Posts Tagged ‘brain surgery’
Announcing Our 2016 Hydrocephalus Association Teens Take Charge Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Teens Take Charge Scholarship Recipients.
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Announcing Our 2016 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Scholarship Recipients.
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Living Hydro: One Family’s Journey
Our Charlotte Hydrocephalus WALK Chair shares her daughter’s journey with hydrocephalus.
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Device Currently in Clinical Trials May Delay the Need for Emergency Shunt Surgery
ReFlow System by Alcyone Lifesciences, Inc., currently in clinical trials, may prevent the need for an immediate emergency shunt revision for patients with hydrocephalus.
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Hydrocephalus Receives National Attention
TLC aired a feature piece on hydrocephalus that featured three families – Roona in India, Lyndos in Uganda, and Parker in Oklahoma.
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Splash Into Summer Fun with Summer Camp
Summer is right around the corner. Where will you child go to summer camp this year? A young adult from our community offers some insight and tips.
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Hawk and Why I WALK
A member of the hydrocephalus community reflects on the birth of his son with hydrocephalus and how it has affected his life.
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Building Our Life Together
In a heartwarming blog, Gayle openly shares the thoughts and emotions she experienced as she learned about the reality of loving a man with hydrocephalus .
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College Bound? Tips on the College Application Process
Dara Tannariello offers advice on how to tackle the college application process and shares insight from her personal experience.
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New Discovery Makes Researchers Rethink CSF Absorption
The discovery of lymphatic vessels in the brain creates a new focus for researchers looking for non-invasive treatments for hydrocephalus.
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Announcing Our 2015 Hydrocephalus Association Scholarship Recipients!
We are pleased to announce our 2015 Hydrocephalus Association Scholarship Recipients!
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The Patient Voice in Hydrocephalus Research Studies
Our Patient Partner Committees provide the patient perspective throughout the duration of a research study, making sure the patient voice is at the table.
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Realizing I Had Hydrocephalus
Dan Kricke talks about the first time he realized he had hydrocephalus when he was 5 and the various emotions he had along the way to adulthood.
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Learning to Date Me
Bryant, our new guest blogger, shares openly about the unconditional support of his fiancee and resilience of their relationship as he lives with hydrocephalus.
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Telling My Story
Meet Dan, a new guest blogger lending his voice to our adult hydrocephalus community. We are excited for Dan to share different aspects of his journey each month.
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Announcing our 2014 Hydrocephalus Association Teens Take Charge Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2014 Hydrocephalus Association Teens Take Charge Scholarship Recipients.
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Hydro Queen
Karly Rodriguez wrote this powerful and honest poem one month prior to her ETV procedure, after being diagnosed with hydrocephalus in 2012.
Read MoreLooking Back…Moving Forward: A Most Precious Gift
As the Hydrocephalus Association wraps up its interview series commemorating our 30th anniversary, we sit down with Russell Fudge, a founding member of HA.
Read MoreLooking Back…Moving Forward: Building Bridges Between Pediatric and Adult Hydrocephalus
As the Hydrocephalus Association continues our 30th year anniversary commemoration, Dr. Marion “Jack” Walker, pediatric neurosurgeon, Primary Children’s Medical Center, Salt Lake City, Utah, reflects on his 37 years of service to the hydrocephalus community.
Read MoreLooking Back…Moving Forward: Moments that Matter
As the Hydrocephalus Association continues its 30th anniversary interview series, Jennifer Balthuis, our Minnesota Community Network leader, shares the moments that have touched her the most while leading the MN Support Group.
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