Mr. Taurean Nixon of the Super Bowl Champion Denver Broncos will serve as the Inspirational Keynote Speaker at the National Conference on Hydrocephalus.
Tristen Pierce was born with a rare birth defect called rhombencephalosynapsis and has a shunt as part of his treatment plan. Despite numerous challenges, Tristen has proved to be a fighter.
The National Conference on Hydrocephalus takes place June 16 – 19th in Minneapolis, Minnesota. Join us! Here are tips to help make it affordable.
Hydrocephalus Teens Take Charge Mentor Task Force member offers advice on how to tackle the college application process and shares insight from her personal experience.
These two historic landmarks will be illuminated blue to commemorate Hydrocephalus Awareness Month 2015. Bethesda, MD | September 17, 2015 Niagara Falls and the Peace Bridge connecting the United States to Canada will be blue in honor of Hydrocephalus Awareness Month on the evening of Friday, September 18th. The lighting of these historic landmarks […]
TTC Blogger Madeleine Darowiche shares her insights about the challenge of accepting yourself and where you are today, in order to grow tomorrow.
SAVE THE DATE: The 14th National Conference on Hydrocephalus will take place in Minneapolis, Minnesota, on June 16-19, 2016! Our patient-centered conferences empower all of us to understand, seek out and put into place the care, programs and services that will meet our needs now and well into the future.
Our Patient Partner Committees provide the patient perspective throughout the duration of a research study, making sure the patient voice is at the table.
Teens Take Charge Mentor Task Force Member, Madeleine Darowiche, shares the highlights and challenges of her first year away from home at college.
TTC Member Megan Rivkin challenges young people to get involved in advocating and fundraising to increase research efforts and public awareness of hydrocephalus.
The Hydrocephalus Clinical Research Network begins enrolling patients in a new study that examines the best placement for a shunt in infants and children.
In her monthly blog, Madeleine shares her experience of telling her roommates and friends in college about living with hydrocephalus.
Upon completing her first semester at college, TTC Blogger, Madeleine, shares advice about strategies that helped her have a positive college experience.
My family is going into this holiday season a bit more hopeful because of the great research progress that has already been made through thoughtful donations from individuals like you.
Meet our newest TTC Blogger Emily Lucht! She shares her journey’s extra baggage. Read what she means and let’s start a conversation using #TalkTTC.
In her monthly blog, TTC member Madeleine shares how participating in HA WALKs in Florida helps her find new friends, raise awareness and funds, and have fun too!
The Reyes family shares a heartwarming series of family photos with The Austin-Statesman, highlighting them as one of this year’s recipient’s of the Statesman’s Season fro Caring program.
Boozle bear, who has hydrocephalus, is an educational tool used to demonstrate how shunting works. Read about this amazing bear and how you can help make him!
In her October Teens Take Charge Blog, Madeleine Darowiche shares about a leadership retreat she attended and the lessons in courage and teamwork she learned.
Chara McLaughen, our Hydrocephalus Association Chattanooga WALK Chair, is on a mission to educate the public about hydrocephalus. She and her daughter Ema are interviewed by WRCB TV’s Latrice Curry about their journey with the condition and the upcoming WALK to raise funds to find a cure.
At our 13th National Conference on Hydrocephalus in Portland, OR, July 9-11, 2014, we gathered to re-establish our sense of community and educate ourselves about hydrocephalus. Take a peek at our conference highlights!