit concert to support The Reason for Hope campaign and the work of the Hydrocephalus Association.
As the Hydrocephalus Association wraps up its interview series commemorating our 30th anniversary, we sit down with Russell Fudge, a founding member of the association and its longest serving board member. Russell closes our interview series looking back at our rich history and giving the association a message for the future.
For 30 years, the Hydrocephalus Association has served as the voice for one million patients, raising critical awareness and advocating for greater resources to fund research and better treatment options. We have accomplished so much but yet there is still much to do.
As the Hydrocephalus Association continues our 30th year anniversary commemoration, Dr. Marion “Jack” Walker, pediatric neurosurgeon, Primary Children’s Medical Center, Salt Lake City, Utah, reflects on his 37 years of service to the hydrocephalus community.
Eleven children received life-changing surgeries by Michael May of Cynthia, Kentucky, who worked with CURE celebrity fitness trainers to attain his fitness goals and raise money. May has hydrocephalus and is the winner of the inaugural CURE Champion Team.
As the Hydrocephalus Association continues its 30th anniversary interview series, Jennifer Balthuis, our Minnesota Community Network leader, shares the moments that have touched her the most while leading the MN Support Group.
Benny Higgenbotham, Jr., of Sandusky, Ohio, completed a nine-day 650 mile bicycle ride around Lake Erie to raise awareness for his grandson’s brain condition. Jesiah was diagnosed with hydrocephalus when he was 15 months old. Funds raised were donated to the Hydrocephalus Association to support educational programs and research initiatives.
The Minnesota Press & News shares the story of Park Center High School senior Olivia Maccoux, who is raising awareness and funds for her annual Hydrocephalus Association (HA) WALK. Olivia is an active member of the HA community and an advocate for hydrocephalus awareness.
The SCSunTimes profiles the second annual Hydrocephalus Association Smyrna WALK for Hydrocephalus at Smyrna High School, Smyrna, Delaware, on September 21, 2013. The WALK was inspired by resident, George Wicks, who has hydrocephalus.
As the Hydrocephalus Association continues its history series commemorating our 30th anniversary, Barrett O’Connor, chair of the HA board of directors, shares a personal message to the hydrocephalus community.
Congratulations to our 2013 Hydrocephalus Association Teens Take Charge (TTC) Scholarship Recipients! Our TTC scholarship program is made possible through the generous support of the Medtronic Foundation.
The Washington Post shares a lasting friendship between the University of Maryland head football coach, Randy Edsall, and Jeff Place, a Connecticut high school student diagnosed with hydrocephalus as the result of a brain tumor.
Justin Timberlake, Taylor Swift, Alison Sweeney, Dr. Lauren Streicher, Kasey Kahne, and Dick Wagner are all helping raise the profile of hydrocephalus, a little known brain condition that affects 1 million Americans, from infants to seniors. The Hydrocephalus Association thinks this is a great way to kick off Hydrocephalus Awareness Month, September 2013.
Dr. Tamara Simon discusses her work as the Principal Investigator for the shunt infection registry for the Hydrocephalus Clinical Research Network. Her study aims to understand the risk factors associated with shunt infection and how shunt infections are being treated.
The Hydrocephalus Association continues its 30th anniversary interview series with Olivia Maccoux, a high school senior, who feels she has been given the opportunity to grow and help others struggling with the challenges of hydrocephalus.
Matthew Schwerha, reporting for Park Ridge, interviews Cari Allen of Schaumburg and Tim Allen of Park Ridge, who’s 2 1/2 year-old son William Timothy has hydrocephalus. They participated in the Hydrocephalus Association Chicago WALK, which took place on August 18, 2013 at Soldier’s Field.